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Re: [IPk] Urine testing for kidney function - children/adolescents

I have noted uremic breath on occasion with Grace.

 I brought it up at visits and the first time was told I must have been
mistaken, that i was just mixing it with ketotic breath!.
 After 18months with my husband on dialysis. Unfortunately,  I know uremic
breath! ( though I'm not so sure how to spell it! :O)
Somehow that was just dismissed and I let her as I was looking for other
The next visit I brought it up with a different Doc. I got a comment that
kidney disease is extremely rare in children. I asked for a 24 hr urine and
was told "it wouldn't need that". yet nothing else was offered.

I know kids can get it with stress. the other day I noted it . Grace had had
a lovely day and was full of the joys. I emailed my DSN but rarely get a
reply and none so far,
I've checked Grace's breath randomly since and it wasn't there. Though this
morning it was like rotten meat. Grace eats very little meat and is
virtually veggie.

Any ideas?

Thanks a mill
Mum to Grace 7yrs pumping 19mths
p.s. I'm just reminded of the common sense you gave me when I was in melt
down waiting for the pump and what a help it was. There are a few key people
that I will always have a special sense of gratitude to.... thanks Melissa

----- Original Message -----
From: "Melissa P. Ford" <email @ redacted>
To: <email @ redacted>
Sent: 07 June 2006 19:12
Subject: RE: [IPk] Urine testing for kidney function - children/adolescents
> Marion, I never mind you asking anything! Don't be silly ;)
> Here are just a couple of links regarding kidney function testing of
> children and adolescents with diabetes. They might be all you need at the
> moment, certainly if you want more info I can help you find some.
> http://tinyurl.com/s2f7a
> ISPAD guidelines:
> highlight: Recommendation of age for microalbumin screening
> Prepubertal onset of diabetes: 5 years after onset or at age 11 years, or
> puberty (whichever is earlier), and annually thereafter
> Pubertal onset of diabetes: 2 years after onset, and annually thereafter
> If you feel your team might not take seriously your concerns regarding
> Alex's kidneys, feel free to print off the ISPAD document and take it to
> them. Any diabetologist or DSN ought to have a strong case prepared if he
> she wishes to object to an ISPAD consensus document.
> Melissa
> Type 1 13 years; MiniMed pumper 7.5 years; Animas pumper 2 years 5 months
> ----Original Message Follows----
> From: "Marion Malik" <email @ redacted>
> Reply-To: email @ redacted
> To: <email @ redacted>
> Subject: RE: [IPk] Urine testing for kidney function
> Date: Wed, 7 Jun 2006 15:50:49 +0100
> Melissa,
> Alex is nearly 12 and has had D for 9 years, other than the dip stick
> test she has her standard annual bloods done, before being diagnosed she
> had a kidney scan etc as they thought there was a problem and I would
> like to mention this test you mentioned.  I take it that they will know
> what it is but do you think they will think I'm being over sensitive?
> Hope you don't mind me asking
> Marion
> .
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