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[IPk] Re: ip-uk-digest V2 #546



Hi Louise

Another question - it seems from the info from Medtronic that even if I pay
>privately I still have to get my doctor's approval.  Is this correct?

Yes.    I went to a private consultant because the NHS one was unhelpful.  I 
checked first that the private one was a pump specialist.  Then I had no 
trouble but extra expence!  I had my training at the private hospital and 
their nurse in attendance who had to be paid.

All the best

Heather (diabetes 13 years, pump 1 year)
>

>From: email @ redacted (ip-uk-digest)
>Reply-To: email @ redacted
>To: email @ redacted
>Subject: ip-uk-digest V2 #546
>Date: Thu, 6 Nov 2003 06:24:03 -0800
>
>Insulin Pumpers is made possible by your tax deductible contributions.
>Your donation of $10, $25, or more... just $1 or $2 per month is
>needed so that Insulin Pumpers can continue to serve you and the rest
>of the diabetes community. Please visit:
>
>     http://www.insulin-pumpers.org/donate.shtml
>
>Your annual contribution will eliminate this header from your IP mail
>
>
>ip-uk-digest        Thursday, November 6 2003        Volume 02 : Number 546
>
>
>
>PLEASE edit the subject line of your reply messages.
>####################################################
>This issue of the digest contains:
>[IPk] Digest version?
>Re: [IPk] Digest version?
>[IPk] type1_diabetes Re: Hiya Everyone
>RE: [IPk] Good news and pump day 1!
>Re: [IPk] FAO: JOHN  Red Anyone  Mums willing to help?
>[IPk] Funding - YESSSSSSSSSSSSSSSSSSSS!!!!
>RE: [IPk] Funding - YESSSSSSSSSSSSSSSSSSSS!!!!
>Re: [IPk] lots of questions from a newbie!
>[IPk] sofset insertion
>[IPk] Thanks and lots more questions from a Newbie!
>
>----------------------------------------------------------------------
>
>Date: Wed, 5 Nov 2003 13:01:30 -0000
>From: "trisha hyde" <email @ redacted>
>Subject: [IPk] Digest version?
>
>How do I go about getting the digest version as I don't log on every day 
>and
>am finding it a real struggle to wade through hundreds of messages to make
>sure that I am not missing an important msg from anyone else.
>
>Trisha
>- ----------------------------------------------------------
>for HELP or to subscribe/unsubscribe, contact:
>HELP@insulin-pumpers.org
>
>------------------------------
>
>Date: Wed, 5 Nov 2003 16:09:04 +0000
>From: Diana Maynard <email @ redacted>
>Subject: Re: [IPk] Digest version?
>
>Hi Trisha (and everyone else)
>To change versions you need to send a message to the HELP address that is
>shown at the bottom of every email sent.
>HELP@insulin-pumpers.org
>
>You don't need to do that now as I'll take care of it for you, but for 
>future
>reference, that's the way to proceed.
>Di
>
>On Wednesday 05 Nov 2003 1:01 pm, you wrote:
> > How do I go about getting the digest version as I don't log on every day
> > and am finding it a real struggle to wade through hundreds of messages 
>to
> > make sure that I am not missing an important msg from anyone else.
> >
> > Trisha
> > ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
>- ----------------------------------------------------------
>for HELP or to subscribe/unsubscribe, contact:
>HELP@insulin-pumpers.org
>
>------------------------------
>
>Date: Wed, 5 Nov 2003 11:07:58 -0800
>From: email @ redacted
>Subject: [IPk] type1_diabetes Re: Hiya Everyone
>
>Mary
>
>  I'm getting on extremly well with my pump,i just wish it was offered to 
>me
>years ago :/
>  I can apreciate how your son is feeling about being constantly hooked up 
>to a
>pump, that was one of my main concerns at the beginning but i can honestly 
>say
>that it took about a day to get used to wearing a pump after that i simply
>forgot i was wearing it. I was also concerned about what i'd do with it at 
>night
>because i'm quite a restless sleeper, but i needn't of worried,i clipped it 
>on
>the front of my pj's and again forgot it was there. I was on 5 injections a 
>day,
>now i all i have to do is stick a needle in me once every two to three 
>days, it
>has given me such a sense of freedom, but you have to bear in my that if 
>you go
>on a pump you must still keep you injections handy just in case you have to
>revert back to them.
>  Unfortunatly i don't know any children that are on a pump so i can't 
>speak from
>a childs perspective but if your son is offered a pump then i'd definetly 
>sit
>down with him and talk it through.
>  Have you looked at the Medtronic MiniMed website, maybe if your son took 
>a look
>at it he might find it quite helpful http://www.minimed.com/
>Sorry i don't know the Disetronic website.
>  I wish you and your son the very best of luck and i'll keep you in my 
>thoughts
>too. Sorry if i haven't been that helpful, i'm still very new to pump 
>therapy,
>i'm sure there are more experianced pumpers here that will help you out.
>Samantha.
>- ----------------------------------------------------------
>for HELP or to subscribe/unsubscribe/change list versions,
>contact: HELP@insulin-pumpers.org
>
>------------------------------
>
>Date: Wed, 5 Nov 2003 19:34:01 -0000
>From: "Rhoda Martin" <email @ redacted>
>Subject: RE: [IPk] Good news and pump day 1!
>
>Helen,
>
>Glad you had a good pump-start session.  As Di said, you have a couple
>of days for the residual long acting insulin to work out of your system
>and for your to adjust and settle your basals and boluses.
>
>I started just over a year ago and it has really helped.
>
>Glad too the car was found undamaged.  So sorry about the money from the
>bank.  I know how worrying that can be when on limited income.
>
>First step with your pump is behind you, so here's hoping it is the
>start of a better chapter for you.
>
>All the best
>
>Rhoda
>- ----------------------------------------------------------
>for HELP or to subscribe/unsubscribe/change list versions,
>contact: HELP@insulin-pumpers.org
>
>------------------------------
>
>Date: Wed, 5 Nov 2003 14:47:58 EST
>From: email @ redacted
>Subject: Re: [IPk] FAO: JOHN  Red Anyone  Mums willing to help?
>
>Hi John
>
>Please can you send me the questionaire, id love to help !
>
>Address:
>
>Mrs Jo  Hardy
>Kilnside Cottage
>Newport Road
>BIERLEY
>Whitwell
>Isle of Wight
>PO38 2QW
>- ----------------------------------------------------------
>for HELP or to subscribe/unsubscribe/change list versions,
>contact: HELP@insulin-pumpers.org
>
>------------------------------
>
>Date: Wed, 5 Nov 2003 17:09:07 EST
>From: email @ redacted
>Subject: [IPk] Funding - YESSSSSSSSSSSSSSSSSSSS!!!!
>
>At long, long last, today I received a phone call from my PCT (South and 
>East
>Dorset) to say that they have FINALLY agreed the process for funding
>  consumables for existing pump users. The problem (??!) was that they had 
>agreed
>the
>necessary monies for the expected 'new' users as suggested by NICE 
>guidelines,
>but hadn't a clue what to do about current users.
>
>Huge relief, I feel as if a massive weight has been lifted off me!
>
>So for all those of you who still haven't had a favourable response - don't
>give up, stay very calm (easier said than done, I know) and be very, very
>  persistent - it may not make any difference to speed of decision making, 
>but
>hey,
>I at least felt as if I was doing something!! :D
>
>Best wishes to all,
>Judi, Wareham, Dorset
>- ----------------------------------------------------------
>for HELP or to subscribe/unsubscribe/change list versions,
>contact: HELP@insulin-pumpers.org
>
>------------------------------
>
>Date: Wed, 5 Nov 2003 22:18:45 -0000
>From: "Rhoda Martin" <email @ redacted>
>Subject: RE: [IPk] Funding - YESSSSSSSSSSSSSSSSSSSS!!!!
>
>Fantabadozy, Judi!  Go celebrate :-)
>
>Rhoda
>- ----------------------------------------------------------
>for HELP or to subscribe/unsubscribe/change list versions,
>contact: HELP@insulin-pumpers.org
>
>------------------------------
>
>Date: Tue, 4 Nov 2003 14:18:49 -0000
>From: "louise.coe" <email @ redacted>
>Subject: Re: [IPk] lots of questions from a newbie!
>
>Hi Louise,
>
>I am in exactly the same situation as you, however I have had Diabetes for
>11 years now. I went through a bad patch with bullying at work a few years
>ago and had a nervious breakdown. The bullying was all to do with my
>Diabetes, my GP put me on ani-depressants.
>
>I was getting no where with my Diabetes nurse and saw a different Doctor
>every visit. However about four months ago a new nurse started and she is
>like an Angel. She said you have to try lots of different procedures before
>you will get the funding from NICE.
>
>I had a monitor on for a week and they could see my roller coaster ride of
>hypos etc. I broke down at every visit and finally got to see the head
>honcho who is trying was he says is the last test.
>
>This is to take my humalog after my meals and inject into my tummy. Well it
>hasn't made the blind bit of difference, if anything I am higher that ever,
>feet hurt, blur vision etc....
>
>This new nurse will be ringing me this week to find out how I am and if she
>is not happy she will get another appoinment for me with the head honcho.
>
>Than maybe who knows I might get funding....
>
>So the moto of the story is, cry and say you are really depressed.
>
>Regards Lou
>- ----- Original Message -----
>From: "Louise Kempton" <email @ redacted>
>To: <email @ redacted>
>Sent: Monday, November 03, 2003 2:52 PM
>Subject: [IPk] lots of questions from a newbie!
>
>
> > Insulin Pumpers is made possible by your tax deductible contributions.
> > Your donation of $10, $25, or more... just $1 or $2 per month is
> > needed so that Insulin Pumpers can continue to serve you and the rest
> > of the diabetes community. Please visit:
> >
> >     http://www.insulin-pumpers.org/donate.shtml
> >
> > Your annual contribution will eliminate this header from your IP mail
> >
> > Hi all - I'm Louise, new member.  I'm 32 and was diagnosed in January 
>2003
> > with Type 1 (after initially being diagnosed with gestational diabetes 
>in
> > July 2002 and then IGT - going into DKA finally helped the medics to
>figure
> > it out!)  After terrible results with Insulatard/Mixtard I was fairly
> > quickly put onto MDI (humalog and lantus).
> >
> > My hba1c is currently 6.7% which my diabetes team seem to think is
>enormous
> > cause for celebration.  However this is just a midpoint between the
>frequent
> > highs and lows.  To get this kind of control I can expect about 2 hypos
>per
> > day.  Also I have had to pretty much cut out  bread, potatoes, pasta,
>rice,
> > fruit etc.
> >
> > I couldn't get the Lantus to work for 24 hours.  Taking it at night 
>meant
> > morning hypos but creeping up from mid afternoon.  Taking it in the
>morning
> > meant I was waking with high BG (so feeling crummy) and hypos in late
> > morning.  I now take it twice a day (14 units in the morning and 2 at
>night)
> > which works as long as I don't eat any carb for lunch or dinner!  My 
>team
> > would not give any advice or support on this so I took the decision and
>set
> > the dose myself.  Does anyone else have experience of splitting Lantus?
> >
> > My carb to insulin ratio seems to be about 1 unit to 5 g.  This seems
>really
> > high.  Most of the literature talks about it being 1:10 or 15.  Does 
>this
> > mean I have reduced insulin sensitivity??  (I'm not overweight).  I unit
>of
> > humalog seems to lower my BG by 2.5 - 3 which seems pretty typical.
> >
> > The other reason I am eating low carb is because of problems with
>humalog -
> > I get decent BG results 1.5-2 hours after a meal but it then climbs up 
>3-4
> > hours later.  If I take more humalog then I go hypo, need to eat and 
>then
>go
> > high from the snack.  Does anyone else have this problem?  Would 
>Novorapid
> > be better or splitting the humalog?
> >
> > (By the way I have stopped calling my DSN as her reaction to any of the
> > above is "that's diabetes for you" ....)
> >
> > I am really keen to try a pump.  There are some people at my clinic 
>using
> > them, but the consultant seems to only use it as a complete last resort.
>I
> > am afraid that I am being discriminated against because of my perceived
> > 'good control' - which is only achieved by testing 8-10 times per day,
> > giving correction doses, rigorous carb counting and carb restriction 
>etc.
> >
> > Any tips on how to persuade my team would be appreciated!  I am keen to
>try
> > for another baby next year but would not dream of it with my current BG
> > levels and am terrified of the effect that pregnancy hormones will have 
>on
> > what already feels like a roller coaster at the best of times.  
>Therefore
>I
> > will pay (re-mortgage the house, whatever ...) for one myself.  Does
>anyone
> > have experience of dealing with the pump manufacturers directly?  Is it
> > possible to get a trial of a pump before committing to buying one?  If I
>buy
> > the pump privately is there any chance of getting consumables on
> > prescription or will I have burnt my bridges?
> >
> > I am going back to clinic in a couple of weeks time and will again try 
>to
> > put some pressure on the consultant to recommend me for pump trial, but
>I'm
> > not very hopeful.  (I am under Newcastle NHS - would love to hear from
> > anyone else in the area who has local experience).
> >
> > Thanks to anyone who has taken the time to read this long message, and
> > special thanks to anyone who replies to any of my questions.
> >
> > Louise
> > ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
>- ----------------------------------------------------------
>for HELP or to subscribe/unsubscribe/change list versions,
>contact: HELP@insulin-pumpers.org
>
>------------------------------
>
>Date: Thu, 6 Nov 2003 07:19:57 +0000
>From: Pat Reynolds <email @ redacted>
>Subject: [IPk] sofset insertion
>
>Hi all,
>
>Many thanks for getting me back on.
>
>In reply to Melissa's question:
>
>When I put in a sofset with a whanger, I don't pinch up a great deal.
>
>When I put it in manually, I do.  I tried both pinching up and pulling
>out with the quicksets (manually and with the whanger).
>
>Best wishes,
>
>Pat
>dm 30+, 508 2+, sof-sets 2+, quick sets about 1m
>
>- --
>Pat Reynolds
>email @ redacted
>    "It might look a bit messy now,
>                     but just you come back in 500 years time"
>    (T. Pratchett)
>- ----------------------------------------------------------
>for HELP or to subscribe/unsubscribe/change list versions,
>contact: HELP@insulin-pumpers.org
>
>------------------------------
>
>Date: Thu, 6 Nov 2003 14:24:56 -0000
>From: Louise Kempton <email @ redacted>
>Subject: [IPk] Thanks and lots more questions from a Newbie!
>
>Thanks to those who have responded already.  It already feels better to 
>know
>I am not alone, and I am so motivated by all the positive pumping stories.
>All the comments and answers have been so helpful.  I have decided that I
>have to try a pump by hook or by crook.  Have been very proactive this week
>- - contacted 2 pump companies for info.  I am back in clinic in 2 weeks so
>have decided to send a letter to my consultant in advance with all the
>relevant info (basically making a case for myself) so she can digest it
>before we meet and then hopefully we might get somewhere.  The last few
>visits I felt that we have been going round and round in circles, and then
>of course the time is so limited.
>
>Another question - it seems from the info from Medtronic that even if I pay
>privately I still have to get my doctor's approval.  Is this correct?
>
>BGs were awful on Monday and Tuesday, double figures practically all day
>despite correction shots.  Serves me right for trying to eat like a real
>person!  Back on the low carbs (I have about 50g per day) yesterday and
>today which has kept me at 3-9 mmol each test.  (And I guess all the wine I
>drank with the girls last night has kept me down as well - ooops!)
>
>By the way some more info about me - 3 months after I was dxd (April 2003)
>my sister (age 30) came to visit.  We tested her BG 'for a laugh' and it 
>was
>18 mmol when she just woke up and hadn't had breakfast!!  She was admitted 
>a
>few days later.  Luckily didn't go into DKA.  She is on Lantus and
>Novorapid, total insulin less than 20 units per day.  Her BGs are almost
>always between 4 and 7 regardless of what she eats.  Is this honeymoon or 
>is
>she just incredibly lucky?  Is my control harder because DKA means my
>insulin function was totally burnt out?  And finally, would LOVE some help
>on this one especially from T1 women with kids - is it just me or are you
>all completely paranoid about your kids getting it (have to stop myself
>testing her nappy for heaviness, freaking out whenever she drinks lots of
>water etc.)?  I am told that kids are of less risk if mum has it and also 
>if
>you are dxd after 25.  One article said this puts them in the same risk as
>general population (1 in 100).  But does my sister having it up the risk 
>for
>my daughter?  And (final one, promise!) has anyone had their kids tested 
>for
>predisposition - is it worth doing?
>
>Sorry for so many more questions!  Hopefully one day I'll be able to help
>someone else (as it happens my sister being dxd really helped me accept
>diabetes - made me feel like there was a purpose as I was able to help her
>through it and she was so much calmer having seen me get through it in one
>piece).
>
>Ok I'll stop now!
>Louise
>32, T1, dxd 11 months
>
>
>
>
>
>
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>- ----------------------------------------------------------
>for HELP or to subscribe/unsubscribe/change list versions,
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>
>------------------------------
>
>End of ip-uk-digest V2 #546
>***************************
>

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