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Re: [IPk] Re: no funding for my pump

In message <email @ redacted>, Carmel Matthews
<email @ redacted> writes
>Hi all I have just received a letter from my GP stating that the PCG are
>refusing to fund my pump on the grounds that lots of patients pay for
>aids and appliances and if they fund me it may set a precedent for other
>patients. They make you feel guilty for even asking . Hiw do I respond to
>that? Carmel
This is a similar response to those holiday companies which say 'nobody
else complained'.  Your response should be the same. That is, you need
to say (and your specialist needs to say)
a) what other people do isn't important, its the needs of this
individual which need to be met
b) whether or not this sets a precedent is no basis for decision making:
the discussion should be made on the basis of patient need. [Of course,
it's flaming awful that anyone should have to pay for aids and
appliances .... but here you are fighting for you, not them.  You are
worth fighting for. Fight for others too, if you like.]
c) all the arguments again about why you being on the pump saves the NHS
funding, long term (i.e. give them the excuse which they can use to stop
you being a 'precedent'.
It might also be worth contacting Social Services, and asking if they
have a patient advocacy group (Social Services usually do, and as they
are being 'encouraged' (to put it mildly) to join up more with Health
Services, this is a route which might work. 

Also write to your MP, stating the benefits you have observed on the
pump (or hope to observe), and stress the short-termism of not spending
what works out little more than a thousand a year on a pump vs. the cost
of treating complications, not paying taxes, etc. that poorly controlled
diabetes is likely to give rise to.  Opposition politicians can be asked
how their party will ensure that the NHS manages its resources more
responsibly in future, Labour politicians can be asked if they are aware
of the NHS' failure in this area, and if anything has been done to
enable the NHS to improve. This is a Very Good Time to get funding
through this route!

Best of luck!

Pat Reynolds
email @ redacted
   "It might look a bit messy now, but just you come back in 500 years time" 
   (T. Pratchett)
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