[Previous Months][Date Index][Thread Index][Join - Register][Login]
[Message Prev][Message Next][Thread Prev][Thread Next]

Re: [IPk] one injection per day



Hi Jackie

Yes it is difficult with Miles being so young but it is getting easier, he 
does now recognise the symptoms of a hypo etc, but i think a child with D no 
matter what age has to go thru so much not really understanding why them. 
But then i dont understand why my son????

Can i ask Jackie how did you go about setting up your local support group? 
Where we live there is nothing for children with diabetes everything is set 
up for adults, it would be great if i could get other parents together, any 
advice would be appreciated.

Jo


From: "Jackie Jacombs" <email @ redacted>
Reply-To: email @ redacted
To: <email @ redacted>
Subject: Re: [IPk] one injection per day
Date: Thu, 30 May 2002 18:09:14 +0100

Hi Joanne

I can imagine how hard it is with a very young child it must have been very
scary sometimes when they just have a nap, you never know whether they are
sleeping or becoming unconscious.  When Sasha used to fall asleep on car
journeys I used to be quite distracted as I never knew if it was a hypo or
not.  We did catch several hypos over the years when Sasha was napping.  She
was 4 nearly 5 years when she was dxed so this wasn't too big a problem.  In
clinic we have just had 2 very young children newly diagnosed both about 3
years old.  Little boys.  The mums are having a very hard time with getting
them to eat when needed.  Three weeks ago there was a two year old just
diagnosed. The nurse was telling the parents how rare it was in young 
children
and the same day a 12 year old boy was admitted with D too.

The clinic has never had so many children diagnosed with D in such a short
space of time.  When I set up our local support group we also have a group 
of
parents who are willing to go in and speak to parents of newly diagnosed
children and try and give them some extra support and try and pair them with
someone who had a child diagnosed at a similar age.

You say you speak to other parents round the world, do you belong to the
Children with Diabetes support list?  Lots of young children and many using
pumps, predominately US subscribers though.  I joined the New Zealand and
Australian sub list and find that their D treatment insulin and regimens 
they
use very similar to here.  I have got a lot of help and support for the Auz
and NZ list especially with Sasha's coeliac diagnosis.  Big plus to is that
they measure in MMols and not mg/dl.

At least in NZ and Auz they do tend to use syringes to mix a tailored dose 
for
young children.
>From what I read about very young children who are still in honeymoon many
don't seem to need any longer acting insulin overnight for a while then 
start
using a bit of short acting with the evening meal.

Its very frustrating when doctors and nurses seem to think they have all the
answers when many don't understand how complex the body is and how difficult
it is to try to do the same job as a pancreas.  There are so many things 
that
can make a difference in blood sugars and young children are always getting
colds and viruses.

I hope you have better luck finding a better clinic.

Jackie

MUM AND PANCREAS to Sasha dx 1999 now aged 8, Coeliac,
Mum to Beckie, also coeliac, Mum to Danille and Nicki



----- Original Message -----
From: "JOANNE CHALLIS-BAILEY" <email @ redacted>
To: <email @ redacted>
Sent: 30 May 2002 09:20
Subject: Fwd: [IPk] one injection per day


 > Hi Abigail,
 >
 > Stoppng the pm inection did stop miles having hypos every night but we 
still
 > do have the occasional one.
 >
 > However we have found that if Miles has pasta for his dinner at night 
this
 > will maintain his sugars thru the night at an acceptable level. Im just 
so
 > lucky to have a little boy who loves pasta and will eat it every night in
 > some different way.
 >
 > To be honest i think that the hospital have to start looking at changing
 > miles regime soon, he starts school in september the first time he has 
been
 > out of my care since he was 2 and diagnosed.
 >
 > As i have said before i really do not have alot of faith in any of the 
team
 > at our clinic, the paediatrican is not an expert in D he basically blames
 > any change in miles sugars as a virus affecting the insulin and once when 
i
 > took him to hospital with severe vomiting and a blood sugar of 1.2 i was
 > told that we over care for him.....how can you overcare for a 2yr old 
with
 > D?????
 >
 > We never get to see the dietician or the family therapist and were lucky 
if
 > it is our consultant and not one of his underlings who we see.
 > I am in the process of looking into hospitals in our area and if anyone 
has
 > any experience with hospitals in the Essex area especially, Basildon or
 > Southend can you let me know your views.
 >
 > i speak to so many other parents around the world with young children 
with D
 > especially in Australia and the States and their specialists are so 
forward
 > thinking with the pumps and everything else and they listen to the 
parents
 > and the patient as they believe they are the best judge of what is 
happening
 > to them, if only our british doctors could do the
 > email @ redacted
 >
 >
 > sorry to go on so much but having a bad day today.
 >
 > From: "Abigail King" <email @ redacted>
 > Reply-To: To: <email @ redacted>
 > Subject: [IPk] one injection per day
 > Date: Wed, 29 May 2002 14:21:54 -0700
 >
 > has stopping the pm injection solved the overnight problem? Are his 
levels
 > now
 > way too high in the evening and in the morning. I would think it almost
 > certain that some form of insulin would be needed even if a very low dose 
or
 > in a combination that can't be given by mixtard
 > Good luck in finding a better clinic!
 > ----------------------------------------------------------
 > for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
 > help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
 >
 >
 >
 >
 >
 > JOANNE
 >
 >
 > _________________________________________________________________
 > Join the worlds largest e-mail service with MSN Hotmail.
 > http://www.hotmail.com
 > ----------------------------------------------------------
 > for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
 > help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
----------------------------------------------------------
for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml





JOANNE


_________________________________________________________________
Send and receive Hotmail on your mobile device: http://mobile.msn.com
----------------------------------------------------------
for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml