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RE: [IPk] Insulin pumps and the lack of them!! and lack of knowledge

Hi Heather

My own consultant is totally not interested in pumps and knows very little
about them, he's senior paediatric consultant and Cheltenham but not a
diabetic specialist.  I actually think he's anti pump.  Sasha's  last  HbA1c
was 6.2 we have had 5.5 and 5.9 before now which he said was too low (the
5.5 and 5.9).  He was pleased with the 6.2. which I wouldn't get without
carb counting.  Although I don't check a lot of stuff now because we just
remember what things are.  I don't even tell the clinic that I carb count in
case they think I am obsessed!!!

I don't think that he would refer us to another hospital.

How far away is your hospital from you now.  If there is a serious problem
with Sam due to ketoacidosis or a vomiting sick bug where would you go to??
Does your local hospital do the HbA1cs and other checks??

Jackie, England
Mum of Sasha aged 8 dx 1999, twin sister Rebecca, both coeliac 2001
Mum also to Danni and Nicola, wife to Terry

> Jackie,
> We had problems trying to get Sam onto his pump. Our consultant
> at our local
> hospital referred us to the Manchester Diabetes Centre as he was
> aware that
> there were patients using pumps there. What was not understood was that
> there were only a few (I think 3 or 4) children using pumps and
> for a host
> of reasonable (to them) reasons they didn't want to take on a
> child of Sam's
> age when we lived 50 or so miles away from the hospital. So we
> did have to
> go through meeting the team in Manchester and being rejected
> which was very
> distressing.  Then through some suggestions from John Davis and
> Jill Jones
> from Medtronic I did cold call several large hospitals in the north of
> England and spoke to  Paediatric DSNs to guage their reaction and
> approach
> to pump therapy. I did find 3 DSNs which discussed our situation
> with their
> consultants and confirmed that they'd be sympathetic to our request but
> would obvioulsy need to see us first. We decided that Harrogate
> would be the
> preferred choice because of Sandra Dudley's involvement with PUMP
> (running
> courses on pump therapy for medical professionals), our
> consultant was also
> happier to refer us to them. So that's what we did. So we're
> under wonderful
> Harrogate for Sam's pump treatment. We've also received much
> needed support
> from Jill Jones. It certainly hasn't been an easy path and isn't for the
> feint hearted. (By the way when we went ot Harrogate, there was a
> lady who
> had travelled from the south coast to be put on a pump!)
> I'm not very good at short consise emails, am I?!
> Heather
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