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Re: [IPk] Re: no funding for my pump

Pat, Thanks for your nelpful comments I have now written another thesis
on the benefits of insulin pump therapy and sent ot to my MP I will let
you know if he replies Carmel

>From: Pat Reynolds <email @ redacted> >Reply-To:
email @ redacted >To: email @ redacted >Subject: Re:
[IPk] Re: no funding for my pump >Date: Sat, 17 Mar 2001 12:09:50 +0000 >
>In message <email @ redacted>, Carmel Matthews
><email @ redacted> writes > >Hi all I have just received a
letter from my GP stating that the PCG are > >refusing to fund my pump on
the grounds that lots of patients pay for > >aids and appliances and if
they fund me it may set a precedent for other > >patients. They make you
feel guilty for even asking . Hiw do I respond to > >that? Carmel > >
>This is a similar response to those holiday companies which say 'nobody
>else complained'. Your response should be the same. That is, you need
>to say (and your specialist needs to say) >a) what other people do isn't
important, its the needs of this >individual which need to be met >b)
whether or not this sets a precedent is no basis for decision making:
>the discussion should be made on the basis of patient need. [Of course,
>it's flaming awful that anyone should have to pay for aids and
>appliances .... but here you are fighting for you, not them. You are
>worth fighting for. Fight for others too, if you like.] >Then >c) all
the arguments again about why you being on the pump saves the NHS
>funding, long term (i.e. give them the excuse which they can use to stop
>you being a 'precedent'. >It might also be worth contacting Social
Services, and asking if they >have a patient advocacy group (Social
Services usually do, and as they >are being 'encouraged' (to put it
mildly) to join up more with Health >Services, this is a route which
might work. > >Also write to your MP, stating the benefits you have
observed on the >pump (or hope to observe), and stress the short-termism
of not spending >what works out little more than a thousand a year on a
pump vs. the cost >of treating complications, not paying taxes, etc. that
poorly controlled >diabetes is likely to give rise to. Opposition
politicians can be asked >how their party will ensure that the NHS
manages its resources more >responsibly in future, Labour politicians can
be asked if they are aware >of the NHS' failure in this area, and if
anything has been done to >enable the NHS to improve. This is a Very Good
Time to get funding >through this route! > >Best of luck! > >Pat >-- >Pat
Reynolds >email @ redacted > "It might look a bit messy now, but
just you come back in 500 years time" > (T. Pratchett)
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