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RE: [IPk] Consultant appointment



Hi Julia

 Maybe you ought to consider transfer to another hospital? If her HbA1c is 7.9%
 then its pretty easy to say that Ellie hasnt got optimal control and her
quality
of life would be much improved by an insulin pump.

Jackie





> Hi Jackie
>
> That is very interesting, i didn't realise the consultant had the final say.
> I will be interested to see what steps they take after the CGMS on 9th June.
> Ellie's hba1c has gone up to 7.9 and she would love the flexability the pump
> gives.  Essex has not got many on a pump, so this could be an eventful
> journey.
>
> Many thanks and best wishes
> Julia Killengray
>
> > Hi Julia
> >
> > If you get any problems get on to John Davis or Lesley Jordan.  The fact
> > that
> > both Ellie and Tate have had partial pancreatectomies should mean that
> > they
> > should both be considered for pumps  (to my mind)   as frequently blood
> > glucose
> > levels are often very difficult to control in these circumstances. The
> > pancreas
> > (as of course you already  know) produces other hormones (as well as
> > digestive
> > enzymes)  the lack of these other hormones also has an effect on the blood
> > glucose control.
> >
> > Its your consultant's and your decision and not the PCTs.  If the
> > consultant
> > says that Ellie has a clinical need for a pump, then PCT have to supply
> > it.
> >
> >
> > Jackie
> >
> >
> >
> >
> >
> >
> >> Hi Melissa
> >>
> >> I know your email was directed at Phil, but my daughter would like a pump
> >> and we have an appointment to have CGMS fitted on the 9th June.  So your
> >> email will also help me put together a strong case for a pump.  We have
> >> been
> >> told by the our DSN, we need to prove injections are not working to get
> >> funding from our PCT.
> >>
> >> Many thanks
> >> Julia Killengray
> >> Ellie Age 11 -  99% pancreatectomy
> >> Tate Age 8 - 95% pancreatectomy
> >> Both on insulin and digestive enzymes
> >> Hospital: St John's, Chelmsford UK
> >>
> >> -
> >
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