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RE: [IPk] Dissapointing meeting with Sasha,s consultant

The consultants argument is that its not a funding issue just one of safety.
I wasn't looking for funding and told him that to cut out hassle we would
fund the pump ourselves.  He think that clinics haven't enough experience
even though I have pointed out that the pump companies provide the pump

I am sorry to hear of the experience that you have with your hospital.  I
just mentioned B'ham as we were told that they had a child on a pump.  But
its not practical to go too far away.  Our consultant said that he wouldn't
be happy to treat Sasha anymore if she was on a pump as they haven't got the
experience at Cheltenham.  We wants us to wait until better technology comes

Just dont know what to do next to find a hospital where they have a few
children on pumps thats not a mega distance away.  But even if we did go to
somewhere in London for instance, they are obviously not going to be able to
give us hands on help if we come up against a problem.

I dont see the point of being refered to someone for a second opinion if
they dont have pump expirence with children either.

I feel very upset and dissapointed.  Theres no doubt that we are likely to
have plenty of contact with Cheltenham still anyway because of the celiac
and asthma and any emergency treatments.


> -----Original Message-----
> From: email @ redacted [mailto:email @ redacted]On
> Behalf Of Rob Reznik
> Sent: 29 November 2002 05:16
> To: email @ redacted
> Subject: Re: [IPk] Dissapointing meeting with Sasha,s consultant
> Hi Jackie - I too am completely disillusioned with the - so called - care
> and treatment my 10 year old daughter gets from the 'specialist team'. I
> took my daughter to the GP on Wednesday for her anti flu
> injection and as a
> matter of course asked to see the last notes from the hospital. I was
> gobsmacked by the notes, but am not prepared to disclose the contents for
> legal reasons. I threw a wobbly at the surgery and after
> listening to me, my
> GP suggested I see him on Wednesday for a chat as too the options
> available
> to my daughter. He confessed that she was the only type 1 diabetic in his
> practice. I went home feeling very very very angry and proceeded to be
> physically sick. I could not sleep and had breathing problems due to the
> anxiety and stress - symptoms that I have never experienced before. It has
> taken me a couple of days to calm down but I am still very angry. Since my
> last visit to the hospital in September I have taken it upon
> myself to find
> out much more about diabetes and have decided to go along the pump route
> myself. At this point in time I do not know whether I will take
> my daughter
> on the next proposed hospital appointment or do this totally on
> my own. I am
> afraid that I may say or do something at the hospital which will be
> detrimental to the cause. I am currently preparing a document ( probably
> around 50 pages long ) which I will leave at the doctors surgery on Monday
> and hope he has time to browse through before we meet. I have
> seen and read
> enough to be sure that , with the correct amount of initial work involved,
> DSII is the only practical way of duplicating the way ( as far as is
> currently possible ) a non diabetic person controls their sugar levels. We
> do not have the finances available to buy a pump and my first port of call
>  depending on what the GP has to say ) will be to demand a pump
> via the NHS.
> If this is not forthcoming ( and I do not expect it to be! ) I will
> remortgage the house to buy the necessary pump and ancillaries.
> If the pump
> proves to be successful I then plan to take the NHS to the cleaners as to
> why they would not fund a pump.
> I now have the bit between my teeth and I will bite until I hit the
> bones!!!!!!!!!!!!!
> I hear you are looking for diabetic children on pumps in Birmingham. I
> cannot help on that one but if you would like to meet or discuss things we
> live in Wolverhampton.
> Keep your chin up and put your Boxing gloves on
> Rob Reznik
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