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Re: [IPk] New Accucheck pump/cost of CGM

Jon wrote:

 >>>> I think a lot of people probably use it for a few weeks at a time and then
have a break.

 >>> I think the dexcom CGM is a game-changer, but even I cant see myself
wearing it
365 days a year!

 I suspect that a lot of the "self-funders" do indeed wear it 24/7/365. I
started out about 4 years ago using date-expired Sof Sensors purchased at much
reduced price from the US grey market. I recently switched to using Dexcom G4
sensors purchased legitimately from Animas. I have had a sensor inserted
virtually every day over this period - the couple of missing days have been due
to technical problems (transmitter failure etc.).

 Obviously it is an expensive option and not affordable for many people.
However, IMO, knowing your BG at all times and as importantly the trend line
with a quick glance at a screen, without having to resort to a fingerstick is a
HUGE HUGE advance!! Definitely a game changer. I suspect that if/when a funding
policy emerges for CGM, it will be centred around trying to improve the
situation of a minority who have particular control difficulties. In this sense
it will be rather like the old NICE guidelines, in which you had to be (or at
least claim to be) a "failure" on MDI before you could be considered for a pump.

 On this basis I would not qualify for CGMS funding. What I get from it has
nothing to do with my HbA1c or chances of ending up in A & E and everything to
do with a better quality of life. If your pancreas is ****ed and you are trying
to control your BG levels using a pump, knowing what your levels are and where
they are going makes life infinitely easier and less stressful in so many ways.
If I wake up at 3 am I don't have to think about getting up to do a test. I
don't have to carb-count to the nearest 0.1 of a gram (I can guess and then see
if it's going wrong over the next few hours). A case of the bleedin' obvious
really. Sadly I suspect that these sorts of considerations are not going to be
included in any future policy.

Rant over...

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