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Re: [IPk] Help or advice before I totally crack up



Hi Gail

Yes, I find the whole issue of how much to 'back off' a bit like walking on
a tightrope! Charlie has been doing his own injections and blood tests since
he was 4 and although is very heavily supervised at school, we are taking a
more relaxed approach at home. He has been away on holiday with other
families and stayed overnight with friends but only those who know him
really well. I've never asked a parent to do a big but I might ask them to
remind C to do one. All the people he has stayed with are aware of his
frequent hypos/fitting/unconsciousness/hospitalisation, so I think they are
quite brave having someone stay who is this vulnerable.
Our other concern at the moment apart from the question of the skiing
holiday, is that his choir is to tour America in the autumn, 15 days, 6
flights 8 concerts. A heavy, stressful workload - but C is looking forward
to it enormously. What does he do about his basal rates with the time
changes? I have no idea what to advise the school nurses to do...

As ever, thanks for your advice.

Barbara
----- Original Message -----
From: "Gail DAVIES" <email @ redacted>
To: <email @ redacted>
Sent: Monday, May 05, 2003 7:41 AM
Subject: RE: [IPk] Help or advice before I totally crack up


> Insulin Pumpers is made possible by your tax deductible contributions.
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> of the diabetes community. Please visit:
>
>     http://www.insulin-pumpers.org/donate.shtml
>
> Your annual contribution will eliminate this header from your IP mail
>
> i dont have a prob with night time lows at all with glargine i find it
great
> and it has got rid of the unavoidable morning highs i had for years before
> starting on it.gail
>
> -------Original Message-------
>
> From: email @ redacted
> Date: Monday, May 05, 2003 01:19:07
> To: email @ redacted
> Subject: RE: [IPk] Help or advice before I totally crack up
>
> Insulin Pumpers is made possible by your tax deductible contributions.
> Your donation of $10, $25, or more... just $1 or $2 per month is
> needed so that Insulin Pumpers can continue to serve you and the rest
> of the diabetes community. Please visit:
>
> http://www.insulin-pumpers.org/donate.shtml
>
> Your annual contribution will eliminate this header from your IP mail
>
> On 4 May 2003 at 21:54, Gail DAVIES wrote:
>
> > as a child diabetic the docs always kept on about keeping
> > sugars down and i dont remember them mentioning tring to
> > stop hypos, i grew up as a child constantantly being told by
> > docs to keep sugars down or i would have kidney failure,
> > amputations and blindness.my mum is a real worrier and
> > constantly worried about me but she didnt stop me going on
> > school trips just so she wouldnt have to worry about me, im
> > so grateful to her for giving me that indepence, my cousin
> > who was also diagnosed with type 1 as a child was never
> > allowed to go anywhere and his mum did everything for him
> > and as a result he found it very hard looking after himself
> > as he got older.
>
> Hi Gail,
>
> Emily is gradually taking over more of her care at her own
> pace. I don't like the way the clinic staff try to force
> the issue. I can't help thinking that she is likely to be
> giving herself injections for a long time, possibly the
> rest of her life, so why the rush now? She does all of her
> injections now and some of her blood tests but a lot of the
> time she's too busy and wants me to sort the meter out for
> her. I'm not worried because she was like this with
> injections but that gradually changed. I know she will take
> over completely eventually but don't see any need to rush.
>
> Robert is a little older and has done every single
> injection since he was diagnosed just over a month ago but
> he still gets me to sort out the meter while he washes his
> hand :-) He's doing it all this week because he's staying
> with friends in Wales. I think he felt he had something to
> prove because he always said that if he became diabetic he
> would prefer to do his own injections.
>
> Maybe the difference is that we are warned to be careful
> about hypos as well as high BG's these days. Although I
> know 'dead-in-bed', brain damage and coma are very rare I
> can't help worrying about it, particularly since Emily has
> stopped waking with low BG's at night and we are still
> discover unexpected lows when we test at night. I know
> Emily wouldn't wake with an alarm clock to test herself and
> it seems a lot to ask of other parents. When Emily was in
> hospital over night recently the nurse had 4 attempts at a
> blood test before it worked! We couldn't even reduce her
> insulin really as the only active insulin at that time is
> the Glargine and it would have to be reduced for days
> before. I think we will have to rely on feeding her up well
> before bedtime if she really wants to sleep over sometime
> soon.
>
> Would a pump help avoid these night time hypos? I am
> beginning to suspect the main cause is exercise during the
> day and I assume we would be able to reduce the basal rate
> overnight if she has had more exercise during the day
> (unlike the Glargine).
>
> Bws,
> Jos
> --
> Mum to Emily aged 10, dx Oct '99
> Novorapid x 3 or 4, Glargine x 1,
> Robert aged 12 dx Mar '03
> Novomix 30 x 2 (+ Novorapid when hungry!),
> and Matthew aged 7.
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