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Re: [IPk] re Rhoda, funding at last, and hospitals
Apologies for delay in replying. Throbbing right hand is putting me off trying to type and
one handed is something I need to practice <g>
> Are you saying that consultant witnessing first hand how difficult control has
> been while in hospital, helped with funding.
No I was in a different hospital. Rushed to other hospital by paramedics. Not sure whether
consultant checked with other hospital or not or just accepted my word. He's known me for
years and tolerated by research, presentation of charts of control records etc so maybe
decided I was telling it how it was. Believe me I was!
Or that poor general health was
> believed to be due to poor DM control?
No. DM control during a lot of hospitalisations were good. However BP problems only
started after switching to insulin. Massive oedema also set in at same point and increases
according to increases in insulin doses. He's seen that over the years too.
> Whichever, congratulations.
> It's wonderful news and no one deserves it more!!
Not sure about that but I am going to give it my best shot and hopefully if the DM base is
improved, other conditions will too.
> I'm a bit cynical about medics really believing how many hypos and hypers
> patients endure and how lousy they feel and I can imagine that seeing someone
> really struggle while under direct observation in hospital may provide
> ammunition for funding
Interestingly the docs in the hospital I was in, were amazed at the intensive MDI regime I
was on. At that time 5-6 injections a day. Anything over 2 or 3 seemed to be an object of
Thankfully DM specialist nurse was supportive and helpful and confirmed some of the
horror stuff I'd seen. The DM specialist team have an uphill struggle dealing with colleagues
- medical and nursing.
> What was with the hypo situation. Were you strictly NBM or were you able to
> eat, on your normal regimen and just having an unfortunate time with the long
Unable to eat onmy normal regime. When NBM obviously my insulin requirements dropped
dramatically but as soon as the lightest food was given, my insulin requirements shot up.
I eat low carb or as many docs prefer to hear it, "counting carbs"! I hospital this was
impossible. A low carb breakfast option would have been tea or coffee or water. Everything
else was high carb - simple or complex.
Other meals were slightly better. Their salads used to be good but tastless lettuce tomato
and cucumber with a wee bit of cress and chicken portion not fully defrosted so you could
squeeze the water out of it - was dire. Cheese option consisted of 2 or 3 mini portions of
sweaty cheese in sealed plastic.
Given the number of infections I had, control was not the easiest thing to do. However I did
drink litres and litres of water daily.
Was there any problems in keeping your own hypo fix handy?.
No but on that one occasion they didn't work. Glucose tabs were coming out of my ears and
hypo continued unabated.
> the nurses helpful?
Panicking staff nurse on duty - lovely lass but for some reason terrified. I had sandwiches,
biscuits and milk thrown at me but still the hypo continued. I was calming her while
sweating, shaking and wanting to vomit!
> I remember you having difficulty with one particular nurse in previous mail
Yep, he should have a warning sign attached to him!
> I understand that self medicating in hospitals is becoming more accepted . I
> wonder how this relates to insulin in experienced patients with DM.
I had no problems with this other than that one nurse. In fact the nurses - on the whole
were relieved that I was self-medicating.
> be wonderful if there comes a day where all DMers who are competant at
> managing their disease keep all meds ( whether twice daily premix, MDI or pump
> ) and are allowed to administer it themselves according to their own BG
> readings and usual management.
This is what happens with me. I make it clear that I will be doing this at the outset and if
need be ask to see the DM specialist nurse to confirm this. Has worked all the time. Of
course in Intensive Care I was more than happy for the staff to take care of it for me. <g>
I'll answer more on other points raised by you, Abigail. But I'll put it in another post. This
one is more than long enough already.
P.S. Just had phone call from Jill Jones nurse trainer re pump. I meet with her on 29th
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