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Re: Re[IPk] iron transfusion

Hi Helen

It has taken three years to get a diagnosis, which they have said is 
autonomic neoropathy. i have really poor digestion problems, and poor eating 
habits, I don't mean a poor diet, just that i never seem to feel hungry and 
as soon as i start to eat I feel full and don't want the food. I loose 
weight so easily, 4lbs since Monday. I am hoping that now they have 
confirmed what the problem is, medication can be arranged and things should 
improve. I still have to have a couple of other tests before they will 
prescribe medication but at least things are now moving in the right 
direction. I have been in hospital 13 in the last three years and on each 
occasion I have had a full blood count done, copies of which have gone to my 
GP and no one has picked up on the fact that I am anemic and my blood count 
has not been above 9 in that time. With the Iron transfusion and the gasto 
problem diagnosed I am hoping things will get better.

----- Original Message ----- 
From: "Stehelndd" <email @ redacted>
To: <email @ redacted>
Sent: Friday, June 06, 2008 10:14 AM
Subject: Re[IPk] iron transfusion

> Hi Deb
> Sorry to hear you have what seems to be gastroparesis, too. I've missed 
> some
> mails/digests but have you been diagnosed with this? I've had problems for
> many years and have in past been dx with colitis but this is in remission
> now. I have since been fobbed off as having IBS and other things. I am now
> being seen by another consultant after asking for a second opinion after 
> my
> digestive problems became worse and was losing weight scarily fast.. What
> gets me is that not one consultant, even the diabetes consultant I see for
> my pump, mentioned the fact that my gastric trouble could be due to
> gastroparesis and I had never heard of this prior to this consultant 
> saying
> he thought it could be this on my first visit to him last year! I have
> postural hypotension and the consultant picked up on this right away and
> said it is common for gastroparesis due to nerve damage and postural
> hypotension due to neuropathy to go hand in hand. I have no other
> complications, ie: kidney/eye damage. I have now seen the dietician
> regarding this and she has referred me to the diabetes dietician who she
> says will have more experience with this. But she gave me a diet sheet,
> which helped, but I have an added problem in that I am lactose intolerant,
> too, so eating out is hard. I have been advised to eat a soft/liquid diet. 
> I
> find this very hard. It was our 20th anniversary on Wednesday and we went
> out for a meal. Most dishes had cheese/cream on..no go! The only option 
> was
> a steak. So I had that. And boy have I paid for it since! (It was good at
> the time, though!)
> I have had some tests, bloods, gastroscopy, barium enema, barium meal,
> basically to rule out any other pathology. The consultant said this left 
> the
> only option of gastroparesis. It does fit. It takes me seven hours to 
> digest
> rice/pasta! And I am not absporbing the nutrients from food leaving me a 
> bit
> anemic. He gave me some fortijuice but I find it ghastly!
> I hope you feel better soon..
> Helen
> .
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