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Re: [IPk] Charlie Dalton

Is there a local group (London South) which my husband and I could join so
that we could meet with someone on a pump? He is disabled and a bit worried
about Charlie going on a pump.

Barbara Dalton

----- Original Message -----
From: "Jackie Jacombs" <email @ redacted>
To: <email @ redacted>
Sent: Wednesday, September 25, 2002 7:53 PM
Subject: RE: [IPk] Charlie Dalton

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> Hi Barbara
> I think you are extremely lucky that you have  an educated diabetes  team
> who have actually suggest the pump.  Don't forget a lot of people
> to this list and don't necessarily post much because the are not having
> problems.  My daughter does not pump, so I can only go by what other
> have said.  I subscribe to Children with Diabetes mailing list for the
> where over half the posters seem to have children pumping.   It's not all
> plain sailing to begin with and there are things to watch out for.  When
> Charlie first starts on the pump I imagine he will need a lot of help and
> support to begin with and he will need to be very careful that any high
> sugar levels are checked out quickly and any problems dealt with swiftly.
> If you are pumping then you have no long acting insulin on board and
> problems can escalate very quickly if the sugars are raised for long.
> you get more information about pumping you will to told all this and the
> protocols to follow.
> Just because you have qualified nurses at your sons school don't assume
> they know much about diabetes, most nurses know very little.  Parents who
> are nurses themselves and then  find that they have to deal with a
> son or daughter are often staggered how little they do know.  So the
> at the school will have to be taught exactly what to do.
> You say that he won't end up in A&E so often?  Has he had problems with
> hypos??
> The professionals that I have come across have been very negative about
> pumping but I don't believe they should be.  Most have never even seen
> someone on a pump or have talked so someone who does use a pump.
> Your son's blood sugar levels are very high if they are persistently in
> range. 18 - 30 mmols You need to speak to your diabetes team about what to
> do at the moment and try and get is sorted out.
> What insulin does you son take??? and is he injecting short acting three
> times a day and longer acting at night (MDI) or taking pre mixed insulin?
> It is very hard to keep the levels within a normal range, with Sasha, if
> has slightly too much or too little insulin, half a unit is enough to make
> big difference. An extra small biscuit will make a difference between the
> next blood test being within normal ranges or over 16 mmols.  I don't know
> if this is the same with everyone but most people I speak to in my local
> support group say this seems to happen with young children.  Sasha is only
> and your son is 10 so maybe an extra biscuit or apple here and there would
> not make a such a huge difference.
> If Charlie is having hypos at night  he is probably having too much longer
> acting insulin.  Especially, if as you say, he is eating a reasonable
> before bedtime.  Again your diabetes team should be able to sort this out.
> How near will the hospital be that deals with your son when he is on the
> pump??
> Stress can make the blood sugars rise but if he is a full time boarder at
> this school and being a chorister is what he wants and it sounds like it
> then I would assume that things will settle down and things wont seem so
> stressful and new.
> I am sure that anyone who has a child on a pump will be able to make more
> suggestions
> Mum of Sasha aged 8 years
> Novorapid x 2
> Insulatard x 2
> If he is having hypo
> >
> > from Barbara, mother of Charlie aged 10 who has been recommended
> > a pump by his
> > consultant at Kings' College Hospital.
> >
> > I avidly read all your messages daily to get more info on what we
> > are about to
> > embark. However, I am beginning to feel rather scared - so many of your
> > messages seem to be about problems with equipment, support and
> > the uninformed
> > views of so called professionals. Having received so much
> > positive personal
> > encouragement form members of the site, I am now wondering if we
> > are embarking
> > on the right track. Charlie boards at school and the two nurses
> > and Head are
> > wholly supportive of  Charlie's decision to try a pump. He knows
> > he will be
> > healthier and not end up in A&E so often and is feeling very
> > positive about
> > the whole thing. It's just me panicking!!
> >
> > Another thing, Charlie seems unable to keep stable BMs. He is
> > usually anything
> > between 18 and 30 during the day but has frequent night hypos
> > despite eating
> > cereal etc on going to bed. Any advice? His diet is good, he
> > loves food and
> > the school monitor how much he eats every day. No problems there.
> > But despite
> > changing insulin's, amounts etc we are unable to keep to a happy
> > medium. Is
> > this very unusual? Could it be the stress of a 'high-profile'
> > chorister life
> > that affects everything? I feel so ignorant.
> > Thanks
> >
> > Barbara
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> ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml