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Re: [IPk] Funding / Waiting



That sounds like an interesting experience Steven, and one that I'm trying
to replicate for Ireland's 15,000 type 1's at the moment. Besides the
worthwhile recommendation, did the NSF group consider issues of funding, and
prioritising treatment options that people make these informed choices
about? It seems almost worse than being ignored, to be enabled to make
informed choices, then not enabled to carry them out!

I'd like to get in touch with PUMP, to see if I could borrow any of their
ideas, not just about influencing professionals about pump therapy, but
about any innovation, including multi-dose regimens and pens in many cases!
Do you know of a contact number or e-mail?

Thanks,

Tony
----- Original Message -----
From: "Steven J Sexton" <email @ redacted>
To: <email @ redacted>
Sent: Monday, September 24, 2001 9:40 PM
Subject: Re: [IPk] Funding / Waiting


> Hi Tony
>
> I just wanted to pick up one point in your post.
>
> I was part of the Type 1 working group on the Diabetes NSF, to reflect the
> views of people living with diabetes, I was NOT there on behalf of
Diabetes UK.
>
> The issues of including pump therapy came up, not only raised by myself
but
> also by some of the healthcare professionals on the working group. But it
> was part of a bigger/wider issue in relation to people being able to make
> informed choices about the type of regimes/treatments they should receive.
> Some people are still being put on insulin regimes which are not
> appropriate to them or their lifestyle because the Doctor always "uses
that
> regime"
>
> The outcome/recommendation is that people living with diabetes should be
> given the appropriate information to enable them to make informed choices
> about the different regimes/treatments that are available. This includes
> pump therapy.
>
> In terms of promoting pump therapy to healthcare professionals, that is
> being done at the moment by a group of Healthcare professionals (PUMP)
> already involved in pump therapy and they are working extremely hard on
> this issue.
>
> Kind regards
>
> Steven
>
>
> >It seems you have two problems in the UK; one, to persuade professionals
to
> >give pumps a chance, and two, to persuade the NHS to fund them.
> >
> >The second may already have been done by the involvement of diabetes UK
in
> >the National Service Framework, which will be published shortly. I will
> >contact Paul Streets to confirm this. The former needs further realistic
> >promotion to professionals, emanating from respected peers. One option is
to
> >conduct a study, possibly a simple survey, among current pump users
relating
> >to safety, satisfaction, and outcomes particularly HbA1cs. Something like
> >this would have a bigger impact on professional behaviour than any amount
of
> >grumbling, albeit justified, from users!
>
> --------------------------------------------------------------------------
--
> Diabetes Insight
> http://www.diabetic.org.uk
> mailto:email @ redacted
> There are No Problems only Solutions
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