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Re: [IPk] Funding - Edinburgh



>From: "Julian Woodley" <email @ redacted>
>Reply-To: email @ redacted
>To: email @ redacted
>Subject: Re: [IPk] Funding - Edinburgh
>Date: Wed, 15 May 2002 21:53:17 +0100
>
>>From: Alison Orchard <email @ redacted>
>>Reply-To: email @ redacted
>>To: email @ redacted
>>Subject: Re: [IPk] Funding - Edinburgh
>>Date: Wed, 15 May 2002 21:24:37 +0100
>>
>>Hi
>>
>>A friend of mine was in a similar position - her hospital said they were
>>withdrawing funding when the system changed from Primary care groups to
>>primary care trusts, although reading between the lines I think they
>>were just trying to get out of paying and getting someone else to foot
>>the bill.  Anyway, she contacted her MP who was very helpful and as a
>>last resort got the newspapers involved!  This worked a treat and now
>>the funding has been reinstated - but from which purse of the NHS is
>>unclear.
>>
>>Alison
>>
>>In message <email @ redacted>, Susan
>>Morrow <email @ redacted> writes
>> >Hi Everyone
>> >
>> >I have been using an insulin pump since June 2001. I was very lucky that
>> >my dad paid for the pump as there was no funding available from my GP or
>> >hospital. The clinic at the hospital has helped pay for consumables
>> >since then through a charitable trust. I was pretty disappointed to
>> >receive a letter this morning to let me know that I will not be able to
>> >get any more help. There is only a limited amount of money and they have
>> >decided to help out new pump users which seems fair enough. My problem
>> >is that I now have to pay for all the consumables which financially, I
>> >will really struggle with. I really do not want to give up the pump but
>> >at the same time I don't want to get myself into financial problems.
>> >I am going to write to the health authority to ask for help and wondered
>> >if anyone else had tried this in Edinburgh, Any helpful hints would be
>> >very welcome. Also does anyone know if there are plans to make
>> >consumables available on prescription at all? It makes me mad that
>> >something which has improved my control and therefore has decreased my
>> >chance of developing complications is such a struggle to obtain. If I
>> >develop complications due to poor control as a result of sub-optimal
>> >therapy would I have to pay for treatment? I hope not.
>> >Any suggestions would be very welcome.
>> >
>> >Thanks
>> >
>> >Susan
>> >----------------------------------------------------------
>> >for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
>> >help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>>
>>--
>>Alison Orchard
>>----------------------------------------------------------
>>for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
>>help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
Sorry for the missing word.  this is the new improved version.

>Hi Susan
>
>I'm so sorry that your funding has been withdrawn and I admire your 
>attitude
>regarding the Charities position.
>
>Were you in hospital several times prior to going on pump therapy?  has 
>this
>improved since going on to the pump?  If so, you could try hitting the
>Health Trust with a price list.  I believe an Ambulance call out is
>somewhere in the region of #300 for starters, then the cost of hospital
>care, etc etc.  If you could research the prices of this then you may have 
>a
>little ammo to justify your claim.  Unfortuantely, our politacal friends 
>can
>only see as far as their five year term.  So until they receive a severe
>dose of LOGICAL education the fact that you are less likely to suffer from
>long term complications doesn't appear to cut much ice at the moment.
>
>As to funding the pump yourself for a while; I have run into difficulties
>myself, but haven't been on the pump very long, but I have seen the 
>benefits
>already, so I have a good idea where you are coing from regarding "sub -
>optimal treatment"
>
>Using the Press can be a good tactic, but it also invites public opinion 
>(refer to
>IPK DLA) and that can be very mixed and there is also the vague possibility
>that it could work to your disadvantage.  This does depend on your personal
>choice and how you perceive your privacy.
>
>I wish you well and hope it all works out for you very soon.
>
>Julian
>
>
>
>
>
>
>_________________________________________________________________
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>----------------------------------------------------------
>for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
>help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml




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----------------------------------------------------------
for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml