RE: [IPk] Changing PCT
Hi Jackie,
I've moved PCTs twice so far, and I am in the process of doing so again.
The new PCT *must* provide funding, in the same way that the original PCT
were compelled to by NICE Guidance. However, as we know, the implementation
of NICE Guidance is somewhat erratic and therefore problems are certainly
possible, if not likely.
The best advice I can offer is to plan ahead. If the person concerned is not
moving very far and is going to be staying with the same hospital, the
hospital may be able to deal with the PCT change on the patient's behalf.
This is more likely if the hospital also arranged the original funding.
Otherwise...
1. Don't tell the current PCT anything. There is no need for them to know
until the new funding is in place. Telling them you are moving gives them an
excuse to withdraw funding immediately.
2. Get a letter from the current hospital consultant, and anyone else
appropriate(GP, DSN etc) stating the need for *ongoing* pump therapy and
confirming that this is currently funded by the NHS, plus any other
supporting information so the new PCT cannot dispute the need for a pump.
3. If you are going to be moving hospital as well ask the existing
consultant to make a referral to a new hospital as far ahead of time as
possible, This will help if the new PCT want you to be seen in a local
hospital, as it will reduce the waiting time until this can be done.
3. Find out who you need to contact at the new PCT. You can call the PCT and
ask to speak to the person who deals with insulin pumps, although this is
often met with a blank response. Asking for a commissioning manager gets
better results. Alternatively ask other patiens/parents if they know who the
contact is. You can then ascertain what procedure the new PCT wants to
follow to put funding in place.
4. Some PCTs try to insist that the need for a pump may have gone away (I
know, crazy...) This is the reason for getting a letter ahead of time. Other
PCTs will demand you are seen by a doctor within the new PCT - again the
reason for getting this sorted ahead of time. Sometimes going along with
what they want may be the quickest route to funding, if what they want is
not outrageous and won't take long to achieve.
5. If there are major problems the same advice that goes for initial funding
applications applies: CALL JOHN DAVIS!!
Hope that helps
Caroline
Type 1 22+ Pumper 4yrs Not staying in one place very long 2yrs!!
>
>This is a question on behalf of someone else someone with a child using
>pump
>therapy
>
>Has anyone experienced moving and changing to another PCT when the funding
>for pump therapy was originally agreed by their old PCT. How did this
>work?
>Does the new PCT have to continue the original funding or does funding have
>to be applied for?
>
>Kind Regards
>
>Jackie Jacombs mum of Sasha aged 11, diagnosed 1999, twin sister Rebecca
>both coeliac, two older girls, Nicki and Danni, husband Terry
>.
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