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Re: [IPk] New Accucheck pump/cost of CGM

Joel, That wasn't a rant, that was really useful and is the first
passionate and meaningful expression of how it really is and what it really
meens and without all the woffle and technical hoo ha.

Nevertheless there is no question of affording CGM for me as an old
pensioner with very limited and unchanging income - might be able to do it
I suppose if I gave up riding horses!


Jonathan Rohan Kickham

On 26 March 2014 16:05, Joel Milner <email @ redacted> wrote:

> Jon wrote:
>  >>>> I think a lot of people probably use it for a few weeks at a time
> and then
> have a break.
>  >>> I think the dexcom CGM is a game-changer, but even I cant see myself
> wearing it
> 365 days a year!
>  I suspect that a lot of the "self-funders" do indeed wear it 24/7/365. I
> started out about 4 years ago using date-expired Sof Sensors purchased at
> much
> reduced price from the US grey market. I recently switched to using Dexcom
> G4
> sensors purchased legitimately from Animas. I have had a sensor inserted
> virtually every day over this period - the couple of missing days have
> been due
> to technical problems (transmitter failure etc.).
>  Obviously it is an expensive option and not affordable for many people.
> However, IMO, knowing your BG at all times and as importantly the trend
> line
> with a quick glance at a screen, without having to resort to a fingerstick
> is a
> HUGE HUGE advance!! Definitely a game changer. I suspect that if/when a
> funding
> policy emerges for CGM, it will be centred around trying to improve the
> situation of a minority who have particular control difficulties. In this
> sense
> it will be rather like the old NICE guidelines, in which you had to be (or
> at
> least claim to be) a "failure" on MDI before you could be considered for a
> pump.
>  On this basis I would not qualify for CGMS funding. What I get from it has
> nothing to do with my HbA1c or chances of ending up in A & E and
> everything to
> do with a better quality of life. If your pancreas is ****ed and you are
> trying
> to control your BG levels using a pump, knowing what your levels are and
> where
> they are going makes life infinitely easier and less stressful in so many
> ways.
> If I wake up at 3 am I don't have to think about getting up to do a test. I
> don't have to carb-count to the nearest 0.1 of a gram (I can guess and
> then see
> if it's going wrong over the next few hours). A case of the bleedin'
> obvious
> really. Sadly I suspect that these sorts of considerations are not going
> to be
> included in any future policy.
> Rant over...
> Joel
> .
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