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Re: [IPk] Consultant appointment



Hi Jackie

I am going to do the CGMS on 9th June and see what they say after that, if I 
am not happy with what they say, I will ask to transfer.  I believe Becca 
goes to Addenbrokes, so that is probably where I will ask for.  Although, I 
am optimistic my clinic will see sense!

Best wishes
Julia Killengray
----- Original Message ----- 
From: "Jackie Jacombs" <email @ redacted>
To: <email @ redacted>
Sent: Wednesday, May 21, 2008 11:13 PM
Subject: RE: [IPk] Consultant appointment


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> Hi Julia
>
> Maybe you ought to consider transfer to another hospital? If her HbA1c is 
> 7.9%
> then its pretty easy to say that Ellie hasnt got optimal control and her
> quality
> of life would be much improved by an insulin pump.
>
> Jackie
>
>
>
>
>
>> Hi Jackie
>>
>> That is very interesting, i didn't realise the consultant had the final 
>> say.
>> I will be interested to see what steps they take after the CGMS on 9th 
>> June.
>> Ellie's hba1c has gone up to 7.9 and she would love the flexability the 
>> pump
>> gives.  Essex has not got many on a pump, so this could be an eventful
>> journey.
>>
>> Many thanks and best wishes
>> Julia Killengray
>>
>> > Hi Julia
>> >
>> > If you get any problems get on to John Davis or Lesley Jordan.  The 
>> > fact
>> > that
>> > both Ellie and Tate have had partial pancreatectomies should mean that
>> > they
>> > should both be considered for pumps  (to my mind)   as frequently blood
>> > glucose
>> > levels are often very difficult to control in these circumstances. The
>> > pancreas
>> > (as of course you already  know) produces other hormones (as well as
>> > digestive
>> > enzymes)  the lack of these other hormones also has an effect on the 
>> > blood
>> > glucose control.
>> >
>> > Its your consultant's and your decision and not the PCTs.  If the
>> > consultant
>> > says that Ellie has a clinical need for a pump, then PCT have to supply
>> > it.
>> >
>> >
>> > Jackie
>> >
>> >
>> >
>> >
>> >
>> >
>> >> Hi Melissa
>> >>
>> >> I know your email was directed at Phil, but my daughter would like a 
>> >> pump
>> >> and we have an appointment to have CGMS fitted on the 9th June.  So 
>> >> your
>> >> email will also help me put together a strong case for a pump.  We 
>> >> have
>> >> been
>> >> told by the our DSN, we need to prove injections are not working to 
>> >> get
>> >> funding from our PCT.
>> >>
>> >> Many thanks
>> >> Julia Killengray
>> >> Ellie Age 11 -  99% pancreatectomy
>> >> Tate Age 8 - 95% pancreatectomy
>> >> Both on insulin and digestive enzymes
>> >> Hospital: St John's, Chelmsford UK
>> >>
>> >> -
>> >
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