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RE: [IPk] my diabetic son



hiya jackie,
can u tell me more about delays in the first phase insulin response? is like 
where pools of long-acting insulin can gather then work at a l8r time?

lisa x


>From: "Jackie Jacombs" <email @ redacted>
>Reply-To: email @ redacted
>To: <email @ redacted>
>Subject: RE: [IPk] my diabetic son
>Date: Wed, 24 May 2006 16:04:23 +0100
>
>Hi Lisa
>
>
>The older a child is when they are diagnosed, often the stronger the 
>remission
>period and longer the honeymoon.  With older children (and some younger) 
>once
>insulin therapy is given the beta cells to recover somewhat and the 
>honeymoon
>  can go on for over a year (3 years in some cases). You will often find 
>that the
>pancreas is doing quite a good job and the need for injected insulin is not 
>so
>great.  In some rarer cases, insulin may even be stopped for a short time 
>but
>the need for insulin always returns in weeks or months.  As your son is on 
>very
>tiny doses it does appear that he is making a lot of his own insulin.  What 
>is
>probably happening is that there is a delay in the first phase insulin 
>response
>and then it kicks in plus the injected insulin as well.  May be the 
>hospital
>have a Medtronic CGMS that could be used to access what is actually 
>happening.
>
>I know one parent on this list who has a younger son diagnosed (in very 
>early
>stages of diabetes) in the last year or so who was only taking insulin
>with/after meals and no longer- acting insulin at all.
>
>My daughter 12 has had some severe hypos at night time, so I know how
>frightening it can be.
>
>I have noticed that other parents posting on the UK CWD list who have young
>children who have been very recently diagnosed need little or no insulin
>overnight and tend to just use Novorapid (diluted) with meals.
>
>I do hope that some solution can be found for these problems.  It sounds as
>  though your diabetes team are at a loss to know what to do and are 
>ignoring
>you.
>If you still cant get anywhere with these issues you can ask to be referred
>somewhere else.
>
>Also has your son been tested for thyroid problems and coeliac.  These
>conditions should have been checked for at diagnosis.  Both of these 
>conditions
>  can effect the blood sugar levels and make control difficult. Ask whether 
>these
>test were done when you are next at the clinic.
>
>
>Kind Regards
>
>Jackie Jacombs mum of Sasha aged 12, diagnosed 1999, twin sister Rebecca 
>both
>coeliac, two older girls, Nicki and Danni, husband Terry
>
>
>
> >
> > i do tend to give him a supper (toast or cereal). he can have readings 
>of
> > 28.6 then just drop to under 4.0 within an hour then hes high all the 
>next
> > day
> >
> >
> > >From: Diana Maynard <email @ redacted>
> > >Reply-To: email @ redacted
> > >To: email @ redacted
> > >Subject: Re: [IPk] my diabetic son
> > >Date: Wed, 24 May 2006 13:10:12 +0100
> > >
> > >Hi Lisa
> > >I guess you just have to keep pursuing the issue and make them realise 
>that
> > >it really is a big problem. If the hypos are mainly at night, does he 
>have
> > >anything to eat or drink before he goes to bed? Can you increase the 
>carbs
> > >that he has in the evening at all? Or does this just mean he goes high 
>and
> > >then low?
> > >Di
> > >
> > >
> > >lisa robertson wrote:
> > >
> > >>me again! talking about the mixed insulin. i was under the impression
> > >>myself that this was going to be a step backwards through what i've 
>read
> > >>on the net. i have always been under the assumption that this was the
> > >>honeymoon period. but because the nurse keeps saying that she and the
> > >>doctors are puzzled by these continuous nighttime hypos, and that they
> > >>have never came across this before except in a young boy who was 
>giving
> > >>himself extra injections. many times, since bobby's severe hypo, i 
>have to
> > >>tell them time and time again that no mistakes have been made with 
>insulin
> > >>dosage and that my son hasnt given himself any extra insulin as this 
>is
> > >>what was mention several times at the sospital and by the nurse on 
>various
> > >>phonecalls. 1 thing i am is very neurotic and a bad bad worrier. i'm 
>not
> > >>perfect but over 2 months of mistakes? i dont think so. they have now
> > >>stopped going on about mistakes because the hypos are still ongoing 
>and i
> > >>think they realise now that they were wrong. i do understand where 
>they
> > >>were coming from though. questions had to be asked. i was and still am 
>at
> > >>my wits end. scouring websites, phoning diabetes uk to try and get 
>some
> > >>answers. i even said to my husband that i felt like they would accuse 
>me
> > >>of having munchausens! i am so neurotic at times. very careful with my
> > >>sons stuff. things always have been double checked and bobby is never
> > >>alone when injecting. things were good at first. i really did 
>appreciate
> > >>the help i received but now, i feel i am on my own. i have learnt more
> > >>from diabetes uk than anything.
> > >.
> >
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