Re: [IPk] Thyroid Problems
Thanks for you reply, I found it very interesting. The Doctor at the
hospital has reduced thyroxine to 25mcg and wants my GP to check levels in
2months, but still feel abit uneasy about this, as not feeling that good at
moment. So may ring hospital these week and get sooner appointment with
endocrinologist. The one thing I don't want is that awful chest pain that I
had on monday morning. My blood sugars have been awful this week, needing
about 20% more insulin but today I have bee hypo alot of the day.
Karen (Type 1 25yrs, pumping insulin 2yrs) also has diabetic son age 14
----- Original Message -----
From: "Karen Persov" <email @ redacted>
To: <email @ redacted>
Sent: Thursday, May 22, 2008 4:12 AM
Subject: [IPk] Thyroid Problems
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> Hi Karen
> I have probably come into this conversation a bit late but with regards
> thyroid problems, but my daughter has had Hashimotos for 18months and my
> mother was also a sufferer.
> Under active thyroid is auto immune - like diabetes, and is known as
> Hashimotos Disease. It is part of the endocrine system, so like diabetes
> should be managed by an endocrinologist..such as a Diabetic Consultant-
> preferably the same one. I would never recommend a GP be left to manage
> thyroid porblems when other auto immune diseases are present.
> Since it is an auto immune disease this means you are producing
> antibodies, the more you produce, the more damaged your thyroid will
> and goitres requiring surgery may result, you would also gain excessive
> weight as well as other nasties.The real problem is the more thyroxine the
> thyroid is forced to produce itself , the larger it will grow, not only
> becoming visible but potentially blocking the wind pipe.
> The best method of dealing with Hashimotos is Thyroid Suppression Therapy
> (more used in the US than here). This involves giving quite high doses of
> eltroxine (Thryoxine) to stop the production of TSH (Thyroid Stimulating
> Hormone) and also reduce the level of anti-thyroid antibodies. Without
> the thyroid does not produce thyroxine, so this then stops the above
> problems in their track. This sounds like what your Consultant is quite
> rightly doing!
> (GPs tend to go for the traditional approach of not giving thyroxine or
> giving very low levels, to top up your own deficiencies.. but this will
> stop progression of the disease.. just treat it. This method is only
> concerned with getting T3 levels within a "normal" range, not suppressing
> antibodies or TSh production. Some GPs will not even prescribe thyroxine
> until natural levels are seriously low, by this time the thyroid has all
> packed up and longer term problems set in.
> There is also much dispute, both here and in the US as to what a "normal"
> range is, with the UK accepting much lower levels of thyroxine (T3 and
> T4) and higher levels of TSH.( A bit like saying that bgs could be 12mmol
> and that's still normal)
> Theoretically thyroxine takes weeks to kick in, this was not the case with
> my daughter. Her energy levels and metabolism showed marked improvement
> within 5 days and her hives all disappeared. It only takes a long time for
> people who have been undiagnosed for many years and whose natural levels
> thyroxine are very low).
> With Thyroid Suppression Therapy thryoid levels can and do get up to
> "normal" quickly, because initially the thyroid is still producing
> thyroxine. In fact there may be days when they are too high and you feel
> abit hyper. Eventually less TSH will be produced and you will produce less
> thyroxine yourself. Once TSH levels get very low, no new antithyroid
> antibodies will be made and you will stop any progression of illness.
> It sounds to me that your Consultant did great to pick this up and get you
> on treatment. I'd stick with his recommended dose but ask to have TSH, T3,
> T4 and antithyroid antibodies checked monthly for 3 months and then every
> months until you get stabilised. After that, twice a year should be
> sufficient. Not taking enough thryroxine, is like not taking enough
> in terms of future long term damage and really not a good idea.
> Thyroxine regulates (amonst other things) the metabolism, including the of
> digestion of carbohyrdrates, protein and fat.. it will therefore have a
> direct influence on blood glucose control and timing of insulin. I find
> that my daughter digests foods far quicker since being on thyroxin which
> means we no longer need to used extended or delayed delivery of insulin.
> This is particularly more noticeable with fats and protain, bearing in
> that 10% of fat and 50% of protein is metabolised into glucose.
> Please be aware that different generic brands of thryoxine are not all the
> same in their stated strength!!! There is much variability between brands
> and instability within batches. Thryroxine is one of the oldest drugs on
> market and somehow manages to predate many current regulations. Therefore
> make sure that you stick to one brand only. The most stable is Eltroxin
> Goldshield and I make sure that the GP (who writes the prescription)
> actually states this brand. My daughter is on 125mcg a day, but if she has
> few days feeling tired,she may up it to 150mcg for just 2 or 3 days or if
> she's feeling hyper.. she says it feels like her heart is beating too
> she may drop to 100mcg, again just for a few days.
> *Karen Persov*.. mum to Sarah (age 11.5).. diabetic 10 yrs, Hashimotos
> Pumping 4 years, on Dexcom 2 weeks. Hba1c 6.6%
>> Date: Tue, 20 May 2008 17:47:24 +0100
>> From: <email @ redacted>
>> Subject: Re: [IPk] Help please thyroid problems
>> Hi Di,
>> The condition was picked up at my annual review, so it was diabetes
>> consultant that put me on thyroxine.
>> - ----- Original Message -----
>> From: "Diana Maynard" <email @ redacted>
>> To: <email @ redacted>
>> Sent: Tuesday, May 20, 2008 1:21 PM
>> Subject: Re: [IPk] Help please thyroid problems
>> >> Hi Karen
>> > I'm a bit confused, why are you getting in touch with your diabetes
>> > consultant? Surely he wasn't the one who put you on thyroxine?
>> > Shouldn't
>> > you be talking to either your GP or thyroid specialist? Or is your
>> > diabetes consultant also managing your thyroid condition???
>> > Di
>> > email @ redacted wrote:
>> >> Hi Melissa,
>> >> Many thanks for your reply, it all sounds quite familiar and makes me
>> >> feel a little better. I have rung up the secretary of my diabetes
>> >> consultant and asked her to speak to him and hopefully he might give
>> >> me
>> >> call this pm. I know I am very sensitive to alot of medication, had
>> >> of problems with statins etc, and I would feel better if they would
>> >> reduce dose of thyroxine, it seems strange to me that after 8 days of
>> >> taking thyroxine my levels are ok, I understood it took weeks.
>> >> Karen
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