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Re: [IPk] Letter in Balance

Jeremy In many ways I agree with you and I know that that effects of 
diabetes destroyed our family. My mother could never cope with the 'shame' 
of having a diabetic child. When my brother was diagnosed at the age of 9 
years (nine years after me)she was devastated and really had to cope alone 
as there were so few children diagnosed with DM then. Yes and there are 
times when I wished I had never been born because of the 'curse'of diabetes 
especially when not allowed to do things that I wanted to do. Over the years 
I have seen so many improvements and changes in care. I had never thought 
that I was selfish before by wanting to have children but it was thanks to 
the care and encouragement of the team I was under that I had them. I feel 
more guilty now about much I cost the NHS in free prescriptions over the 
years. I did investigate the possibility of my children inheriting type 1 
diabetes they have both been in the screening trial for prevention of 
diabetes and both their tests were negative  but that was more by luck than 
judgement. Despite all the hard times we as diabetics have we can bring a 
lot to this world I feel sure that I entered a caring profession because 
even at 18 I had insight through personal experience and wanted to enhance 
the care that people get. Nobody knows what is going to happen to any of us. 
Yes diabetes can be a devastating condition along with the horrendous things 
that it can do to our bodies but we can take control and I do not think it 
is right for some arrogant old man to pass judgement on any of us for 
something that may not even happen sorry this is so long Carmel

>From: Jeremy Grainger <email @ redacted>
>Reply-To: email @ redacted
>To: email @ redacted
>Subject: Re: [IPk] Letter in Balance
>Date: Fri, 16 Jun 2000 12:53:52 +0100
>At 16-06-00 12:03 +0200, you wrote:
>>Hi Robert -
>>You and Jeremy certainly offer different views from others of us here.
>> >Wake up! diabetes
>> >is a devastating disease that maims and kills (slowly),
>>Life itself is a devastating disease, that kills us all in the end -
>>whether or not we have diabetes. And you cannot "purify" the gene pool and
>>wipe out Type 1 diabetes by not reproducing. The pattern of inheritance is
>>far too complex, and not even understood.
>>So, while I agree that diabetes is devastating disease which I carry with
>>me all the time, I do not accept that it would be better if I had never
>>been born, which is (I think) the logical conclusion of what you and 
>>are suggesting.
>Hi John,
>I do not think you understood the point I was making. I said people's views
>about diabetes (from within the diabetic community) vary, depending upon
>their own experience of it. For example, I would not have been born had it
>not been for diabetes and doctors' then understanding of it. My parents had
>lost a two year old child, due to diabetes, they only wanted two children,
>the child that died was the second child, after losing him in this way they
>then did thorough checks with the medical community (diabetic specialists)
>as to whether if they had another child he/she would have an increased
>chance of getting diabetes. They were told no, there was no genetic
>connection, so they then had me and at almost the same age I got diabetes.
>They had lived through a death caused to an infant by diabetes and (like
>myself now) did not want to give birth to another human being (if I am
>one?) if there was an increased chance of diabetes.
>Diabetes has quite literally ruined my life in more ways than I can explain
>in an email. I did not say that a diabetic person should not have any
>offspring, but that if the chance of inheritance was 100% I would think it
>very selfish to have a child, just because I so wished, if such person was
>to go through what I have experienced from infancy. If I had not got
>diabetes until I was in my twenties my views might be very different. To be
>honest I would not dream of having a child unless the chance of inheritancy
>was less than 40% (which it is). The affect diabetes had on my whole family
>was such that my brother and his wife had checks done and asked questions
>about diabetes before they considered having children, which they did and
>who are now in their late teens.
>But I must stress that if you think I am suggesting it would have been
>better if you had not been born, the reasons for that would not be because
>you have diabetes. However there have been several points in my life when I
>have wished I had not been born, most of those moments were the result of
>We all have different experiences and feelings, and thank goodness for
>that, if we were all to think the same way the pumpers group would not
>exist and which would be the chosen method of thought - perhaps that of the
>national front, what would life be like then? Some people might choose to
>treat diabetes in the same way as leprosy was in biblical times, even then
>that would hardly have reduced the diabetic population because most type1
>diabetics do not have any ancestors who had diabetes (type1) and those that
>get type2 normally do so after their child bearing age.
>Please note what I said about people's views being (greatly) dependant upon
>their own experience.
>for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
>help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml

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