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Re: [IPk] Animas Pump

That's awful.  70 miles is a long way to travel and so unnecessary.


----- Original Message ----- 
From: "Jane Halls" <email @ redacted>
To: <email @ redacted>
Sent: Wednesday, June 21, 2006 11:59 AM
Subject: RE: [IPk] Animas Pump

> On patient choice, I was referred by my GP to Dr Kerr in Bournemouth 
> because my local Diabetic Consultant was putting all sorts of obtacles in 
> my way of becoming a pumper just over 2 years ago. Their main reason was 
> that they only had one trained pump nurse and couldn't take on any more 
> pump patients. So, on John Davis' suggestion, my GP was very happy to 
> refer me. In Bournemouth you get to choose which pump you want. I chose 
> the Animas. The thing is now that "my" local Diabetic Clinic (about 3 
> miles away) is a pump clinic they will only let patients have a Medtronic 
> pump, which has always been the case, and the consultant still refuses to 
> have anything to do with me. I have to travel approx. 70 miles to 
> Bournemouth to see Dr Kerr.
> My PCT agreed to fund my pump and consumables on the basis that my care 
> returned to Reading when the clinic was in a position to look after me! 
> This has never happened.
> Jane
>>Hi Simon,
>>Thanks for your input. The problem that June faces is likely not as simply 
>>solved, sadly. Pump companies and healthcare professionals and PCTs are 
>>all interested in expanding pump therapy to more patients, but the bottom 
>>line may come into play more often than the letter of the guidance. Bang 
>>for the buck (as it were) is key. If a PCT can buy 3 different pumps from 
>>3 companies for the same price as 5 pumps all from the same manufacturer, 
>>which option do you think they want to choose? Which option do you think 
>>the average taxpayer would support? Pump users know that you can't put a 
>>price on improved quality of life but PCT beancounters live by QALYs. 
>>Taxpayers think their money is squandered when pricing structures appear 
>>so inefficient.
>>As I see it, patient choice in pump therapy in the UK is undermined by the 
>>following factors: mainly PCT contracts with companies that mean ONLY one 
>>company's pump is offered because of a tender ("You can have any pump you 
>>like so long as it's a ...."); DSNs' personal preferences, which may be 
>>dicated by familiarity with button-pressing sequences over than any other 
>>factor ("I don't have time to learn how all the pumps work, this one is 
>>easy to teach, why bother looking at the others?"); and ignorance of the 
>>importance of patient choice in the selection of a pump ("What does it 
>>matter, aren't they all basically the same anyway?").
>>Type 1 13 years; MiniMed pumper 7.5 years; Animas pumper 2 years 6 months
>>----Original Message Follows----
>>From: "Simon Isherwood" <email @ redacted>
>>Reply-To: email @ redacted
>>To: <email @ redacted>
>>Subject: [IPk] Animas Pump
>>Date: Tue, 20 Jun 2006 23:50:19 +0100
>> > Cozmo and Animas pumps definitely offer adjustable duration of insulin
>> > board and you can get Animas in the UK. If your consultant is willing 
>> > to
>> > write, "It is important that June have an insulin pump which permits 
>> > her
>> > to adjust the duration of insulin action within the insulin-on-board
>> > calculation feature. This means that she should have a _____ brand,
>> > model insulin pump. A pump that does not allow her to adjust the
>> > of insulin action within the insulin-on-board feature (that is, a
>> > Medtronic MiniMed Paradigm 512) will not meet her needs," you should
>> > some bargaining power - but do ring John Davis about this matter. He
>> > have more insight than I do!
>> >
>> >
>> > Melissa
>> > Type 1 13 years; MiniMed pumper 7.5 years; Animas pumper 2 years 6
>> > glad I never had to argue about the model of pump I got and sorry that
>> > others have had to :|
>>Just a point ref the part above about funding... The consultant does not
>>need to detail that a specific brand is required nor that specific IOB
>>features etc are required, the NICE directive available from John Davis or
>>from the Government Health Board states that funding should be made
>>available once a particular patient meets the criteria set out by NICE,
>>sadly the various PCT's, Trusts, Consultants and diabetic teams and DSN's
>>have taken it upon themselves to interpret the directive in their own way
>>and often to some extreme variances! Funding is funding no matter what 
>>you the patient chooses, there seems to be an awful lot of pressure from
>>PCTs et al to push patients genrally toward Medtronic or alternatively
>>Roche, having met all the companies in the UK and discussed at length the
>>pros and cons of their pumps and having trialled Medtronic (to
>>dissatisfaction particularly on customer service) I have to say that
>>Advanced Therapeutics (Animas) gets highly commended for their customer
>>service and for their pump, Roche come in next for their customer service 
>>am sure the Spirit is fine but seems lacking in the advanced/nice to have
>>features) and Medtronic last and bottom on customer service though the 
>>has good features etc, Cozmo would have been up there but they/Smiths
>>Medical seem not at all committed to the UK - heaven knows why!!
>>I just wish someone would go very public on the PCT 
>>to the NICE directive and perhaps explain in detail the simple terms of 
>>directive, perhaps also the pump manufacturers should remember that whilst
>>they are sales led organisations, patient need/choice is important and
>>perhaps the amount of influence on the PCTs etc that these companies have
>>should be blocked leaving patients to take the choice - sales people could
>>sell to the end user rather than the Trusts.
>>Sorry for the rant!!
>>Hope to be a pumper one day!
> .
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