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Re: [IPk] Re: Hyperglycaemia and encephalitis

Hi Brenda.

I am a nurse, and what I am reading about David's care, is just not good
Can I ask you, where is his Diabetic team based? Is it at the same hospital?
It's just that, if he was admitted with his bm being on the low side, then
surely they must be looking at the whole picture and that must include his
diabetic control.  As you know, long periods of high bm's, causes 
whether we like it or not, and if this is so, then this is a nursing/medical
priority along with his diagnosis,  to make sure that David's bm's are running
at what they should be, and not too high. More regular Bm's are part of
care FACT, from admission to discharge. If his diabetic team are on sight
at the hospital), then they should be aware of his admission and should have
been to assess him. If not at the same hospital, then you should contact them
directly and tell them that you are not haopy with his care. You are his mum
you sound really worried when you should be satisfied that he is receiving the
best care possible.

Take good care and I hope you get it sorted. Any questions that I may help you
with, please feel free to ask.

Alison xx.

PS, has the dietician been to see him too?

From: Karen Round <email @ redacted>
To: email @ redacted
Sent: Sunday, 26 June, 2011 11:44:19
Subject: RE: [IPk] Re: Hyperglycaemia and encephalitis

I don't understand why the nurses are only doing a few bg tests daily, when I
was nursing and had a patient like David we did as many as two hourly tests
depending on the severity of the illness being treated . The better the
patient got the fewer tests were needed but I can't understand what seems to
be a lack of care in David's case. I am the same as yourself when it comes to
exasperation and mistrust with the medical profession and I worked in it for
20 yrs, nothing seems to have gotten any better does it? Give David all our
love and tell him we're all thinking of him.

--- On Sun, 26/6/11, Brenda Cookson <email @ redacted> wrote:

From: Brenda Cookson <email @ redacted>
Subject: RE: [IPk] Re: Hyperglycaemia and encephalitis
To: email @ redacted
Date: Sunday, 26 June, 2011, 7:25

Hi Melissa

I did ask David if he wanted me to take his tesiting kit in so he could do
own tests as well but he said no, although I know he did that when he was in
hospital in Bulgaria. They did say that they wanted to keep him between 10
15 mmols for now anyway but he had one yesterday at 8 point something. I had
took him in a chocolate orange and a cake a few days ago so I suggested he
have the cake that evening which he said he did. One of his BMs was recorded
as 'not in bed' lol, although I think they did do the test later on. I did
think that his consultant would be involved in his care, considering it is
same hospital he is under but there is no way he would ask to see yet another
doctor when he is sick off the sight of them lol!

One of his fellow patients who is missing the big toe on one foot - and
whipped his sock off to show us - and has been in for 3 weeks after treading
on a nail with the other foot, was due to be discharged yesterday. They
decided to keep him in because he was having hypos in the evening. He told
them this was because he didn't get any food after the evening meal, which is
served quite early. I said that he should order extra food such as biscuits
and then keep them for when he was going low and he said 'yes, but you
shouldn't eat biscuits and sweets when you are diabetic'!! I told him that if
he was having hypos he did need to do this and he mused that his control was
better at home than in hospital. He said he lives alone so they may be being
extra cautious because of that. He has had diabetes (type one) for 18 years
but doesn't seem very knowledgeable about it, although he hasn't drunk
much since diagnosis and gave up smoking recently. He said he tests 4 times a

Brenda, mum of David, 22.

> Date: Sun, 26 Jun 2011 07:35:13 +0100
> Subject: [IPk] Re: Hyperglycaemia and encephalitis
> From: email @ redacted
> To: email @ redacted
> Hi Brenda
> Is it possible for David to check his blood glucose more often on his
> own and take some small correction doses? 4-5 tests a day and the
> regimen the hospital has ordered are clearly not enough if David's bg
> results are consistently so high.
> David is an adult and he has a right to tell the hospital that he
> wants to be more active in managing his diabetes. However, if David is
> happy with his care, maybe there's a compromise position of getting
> his usual DSN or diabetes consultant (if they're the sort who would
> say his care right now is sub-standard) to give advice to the hospital
> where David is being treated. Something as simple as 6-8 bg tests a
> day with a correction for anything over 10 mmol/L, and a dose of
> rapid-acting insulin for lunch (i think you said he's on pre-mixed
> insulin 2x daily?) might make a big difference. He probably needs more
> basal, but at least he'd have slightly better control with more
> short-acting insulin for now.
> Is there any clue re his release date?
> Thinking of you
> Melissa
> .
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