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RE: [IPk] Animas Pump

On patient choice, I was referred by my GP to Dr Kerr in Bournemouth because 
my local Diabetic Consultant was putting all sorts of obtacles in my way of 
becoming a pumper just over 2 years ago. Their main reason was that they 
only had one trained pump nurse and couldn't take on any more pump patients. 
So, on John Davis' suggestion, my GP was very happy to refer me. In 
Bournemouth you get to choose which pump you want. I chose the Animas. The 
thing is now that "my" local Diabetic Clinic (about 3 miles away) is a pump 
clinic they will only let patients have a Medtronic pump, which has always 
been the case, and the consultant still refuses to have anything to do with 
me. I have to travel approx. 70 miles to Bournemouth to see Dr Kerr.
My PCT agreed to fund my pump and consumables on the basis that my care 
returned to Reading when the clinic was in a position to look after me! This 
has never happened.
>Hi Simon,
>Thanks for your input. The problem that June faces is likely not as simply 
>solved, sadly. Pump companies and healthcare professionals and PCTs are all 
>interested in expanding pump therapy to more patients, but the bottom line 
>may come into play more often than the letter of the guidance. Bang for the 
>buck (as it were) is key. If a PCT can buy 3 different pumps from 3 
>companies for the same price as 5 pumps all from the same manufacturer, 
>which option do you think they want to choose? Which option do you think 
>the average taxpayer would support? Pump users know that you can't put a 
>price on improved quality of life but PCT beancounters live by QALYs. 
>Taxpayers think their money is squandered when pricing structures appear so 
>As I see it, patient choice in pump therapy in the UK is undermined by the 
>following factors: mainly PCT contracts with companies that mean ONLY one 
>company's pump is offered because of a tender ("You can have any pump you 
>like so long as it's a ...."); DSNs' personal preferences, which may be 
>dicated by familiarity with button-pressing sequences over than any other 
>factor ("I don't have time to learn how all the pumps work, this one is 
>easy to teach, why bother looking at the others?"); and ignorance of the 
>importance of patient choice in the selection of a pump ("What does it 
>matter, aren't they all basically the same anyway?").
>Type 1 13 years; MiniMed pumper 7.5 years; Animas pumper 2 years 6 months
>----Original Message Follows----
>From: "Simon Isherwood" <email @ redacted>
>Reply-To: email @ redacted
>To: <email @ redacted>
>Subject: [IPk] Animas Pump
>Date: Tue, 20 Jun 2006 23:50:19 +0100
> > Cozmo and Animas pumps definitely offer adjustable duration of insulin 
> > board and you can get Animas in the UK. If your consultant is willing to
> > write, "It is important that June have an insulin pump which permits her
> > to adjust the duration of insulin action within the insulin-on-board
> > calculation feature. This means that she should have a _____ brand, 
> > model insulin pump. A pump that does not allow her to adjust the 
> > of insulin action within the insulin-on-board feature (that is, a
> > Medtronic MiniMed Paradigm 512) will not meet her needs," you should 
> > some bargaining power - but do ring John Davis about this matter. He 
> > have more insight than I do!
> >
> >
> > Melissa
> > Type 1 13 years; MiniMed pumper 7.5 years; Animas pumper 2 years 6 
> > glad I never had to argue about the model of pump I got and sorry that
> > others have had to :|
>Just a point ref the part above about funding... The consultant does not
>need to detail that a specific brand is required nor that specific IOB
>features etc are required, the NICE directive available from John Davis or
>from the Government Health Board states that funding should be made
>available once a particular patient meets the criteria set out by NICE,
>sadly the various PCT's, Trusts, Consultants and diabetic teams and DSN's
>have taken it upon themselves to interpret the directive in their own way
>and often to some extreme variances! Funding is funding no matter what pump
>you the patient chooses, there seems to be an awful lot of pressure from
>PCTs et al to push patients genrally toward Medtronic or alternatively
>Roche, having met all the companies in the UK and discussed at length the
>pros and cons of their pumps and having trialled Medtronic (to
>dissatisfaction particularly on customer service) I have to say that
>Advanced Therapeutics (Animas) gets highly commended for their customer
>service and for their pump, Roche come in next for their customer service 
>am sure the Spirit is fine but seems lacking in the advanced/nice to have
>features) and Medtronic last and bottom on customer service though the pump
>has good features etc, Cozmo would have been up there but they/Smiths
>Medical seem not at all committed to the UK - heaven knows why!!
>I just wish someone would go very public on the PCT reaction/interpretation
>to the NICE directive and perhaps explain in detail the simple terms of the
>directive, perhaps also the pump manufacturers should remember that whilst
>they are sales led organisations, patient need/choice is important and
>perhaps the amount of influence on the PCTs etc that these companies have
>should be blocked leaving patients to take the choice - sales people could
>sell to the end user rather than the Trusts.
>Sorry for the rant!!
>Hope to be a pumper one day!
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