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[IPk] Re: ip-uk-digest V2 #226



To Duncan Barnes

Duncan

I can confirm that the emergency phone was on all weekend as per usual
(because I hold it) - if for whatever reasonyou cannot get through to me the
three other trainers numbers are left on the voicemail.  This system does
rely on the mobile phone system working and there being a suitable
transmitter in your area.  It looks to me that you had problems with the
mobile phone sytem

On these sorts of excursions it is a good idea to think ahead and prearrange
a spare pump via the Disetronic office.  In addition you should always carry
an insulin pen sysytem as an emergency back up.

Best wishes

John H
----- Original Message -----
From: "ip-uk-digest" <email @ redacted>
To: <email @ redacted>
Sent: Monday, October 07, 2002 2:32 PM
Subject: ip-uk-digest V2 #226


> Insulin Pumpers is made possible by contributions from forum
> members and supporters in industry.  Your tax deductible donation
> of $1.00 or $2.00 per month is needed so that Insulin Pumpers can
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>
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>
> Your annual contribution will eliminate this header from your IP mail
>
>
> ip-uk-digest          Monday, October 7 2002          Volume 02 : Number
226
>
>
>
> PLEASE edit the subject line of your reply messages.
> ####################################################
> This issue of the digest contains:
> RE: [IPk] Disetronic D-Tron problems
> RE:RE: [IPk] Disetronic D-Tron problems
> [IPk] Fw: news of John?
> RE: RE: [IPk] Disetronic D-Tron problems
> [IPk] Bent cannulas
> Re: [IPk] Bent cannulas
> Re: [IPk] John Neale
> RE: RE: [IPk] Disetronic D-Tron problems
> [IPk] Bent cannulas
> [IPk] Charlie Dalton
>
> ----------------------------------------------------------------------
>
> Date: Sun, 6 Oct 2002 20:03:59 +0100
> From: "Jackie Jacombs" <email @ redacted>
> Subject: RE: [IPk] Disetronic D-Tron problems
>
> Good grief Duncan
>
>
> How ever did they did they finally get a message from you?? Telepathy?
That
> sounds excellent service if you got a pump in the end.  By the way when
you
> get sent another pump do they pick up the faulty one and then mend it and
> swap over again or what?
>
> I just have this bizarre picture of you in the middle of a deserted
> Dartmoor, apart from a few sheep or ponies  then someone running up
> carrying a pump!
>
> Jackie
> Mum of Sasha non pumper so don't know about these things
>
> > -----Original Message-----
> > From: email @ redacted [mailto:email @ redacted]On
> > Behalf Of Duncan Barnes
> > Sent: 06 October 2002 18:49
> > To: Insulin Pumpers UK
> > Subject: [IPk] Disetronic D-Tron problems
> >
> >
> >
> > Has anybody else had problems contacting Disetronic? This weekend when
my
> > pump went wrong with an E7 error, I couldn't contact them on the normal
> > office number or on the Emergency contact number. Although in the
> > end a new
> > pump found its way to me I never actually spoke to anybody from
Disetronic
> > during the entire process and still haven't. Although to be fair to them
I
> > was on Dartmoor so reception was bad but the emergency contact
> > number still
> > should have worked.
> >
> > Duncan
> > -------------------
> > email @ redacted
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
> ------------------------------
>
> Date: Sun, 6 Oct 2002 20:59:57 +0100
> From: "Duncan Barnes" <email @ redacted>
> Subject: RE:RE: [IPk] Disetronic D-Tron problems
>
> >Good grief Duncan
> >
> >How ever did they did they finally get a message from >you?? Telepathy?
> That sounds excellent service if you >got a pump in the end.  By the way
> when you get sent >another pump do they pick up the faulty one and then
> >mend it and swap over again or what?
> >
> >I just have this bizarre picture of you in the middle of a >deserted
> Dartmoor, apart from a few sheep or ponies  >then someone running up
> carrying a pump!
> >
> >Jackie
> >Mum of Sasha non pumper so don't know about these >things
>
> I left a message on their answerphone in the end, luckily that was the
only
> night I wasn't camping instead staying in an expedition centre. They
didn't
> deliver it though and I still have the old pump as well as I arranged for
> somebody else to bring it down as I wasn't sure of their arrangements.
> Having not been on the pump for that long it was rather different having
no
> insulin at all carrying me over like with shots.
>
> Duncan
> - ---------------------------
> email @ redacted
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
> ------------------------------
>
> Date: Sun, 6 Oct 2002 22:09:39 +0100
> From: "Diana Maynard" <email @ redacted>
> Subject: [IPk] Fw: news of John?
>
> Hi folks
> More news of John from his wife....
> Di
>
> > >Everthing is going well, John's tunour has been graded a 2, which means
> it
> > >is mostly benign. He has an X-ray in 3 months to decide if they need to
> do
> > >chemotherapy.
> > >He is now on holiday, courtesy of the German Health System, in a Rehab
> > >Klinik in a town near Freiburg.  He is much stronger and livlier,
getting
> > >better every day.
> > >
> > >Please send my thanks to everyone on the IP List for their support and
> > >tell them how he is doing.
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
> ------------------------------
>
> Date: Sun, 6 Oct 2002 22:10:08 +0100
> From: "Jackie Jacombs" <email @ redacted>
> Subject: RE: RE: [IPk] Disetronic D-Tron problems
>
> Well I am glad to hear that all worked out in the end.
>
>
> Jackie
>
> > I left a message on their answerphone in the end, luckily that
> > was the only
> > night I wasn't camping instead staying in an expedition centre.
> > They didn't
> > deliver it though and I still have the old pump as well as I arranged
for
> > somebody else to bring it down as I wasn't sure of their arrangements.
> > Having not been on the pump for that long it was rather different
> > having no
> > insulin at all carrying me over like with shots.
> >
> > Duncan
> > ---------------------------
> > email @ redacted
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
> ------------------------------
>
> Date: Mon, 07 Oct 2002 08:26:53 +0100
> From: "Smith, Beverley" <email @ redacted>
> Subject: [IPk] Bent cannulas
>
> Hi
>
> I know there has been a great deal of correspondance on this
> site regarding different infusion sets and bent canulas but I
> experienced my first incident of it this weekend.  I use
> Quick-sets and changed the infusion on Saturday evening with
> no problems.  Blood sugar before bed was 6.1 and Sunday
> morning blood sugar was 4.9.  I began to feel a little unwell
> before lunch and suspected my blod sugars were raised, as I
> had guests I didn't actually get around to testing again at
> 2:30 pm (stupid I iknow!!) to find that it was off the scale
> (as I have previously recorded 26 I think it was probably
> above 30!!).  I gave insulin manually and changed the
> infusion later.  To my surprise I found that the canula was
> bent over at 90 degrees.  My question is - why did it work
> normally all night only to fail in the morning?  As the
> canula was at 90 deg shouldn't the meter have bleeped at me
> that the tubing was blocked?  Anyway blood sugars were back
> to normal by 6 pm and have remained normal since.
>
> Bev
>
>
>
> ________________________________________________________________________
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> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
> ------------------------------
>
> Date: Mon, 7 Oct 2002 09:24:35 +0100
> From: Pat Reynolds <email @ redacted>
> Subject: Re: [IPk] Bent cannulas
>
> In message <email @ redacted>,
> Smith, Beverley <email @ redacted> writes
> >My question is - why did it work
> >normally all night only to fail in the morning?  As the
> >canula was at 90 deg shouldn't the meter have bleeped at me
> >that the tubing was blocked?  Anyway blood sugars were back
> >to normal by 6 pm and have remained normal since.
>
> I have had a fair number of bent cannulas - once with a soft set
> inserted with the whanger, had with about half the hand-inserted soft-
> sets, and with every whanger inserted quickset.  I've observed just the
> pattern you describe.
>
> Sometimes they alarm, sometimes they don't.  They often alarm halfway
> through a bolus.
>
> Bent cannulas seem able to cope with a low-level seep of basal, but not
> with a high level basal, nor with a bolus (i.e. anything above 0.5 or
> 0.6 an hour, it doesn't deliver, but doesn't back up enough to sound an
> alarm until more than a unit or so is being delivered at once - and then
> not always).
>
> I've come to realise that the 'no delivery' alarm on the pump is not to
> be relied upon, and that with a faulty insertion, bgs can climb much
> higher than you'ld expect, given the small amount of insulin that is
> lacking.
>
> Best wishes,
>
> Pat
> (dm 30+, 508 1+, hoping that York Uni's website is back up before I go
> to the eye clinic, I've got some library books to renew ....)
> - --
> Pat Reynolds
> email @ redacted
>    "It might look a bit messy now, but just you come back in 500 years
time"
>    (T. Pratchett)
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
> ------------------------------
>
> Date: Mon, 7 Oct 2002 09:31:57 +0100
> From: Diana Maynard <email @ redacted>
> Subject: Re: [IPk] John Neale
>
> > > That's assuming that he does not try to "adjust" his intravenous
insulin
> > > drip again. The last time he did it, they caught him and punished him
by
> > > putting him back on injections! Those Germans!
> > >
> > > Before you ask, the hospital would not let John wear his pump, they
would
> > > not take the responsibility. Bearing in mind his condition when he was
> > > admitted, they were probably right.
>
> Just before John went into hospital, his wife rang me to ask what to do
about
> the pump when he went in. After establishing that the hospital in question
> knew very little about pumps, I suggested that the best thing was to have
the
> pump disconnected and for John to be put onto intravenous insulin instead.
> Since John was not very compos mentis and certainly wouldn't be if he had
to
> have surgery, I figured this was the best option since I wouldn't want
> someone who wasn't familiar with pumps looking after me and my pump!
> I know how frustrating it is not to be in control of your own insulin
(I've
> been in hospital many a time with intravenous insulin) but it's definitely
> safer than having someone who doesn't know what they're doing playing with
> your pump!
> Di
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
> ------------------------------
>
> Date: Mon, 7 Oct 2002 09:51:31 +0100
> From: "Disetronic Info" <email @ redacted>
> Subject: RE: RE: [IPk] Disetronic D-Tron problems
>
> Dear Duncan
>
> I was glad to hear that your new D-TRON finally found you.  The difficulty
I
> was experiencing from this end was that every time I picked up a message
> from you on my voicemail and tried to call you back, your mobile was going
> straight to divert and I was then having to leave you a message in return,
> presumably because you were in the middle of Dartmoor and didn't have a
> signal.  The other issue was that I had no idea where you were to post you
> anything.
>
> As you'll be aware I eventually spoke to your father quite late in the day
> on Friday and we sorted it out that way.
> If you are ever going out into the wilds of Dartmoor again for D of E,
then
> give me a call, we are always happy to loan back up pumps.
>
> I really do hope the whole experience wasn't too stressful for you and am
> just glad that we were able to help in the end.
>
> Best wishes
>
> Estelle
> - -----Original Message-----
> From: email @ redacted [mailto:email @ redacted]On
> Behalf Of Duncan Barnes
> Sent: 06 October 2002 21:00
> To: email @ redacted
> Subject: RE:RE: [IPk] Disetronic D-Tron problems
>
>
> Insulin Pumpers is made possible by contributions from forum
> members and supporters in industry.  Your tax deductible donation
> of $1.00 or $2.00 per month is needed so that Insulin Pumpers can
> continue to serve you and diabetes community. Please visit:
>
>     http://www.insulin-pumpers.org/donate.shtml
>
> Your annual contribution will eliminate this header from your IP mail
>
> >Good grief Duncan
> >
> >How ever did they did they finally get a message from >you?? Telepathy?
> That sounds excellent service if you >got a pump in the end.  By the way
> when you get sent >another pump do they pick up the faulty one and then
> >mend it and swap over again or what?
> >
> >I just have this bizarre picture of you in the middle of a >deserted
> Dartmoor, apart from a few sheep or ponies  >then someone running up
> carrying a pump!
> >
> >Jackie
> >Mum of Sasha non pumper so don't know about these >things
>
> I left a message on their answerphone in the end, luckily that was the
only
> night I wasn't camping instead staying in an expedition centre. They
didn't
> deliver it though and I still have the old pump as well as I arranged for
> somebody else to bring it down as I wasn't sure of their arrangements.
> Having not been on the pump for that long it was rather different having
no
> insulin at all carrying me over like with shots.
>
> Duncan
> - ---------------------------
> email @ redacted
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
> ------------------------------
>
> Date: Mon, 7 Oct 2002 15:00:26 EDT
> From: email @ redacted
> Subject: [IPk] Bent cannulas
>
> Hi Bev,
>
> During the first few months of pumping I had real problems with bent
cannulas
> and control in general.  It was very frustrating at the time, I was almost
> dissuaded from pumping.  The following are my observations, hope they
might
> be of some help.
>
> With the normal-sized sof-sets, I found that about 50% of cannulas bent,
> usually at 90 degrees at halfway down the cannula.  I changed to the
"Micro"
> version, supposed to be for children and skinny adults (I'm not skinny,
but
> I'm fairly muscular) and practically overnight things changed - better
> control, far fewer bent cannulas.  Cannulas can bend particularly if
you're
> not relaxed when you insert (I think this was the problem for some of the
> children on this list), or if you don't hold the "whanger" firmly enough
> against the skin (with these, you tend to get the 90 degree bend in the
> cannula at the top of the set - as opposed to the end inside you), and
> insertion often hurts.  It can also happen if you use a set with a cannula
> which isn't the right length for you (you're an athlete, perhaps the Micro
> type might be useful? - AMT let me try some out first, don't know if
> Medtronic will let you do that, I could send you a few to trial if you're
> interested).
>
> But I am also interested that you changed your set the evening before and
had
> a normal BG next morning.  That implies that your set was working during
the
> night.  Don't discount the possibility that the cannula became dislodged
and
> bent early that morning, especially as you had visitors and perhaps were
> doing more than or different from what you'd usually do.  This has
happened
> to me before, and I've told the story of how, when helping a friend move
> house and doing some lifting I felt a sharp twang and yes, that was the
> cannula bending.  My bgs had been fine the previous day and that morning,
but
> were in the 20s when I got home and the cannula was bent at 90 deg.  Have
> also had this occasionally after restless sleep at night, particularly
when
> on holiday in an unfamiliar bed.
>
> Like Pat, I've found that an alarm often doesn't sound when there's no
> delivery from a bent cannula.  In my case the limit seems to be 2 units
> delivery (as a bolus, not cumulative) so as my max basal is 0.9 units and
I
> seldom bolus more than 1.5 units, this can be a problem.  I have
deliberately
> bolused more than 2 units when I really think there's a problem, and the
> alarm does work then - at the 2 unit mark.  However, be aware that if the
> cannula has actually popped out of your skin and is lying under the
dressing
> (has happened to me several times during physical exercise) then it can
> merrily pump away useless insulin without any alarm, whatever the dose,
and
> surprisingly it can be a while before this is spotted.
>
> Best wishes,
>
> Mary
> IDDM 30+, 508 23 m
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
> ------------------------------
>
> Date: Mon, 7 Oct 2002 22:32:35 +0100
> From: "Barbara Dalton" <email @ redacted>
> Subject: [IPk] Charlie Dalton
>
> > Special thanks to Andrew and Caroline who have offered to meet up to
chat
> > about their different pump experiences. I still want to do this, so does
> my
> > husband, but things seem to be happening apace and events have rather
> > overtaken us. We have a meeting at Kings tomorrow with consultant, pump
> > nurse, Charlie's school nurses and it looks as although, if Charlie
wants
> > to, he can pump really soon. I had rather thought we had months to think
> > about the whole thing - not that I am complaining.
> >
> > I have learnt so much from this site, not just about pumping but a bit
> more
> > about what it must be like to be diabetic. Even as a  mother, you never
> > really know. As I have said previously, despite a very carefully
> controlled
> > diet, different insulins etc Charlie's average BM is between 18 and 30
> most
> > days but about 3 or 4 most mornings. Why is it that he does not feel
> unwell
> > with such high sugar? As a school teacher I remember diabetic children
> > feeling as bad with high sugar as low. Mind you, Charlie has no symptoms
> > before he crashes out either!
> >
> > Barbara
> >
> >
> > ----- Original Message -----
> > From: "Andrew Dysch" <email @ redacted>
> > To: "'Barbara Dalton'" <email @ redacted>
> > Sent: Sunday, September 29, 2002 10:52 AM
> > Subject: RE: [IPk] Charlie Dalton
> >
> >
> > > PS: If you haven't seen it already, have a look at
> > >
> > > www.insulin-pumpers.org.uk/11months
> > >
> > > Andrew
> > >
> > > -----Original Message-----
> > > From: Barbara Dalton [mailto:email @ redacted]
> > > Sent: 28 September 2002 04:23
> > > To: email @ redacted
> > > Subject: Re: [IPk] Charlie Dalton
> > >
> > > Dear Andrew
> > >
> > > My husband and I would be very interested to meet you to discuss your
> > > son's
> > > pump
> > > experiences. We come up to Lonodn fairly regularly
> > > to hear Charlie sing at 5pm so could meet after 6pm - or if that's too
> > > late
> > > we could skip the music and see him after. We are vey lucky that his
> > > school
> > > have an open access policy so that we can see him every day. Let me
know
> > > what would be convenient.
> > > Thanks
> > >
> > > Barbara
> > > ----- Original Message -----
> > > From: "Andrew Dysch" <email @ redacted>
> > > To: <email @ redacted>
> > > Sent: Thursday, September 26, 2002 6:30 PM
> > > Subject: Re: [IPk] Charlie Dalton
> > >
> > >
> > > Barbara,
> > >
> > > I work in The City (very close to Liverpool St. Station).  If you were
> > > able
> > > to get here, I'm happy to meet you to talk to you about our experience
> > > with
> > > Sam's pump over the last year or so.
> > >
> > > Best wishes.
> > >
> > > Andrew
> > >
> > >
> > > Barbara Dalton wrote on 25/9/02 22:16:
> > >
> > > Is there a local group (London South) which my husband and I could
join
> > > so
> > > that we could meet with someone on a pump? He is disabled and a bit
> > > worried
> > > about Charlie going on a pump.
> - ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
> help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
> ------------------------------
>
> End of ip-uk-digest V2 #226
> ***************************
----------------------------------------------------------
for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml