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Re: [IPk] RE: ip-uk-digest V4 #116

Hi Brenda
Why don't you practise doing blood tests (and even injections - using 
saline) on yourself? You don't need to practise on David! Just borrow 
his stabber and a lancet and have a go. You don't need to even tell him 
if you don't want to! Then you'll be fully equipped to deal with a 
Glucagon emergency. You can always ask at your local GP also, I'm sure 
the nurse would take you through the procedure if you wanted to, again 
without David even knowing.

When home BG testing first came in, my very nice doctor first stabbed 
himself (to show me it didn't hurt) and then let me stab him as 
practice! I'm not sure many doctors would do that! My first ever 
injection, on the other hand, (aged 8), I got no practice at - the nurse 
just handed me a syringe and told me to inject my leg, so I did (as she 
was very scary!).
My mum was given a glucagon kit (for me) which luckily she never had to 
use - she's also never injected me in her life but she's had plenty of 
practice injecting horses, cats and dogs! Much more difficult as they 
tend to squirm a lot more (or kick/bite you)! She's not a vet, though 
she would have loved to be one!

On 23/06/11 10:13, Brenda Cookson wrote:
> Hi Di
 > I understand exactly what you are saying but I do actually not have as much
> a hands on approach as my emails might suggest, largely because that is the
> way that David wants it. His meter lives in the bathroom and I did used to
> regularly check it but he knew I was doing it and asked me to stop quite a
 > while ago and I haven't done it since. I did check it on Sunday and took it
> the hospital in case they wanted to see it, but I obviously had good reasons
> for it. I've never done the finger pricks or injections and wouldn't actually
 > know how to do them. I felt that put me at a disadvantage on Sunday when I
> considering whether I should get the Glucagon because I think if I had done
> blood tests and insulin injections I would have more confidence in injecting
> the glucagon, even though I know it is not done in the same way. As it turned
> out the ambulance got here very quickly and I would have had to phone them
> even if I had given glucagon. If I was uused to doing the blood tests I might
> have tried that though and it would have been interesting to know what the
> reading would have beeen if it had been done earlier.
> David does actually go to all his hospiital appointments but they are
> generally only once a year. He has had a couple more lately because the
> hospital he was going to said he could start going to a drop in centre nearby
 > in future and they sent for him even though he had not been seen that long
 > at the hospital. Also the GP surgery decided they needed to see him and he
> not happy about that but did go. The nurse who he saw agreed it wasn't really
> necessary for him to go so I told him that if they phoned him again and he
> didn't want to go he should just tell them.
 > Of course, like many people his age, David doesn't mind me being more hands
> when it suits him! I used to get all his prescriptions before he went away to
> uni and when he goes on holiday I usually sort his travel insurance out for
> him! Also it is usually me who buys his glucose tablets and lucozade and have
 > bought him Frio bags, wangled free meters and bought him a Medi-Tag bracelet
> he hasnt objected to any of that in the slightest lol!
> Brenda, mum of David, 22.
>> Date: Thu, 23 Jun 2011 09:51:23 +0100
>> From: email @ redacted
>> To: email @ redacted
>> Subject: Re: [IPk] RE: ip-uk-digest V4 #116
>> Hi Brenda
>> I'm going to put my neck on the line a little bit here, but I'm speaking
>> as someone who has been through what I think is probably very similar
>> feelings to David when I was his age. I spent a number of years around
>> that age desperately "trying not to have diabetes". Above all else,
>> interference from my parents made things worse, and I really resented
>> them being on my back about anything to do with my control. Luckily,
>> they were very hands-off anyway. But at that age, I would have been
>> supremely annoyed if my mum had checked the readings on my meter or
>> tried to find out what my test results at the hospital were (I didn't
>> have a meter when I was that age, as home blood glucose testing was only
>> just coming in in a big way). Having been away at university and been
>> living independently, I imagine it's quite hard for David to come back
>> home (I seem to remember he's living at home with you at the moment?)
>> and have what he sees as you hassling him about his control. Obviously,
>> you are just concerned for him, which is completely understandable. But
>> from his point of view, it's very difficult to deal with. Unfortunately,
>> it's very hard to get him out of the mindset of "trying not to have
>> diabetes" and to get him actually interested in pursuing better control.
>> In my case, the main reason for not having good control was actually the
>> feeling of being out of control and not being able to do anything about
>> it, which made me give up trying. I resisted going onto MDI until I was
>> in my 20s, because in many ways it made diabetes seem more real, but
>> actually once I did, it improved my control and I did feel better for
>> it. It wasn't until I had depression (caused by a number of things) and
>> finally opened up to my friends that I had the impetus to do something
>> about it, largely coupled with the start of retinopathy soon after. But
>> nothing my parents or even my doctors said would have changed my
>> opinion, it had to come from me wanting to really take charge of the
>> situation and decide that the best way to "not be a diabetic" is
>> actually to meet it head on rather than to try to ignore it. I remember
>> my doctor telling me I had a very cavalier attitude to diabetes, another
>> GP threatening not to prescribe me any insulin unless I actually turned
>> up to my hospital appointments, all kinds of threats from my doctors,
>> none of which worked! My point in all this is that, hard as it is, I
>> think the only way is to let David find out for himself the hard way (if
>> he's anything like as stubborn as I am), and maybe this - in a perverse
>> way - will actually be a good thing in that it might be a bit of a
>> wakeup call for him....
>> Here's hoping. Nothing upsets me more than to see young people with
>> diabetes having exactly the same attitude as I did, because I know that
>> the more you try to push them, the more harm you can do. The more you
>> let them deal with it themselves and take responsibility, I think the
>> more likely they are to figure things out.
>> Di
>> On 23/06/11 08:53, Brenda Cookson wrote:
>>> David is a man of few words and actually stopped me going to his hospital
>>> appointments with him a few years ago as he doesn't like me asking
> questions.
>>> Plus I don't want to worrry him and think the idea of having a condition
> that
>>> he has probably never heard of would worry him at the moment.
>>> He has always been very chesty and there has always been a question mark
> of
>>> whether he has asthma, albeit quite mild luckily. When he was little they
>>> tried him on iinhalers for a while but they didn't seem to make much
>>> difference so they were stopped. He was fighting a chest infection a
> while
>> ago
>>> and they put him on inhalers again and said he might have asthma. He was
> very
>>> annoyed at the idea of being labelled with 'another' condition and almost
>>> seemed more upset than when he was diagnosed with diabetes!
>>> The hospital seem to have ruled out all explanations other than
> neurological
>>> ones so I doubt whether Addisons has entered anyone's head!
>>> Brenda, mum of David, 22
>> .
> .
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