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[IPk] Helping out



Hi Pat
Yes I have an address for a charity who pass on insulin and stuff. i will
find it out for you (we are just going out the door ) Email it you later
Kayleigh Grace
----- Original Message ----- 
From: "ip-uk-digest" <email @ redacted>
To: <email @ redacted>
Sent: Saturday, October 11, 2003 11:27 PM
Subject: ip-uk-digest V2 #522


> Insulin Pumpers is made possible by your tax deductible contributions.
> Your donation of $10, $25, or more... just $1 or $2 per month is
> needed so that Insulin Pumpers can continue to serve you and the rest
> of the diabetes community. Please visit:
>
>     http://www.insulin-pumpers.org/donate.shtml
>
> Your annual contribution will eliminate this header from your IP mail
>
>
> ip-uk-digest        Saturday, October 11 2003        Volume 02 : Number
522
>
>
>
> PLEASE edit the subject line of your reply messages.
> ####################################################
> This issue of the digest contains:
> Re: [IPk] Stress and Blood Sugars
> Re: [IPk] Pump latest and thankyou
> Re: [IPk] Stress and Blood Sugars
> [IPk] Helping out
> Re: [IPk] Re: ip-uk-digest V2 #495
> Re: [IPk] Pump latest and thankyou
> Re: [IPk] Helping out
> [IPk] Re: ip-uk-digest V2 #521 Pump supplies minimed
> Re: [IPk] Pump latest and thankyou
> [IPk] DUK support weekend and insulin pumps
>
> ----------------------------------------------------------------------
>
> Date: Fri, 10 Oct 2003 22:23:31 +0100
> From: "dave.sayer20" <email @ redacted>
> Subject: Re: [IPk] Stress and Blood Sugars
>
> Hi Julian,
>        personally I find that stress levels have a real adverse affect on
my
> BG's I suffer from very severe depression and the state of my mind can
> really reflect my control, I cannot give you an answer as to why but only
> sympathise with you as I know exactly what your going through.
>
> Dave
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
>
> ------------------------------
>
> Date: Fri, 10 Oct 2003 22:27:11 +0100
> From: "Graham Ford" <email @ redacted>
> Subject: Re: [IPk] Pump latest and thankyou
>
> Hi Barbara,
>
> When I was reading about pumps I was amazed that very few people on pumps
or
> who had used them had anything negative to say about them. When someone
went
> so far as to write that they hadn't realised they had felt unwell every
day
> since before they were diagnosed with diabetes, until they went on a pump
> and actually felt normal, I started taking comments with a pinch of salt,
to
> be honest (sorry, pumpers!). But I have found everything that people say
> about the pros of pumping to be correct.
>
> I tried lantus and it didn't work for me, so I went on to a pump 9 weeks
> ago. The huge difference I discovered (from the next morning) was that I
> slept better (more soundly), awoke feeling more rested and, in general,
felt
> much, much better.
>
> At work I find my concentration is far better and that I can concentrate
> longer. And I don't begin to tire in the early afternoon. I have reduced
the
> amount of insulin I require by over 35%. Other people have also commented
> that I look better and appear to them to be more relaxed.
>
> It is a personal issue, as many people rightly say. But no-one is taking
my
> pump away from me!
>
> Graham
>
> - ----- Original Message ----- 
> From: <email @ redacted>
> To: <email @ redacted>
> Sent: Thursday, October 09, 2003 11:20 PM
> Subject: Re: [IPk] Pump latest and thankyou
>
>
> > Insulin Pumpers is made possible by your tax deductible contributions.
> > Your donation of $10, $25, or more... just $1 or $2 per month is
> > needed so that Insulin Pumpers can continue to serve you and the rest
> > of the diabetes community. Please visit:
> >
> >     http://www.insulin-pumpers.org/donate.shtml
> >
> > Your annual contribution will eliminate this header from your IP mail
> >
> > In a message dated 09/10/2003 23:14:13 GMT Daylight Time,
> > email @ redacted writes:
> >
> > > Deltec (who are owned by Smiths plc - a UK company) are launching the
> Cozmo
> > > over here in the UK from early next year
> > >
> > > Adrian
> > > Type 1 for 20 years Using Lantus/Novorapid - hoping for a pump!
> > >
> >
> > Hello Adrian
> >
> > That's good news that one of the newest pumps from the USA is about to
> come
> > to us.  Why is it that you would prefer a pump when you are using Lantus
> and
> >  Novorapid? I am a beginner on Lantus/Novorapid and I am finding it good
> for my
> > lifestyle because I can eat when I want instead of feeding the insulin
> that is
> > hanging around from my two insulins injected in the morning.  My
daughter
> has
> > a pump and it suits all of us very well but I don't think I would like
one
> > myself because my current regime is great.
> >
> > Barbara
> > Type 1 for 30 years (injected with syringe and 2 bottles twice daily
until
> > the other day when I was given Lantus/Novorapid with pens which don't
> hurt)
> > Mum of Danielle, aged 9, pumping since Nov 2002
> > ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
>
> ------------------------------
>
> Date: Fri, 10 Oct 2003 22:49:31 +0100
> From: "Graham Ford" <email @ redacted>
> Subject: Re: [IPk] Stress and Blood Sugars
>
> Hi Julian,
>
> I find stress does affect my BG levels, but it is consistent in that it
puts
> them up.
>
> A lot of my work involves playing quite an active role in meetings and
> giving presentations at meetings. Until I started testing regularly I
didn't
> realise how much my BG levels increased. (Like many contributors to this
> site I used to be one of those who did what I was told by my Diabetes
> Clinic; 2 tests a day (breakfast/dinner or lunch/bedtime) and make sure
your
> HbA1c is reasonable). When I was considering a pump I knew I would have to
> increase the number of BG tests I performed if I went on a pump, so I
> started testing up to 10 times a day. All of a sudden I discovered that I
> didn't have the good control I thought I had, and I discovered what an
HbA1c
> test really is - an average, no better.
>
> Although I've only been on a pump for 9 weeks, I've got to the point where
I
> can roughly predict what % basal increase I need for a given
> meeting/presentation (I have a Disetronic pump). I test about 1 hour
before,
> programme the increase, and carry on testing every hour, as far as
possible.
> If the meeting/presentation becomes more stressful I'll re-programme the
> basal increase, but be careful about regular testing. Most of the time I
can
> come out of a meeting/presentation with a BG of around 7-8. I'm not sure
if
> I want to do better, because if I'm coming out with a BG of about 6 it's
not
> leaving too much room for error.
>
> I hope this has been a help to you. As others on the site say - YMMV!
>
>
> Graham
>
>
>
> - ----- Original Message ----- 
> From: <email @ redacted>
> To: <email @ redacted>
> Sent: Friday, October 10, 2003 11:24 AM
> Subject: [IPk] Stress and Blood Sugars
>
>
> > Insulin Pumpers is made possible by your tax deductible contributions.
> > Your donation of $10, $25, or more... just $1 or $2 per month is
> > needed so that Insulin Pumpers can continue to serve you and the rest
> > of the diabetes community. Please visit:
> >
> >     http://www.insulin-pumpers.org/donate.shtml
> >
> > Your annual contribution will eliminate this header from your IP mail
> >
> >  Does anyone know if Stress adversely affects blood sugars in such a way
> that
> > they become a little unpredictable? For the past few days my BMs have
> ranged
> > between 3 and 18. and there is no pattern to it. My normal range is
> between 4
> > and 9.
> >
> >  If stress does cause this then it should clear very soon. I just hope
she
> says
> > yes tonight when we go to out to dinner :). If it isn't stress that
causes
> such
> > fluctuations, can anyone advise me as to what it may be.
> >
> > Julian
> > ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
>
> ------------------------------
>
> Date: Sat, 11 Oct 2003 08:48:26 +0100
> From: Pat Reynolds <email @ redacted>
> Subject: [IPk] Helping out
>
> Dear Everyone,
>
> Someone in the US has asked me if I know any charitable organization
> that distributes diabetes supplies (insulin, syringes, etc.) to those
> who are unable to purchase them / living in countries where they are not
> provided by the state.  I  have a vague memory that there was a doctor
> in Australia who was stockpiling supplies for disaster response - but of
> course can't find anything - any ideas, anyone?
>
> While I am writing about passing on unwanted stuff: does anyone want a
> quickserter?  I have two (one never out of its box) - let me know off
> list and I will send.
>
> Best wishes to all,
>
> Pat
>
> - -- 
> Pat Reynolds
> email @ redacted
>    "It might look a bit messy now,
>                     but just you come back in 500 years time"
>    (T. Pratchett)
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
>
> ------------------------------
>
> Date: Sat, 11 Oct 2003 09:23:05 +0100
> From: Pat Reynolds <email @ redacted>
> Subject: Re: [IPk] Re: ip-uk-digest V2 #495
>
> Oh dear, just found this little batch of emails from September,
> unopened.
>
> I was at a funding conference yesterday, at which I was told about a new
> lottery stream open to groups supporting mainstream health care
> (friends-of-surgeries were mentioned).  It strikes me that INPUT would
> be well placed to ask for a few salaries to develop the site, act as
> advocates to healthcare so-called professionals, etc.
>
> Best wishes,
>
> Pat
> (dm 30+, 508 2+, in desperate need of a second September)
>
> In message <email @ redacted>, email @ redacted writes
> >In a message dated 9/11/2003 6:53:07 PM GMT Daylight Time,
> >email @ redacted writes:
> >
> >> have a major problem with theses people that are paid a good salary to
> >> look after people with diabetes and still cannot even grasp the basics.
> >> Sometimes I seriously think that part of these salaries should be
diverted
> >> to the patients that have to live with the condition, for all the use
> >> ( not ) that some of these professionals are
> >> >
> >>
> >Hi Abi,
> >
> >Couldn't agree more.
> >
> >I could well be approaching the end of my current career for various
reasons.
> > Anyone want to employ an experienced medic (qualified 20 yrs) with 30+
yrs
> >IDDM and nearly 3 years pumping under her belt (no, I don't PUMP there,
you
> >know what I mean! :-) ), teaching/counselling/advice only?
> >
> >OK, I live in hope...:-)
> >
> >Mary
> >----------------------------------------------------------
> >for HELP or to subscribe/unsubscribe, contact:
> >HELP@insulin-pumpers.org
>
> - -- 
> Pat Reynolds
> email @ redacted
>    "It might look a bit messy now,
>                     but just you come back in 500 years time"
>    (T. Pratchett)
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
>
> ------------------------------
>
> Date: Sat, 11 Oct 2003 10:53:24 +0100
> From: Pat Reynolds <email @ redacted>
> Subject: Re: [IPk] Pump latest and thankyou
>
> Hi Anthony,
>
> If you have the mathematical ability to keep a roof over your head
> (either paying the mortgage or the rent), or a bank account, you have
> the maths needed to do carbohydrate counting.
>
> At this early stage, I wouldn't worry too much about 'unusual
> combinations' (by which I assume you are talking about the balance of
> carbohydrates, fat and protein).
>
> The method is the same whether you are eating 'usual' meals (e.g. pasta,
> pasta sauce, an apple) or 'unusual' meals (I am trying to guess the most
> unusual thing I can think of - ok, a fried liver and banana sandwich
> with a side helping of sweetcorn and a melted ice-cream sauce).
>
> The method is just: add up everything you have on your plate.  It's
> easier to do this before or as you cook than when it has hit the plate.
> So for the 'normal' meal:  weigh the pasta before cooking, for example.
> Providing you eat it all (and, if you are cooking for more than one, you
> all eat the same proportion of the common dish), you don't need to weigh
> afterwards.  Once you have your 'eye in' for pasta, you won't even have
> to weigh it out before cooking.
>
> Or do you mean 'unusual foods'?  The lists of carbohydrate values tend
> to be stuck in the 1950s.  The best I've found is the Collins GEM
> calorie counter - but even this falls down on the kind of things which
> are not unusual at a British supermarket (no CHO values for haloumi, but
> it does have okra).  For dishes such as rice and peas, home-made panna
> cotta, etc., you simply count up everything that goes into the dish, and
> that gives you the total for the dish.  You can then measure it out by
> spoonfuls, and that will give you how much CHO you have per spoon.
> Providing you always cook using the same proportions of ingredients (and
> always use the same spoon), you only have to do this counting once.
>
> If you 'cannot face' carbohydrate counting for a meal, this is the time
> to give in and eat things that come in packets and tins from
> supermarkets. (I live on such things anyway, but dieticians tend to
> freak about salt contents, etc.) If canned soup, ready-to-eat-from-the-
> packet dinners and pots of yoghourt are not your idea of an evening off,
> you can 'cook properly' with only one source of carbohydrate in the meal
> (e.g. pasta or bread) and choose cho-free for the rest (e.g. meats,
> salad, cheese, leafy green vegetables, etc.).  I am always amazed now
> when I have a meal with virtually no carbohydrate in it, but the pump
> has made that possible.
>
> You are allowed to use a calculator, pen and paper, your fingers, and
> phone a friend to do the maths!
>
> Best wishes,
>
> Pat
> (dm 30+, 508 2+, was in the 'restricted grade CSE class' for maths at
> school - but that was because I had been hypo during the test that
> allocated us to sets - I did eventually get O-level maths)
> - -- 
> Pat Reynolds
> email @ redacted
>    "It might look a bit messy now,
>                     but just you come back in 500 years time"
>    (T. Pratchett)
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
>
> ------------------------------
>
> Date: Sat, 11 Oct 2003 21:08:21 +1000
> From: Tori <email @ redacted>
> Subject: Re: [IPk] Helping out
>
> Hi Pat
>
> I think you are thinking of "Insulin for Life", which apparently is two
> organisations - one of which is over here in Oz and the other of which is
> in the US. The websites are http://www.users.bigpond.com/ronraab/ and
> http://www.insulinforlife.org/ (first one Australian, second in
> California). Hope that helps!
>
> Tori
> (PS. Don't s'pose you want to send that Quickserter to Oz do you??)
>
> At 05:48 PM 11/10/2003, you wrote:
> >Dear Everyone,
> >
> >Someone in the US has asked me if I know any charitable organization
> >that distributes diabetes supplies (insulin, syringes, etc.) to those
> >who are unable to purchase them / living in countries where they are not
> >provided by the state.  I  have a vague memory that there was a doctor
> >in Australia who was stockpiling supplies for disaster response - but of
> >course can't find anything - any ideas, anyone?
> >
> >While I am writing about passing on unwanted stuff: does anyone want a
> >quickserter?  I have two (one never out of its box) - let me know off
> >list and I will send.
> >
> >Best wishes to all,
> >
> >Pat
> >
> >--
> >Pat Reynolds
> >email @ redacted
> >    "It might look a bit messy now,
> >                     but just you come back in 500 years time"
> >    (T. Pratchett)
>
> http://www.hypostasis.info
> Peer support for Type 1 diabetics, friends, family and others
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
>
> ------------------------------
>
> Date: Sat, 11 Oct 2003 15:27:16 +0100
> From: "fiona.stoate" <email @ redacted>
> Subject: [IPk] Re: ip-uk-digest V2 #521 Pump supplies minimed
>
> Hi Pat
>
> The Paradigm allows you to set X3 different basal programmes and then you
> can change basal programme up or down by 0.1u/hr as temporary basal over
> anything from 1/2 hour to 24 hours.  I find my basal needs change all the
> time.  I have got a set programme for days and then for night shifts.
> however, I exercise at different times on different days, sometimes work
is
> very quiet and sometimes extremely stressful.  My normal basal varies from
> 0.2u/hour when asleep  increasing to 0.6u/hr until about 10am then 0.3 -
0.5
> during the rest of the day.  However, I just set a temp basal dependign on
> bg,  activity etc. if current one too high or low for circumstances of the
> moment.  It all seems to work as I have lowest ever HBA1c 5.5% without
> frequent hypos which I had on injections and had to constantly snack at
> times.
>
> Silhouettes, I've got used to the longer needle and get on well with them.
> I'll keep a look out in case I pull it out.  Sometimes I have it on the
top
> of my bum and it can get knocked about carrying bags on my shoulder but
I've
> been lucky so far.  Quick sets kept giving me no delivery alarms like
others
> on this list.
>
> Cheers
>
> Fiona
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
>
> ------------------------------
>
> Date: Sat, 11 Oct 2003 17:06:34 EDT
> From: email @ redacted
> Subject: Re: [IPk] Pump latest and thankyou
>
> Hiya Graham
>
> I'm really glad about what you have said about the pump.  I use Lantus and
> Novorapid at the moment but I bought a pump for my daughter, and like you,
she
> has gained so much from it.  She told me in the first couple of days that
she
> didn't feel diabetic anymore and that meant the world to me.
>
> You're also right about the concentration side of things too because my
>  daughter does better at school now because she is not high all the time.
With
> my
> daughter, it was either too high which resulted in so many problems
associated
> with being high like bed wetting because she drank loads or too low which
>  ended in the horrible fits and seizures during the night and sliding down
the
> wall
> onto the floor in the day.
>
> Touch wood!  She has not had a fit since she has been on the pump.
>
> Bye for now.
>
> Barbara
> Type 1 for 30 years (Lantus/Novorapid)
> Mum to Danielle aged 9, pumping since Nov 2002
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
>
> ------------------------------
>
> Date: Sat, 11 Oct 2003 23:27:26 +0100
> From: "Jackie Jacombs" <email @ redacted>
> Subject: [IPk] DUK support weekend and insulin pumps
>
>  Just thought that I would say that we attended a DUK family support
weekend
> last week and we did get to
>  meet and talk to a pump user. It wasn't a scheduled talk. We had a doctor
> called Hugh Davis give a talk
>  entitled "What does the future hold" there were a few other doctors that
turned
> up during the weekend, to
>  observe I think, they weren't listed as helpers. Anyway on the last day a
young
> woman called Rachel
>  turned up and as she was the only pumper there (as far as I know) Dr Hugh
> Davis, who admitted that he
>  didn't realy have extensive knowledge about pumps) asked her to come and
talk
> about it. She was also a
>  doctor and had had diabetes since she was a child. She eventually moved
on to a
> pump when it was
>  suggested by her diabetes team, as she was having problems getting good
control
> working shifts as an
>  SHO. She was a lovely, bouncy, outgoing, person and gave a very good talk
about
> the pros and cons of
> pumping.  There were a lot of people interested in what she said.
>
>  Just thought I'd tell people, as I know there was dismay at the lack of
> discussions about pumps at other
> DUK family weekends from parents who attended other venues last year.
>
> Jackie Jacombs
> email @ redacted
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
>
> ------------------------------
>
> End of ip-uk-digest V2 #522
> ***************************
----------------------------------------------------------
for HELP or to subscribe/unsubscribe, contact:
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