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RE: [IPk] RE: ip-uk-digest V4 #116



David is a man of few words and actually stopped me going to his hospital
appointments with him a few years ago as he doesn't like me asking questions.
Plus I don't want to worrry him and think the idea of having a condition that
he has probably never heard of would worry him at the moment.

He has always been very chesty and there has always been a question mark of
whether he has asthma, albeit quite mild luckily. When he was little they
tried him on iinhalers for a while but they didn't seem to make much
difference so they were stopped. He was fighting a chest infection a while ago
and they put him on inhalers again and said he might have asthma. He was very
annoyed at the idea of being labelled with 'another' condition and almost
seemed more upset than when he was diagnosed with diabetes!

The hospital seem to have ruled out all explanations other than neurological
ones so I doubt whether Addisons has entered anyone's head!

Brenda, mum of David, 22




> Date: Thu, 23 Jun 2011 08:41:16 +0100
> Subject: Re: [IPk] RE: ip-uk-digest V4 #116
> From: email @ redacted
> To: email @ redacted
>
> Hi Brenda
>
> Is David perhaps okay to ask the question himself at this stage? I
> know you have a lot on your plate and maybe he'll have more of a
> chance to chat with the doctors?
>
> Melissa
>
> On Thursday, June 23, 2011, Brenda Cookson <email @ redacted>
wrote:
> > Hi Melissa
> >
> > Yes, I will definitely ask the question if I get the chance. I can see
that
> > David is really bothered by the fact that they don't know what caused it,
> > which I'm sure anyone would be in his situation because obviously he also
has
> > the fear of it happening again.
> >
> > Brenda, mum of David, 22.
> >
> >
> >
> >
> >
> >
> >> Date: Thu, 23 Jun 2011 08:00:56 +0100
> >> Subject: Re: [IPk] RE: ip-uk-digest V4 #116
> >> From: email @ redacted
> >> To: email @ redacted
> >>
> >> Hi Brenda
> >>
> >> I would say don't presume anything....many diabetologists are just
> >> that: diabetologists.
> >>
> >> For example, in Oxford the diabetes service is at the John Radcliffe
> >> in a special ward and the Addison's clinic is at the Churchill
> >> hospital. Theoretically, perhaps they should share a corridor but they
> >> don't.
> >>
> >> You may be the only person in this situation who suggests that
> >> Addison's be investigated. At the very least, the doctors can rule it
> >> out if David tests negative for it. At this point it seems worthwhile
> >> to follow any leads, no?
> >>
> >> Take care
> >>
> >> Melissa
> >>
> >> from them though
> >> > and I
> >> >> > will ask about Addisons if I get the chance. I would assume that
> > diabetes
> >> >> > specialists may also be knowledgeable about Addisons as they are
both
> >> >> > presumably endocronological (sp?)
> >> >> >
> >> >> > Brenda, mum of David, 22
> >> >> .
> >> > .
> > .
> .
.
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