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Re: [IPk] Letter in Balance
At 16-06-00 12:03 +0200, you wrote:
>Hi Robert -
>You and Jeremy certainly offer different views from others of us here.
> >Wake up! diabetes
> >is a devastating disease that maims and kills (slowly),
>Life itself is a devastating disease, that kills us all in the end -
>whether or not we have diabetes. And you cannot "purify" the gene pool and
>wipe out Type 1 diabetes by not reproducing. The pattern of inheritance is
>far too complex, and not even understood.
>So, while I agree that diabetes is devastating disease which I carry with
>me all the time, I do not accept that it would be better if I had never
>been born, which is (I think) the logical conclusion of what you and Jeremy
I do not think you understood the point I was making. I said people's views
about diabetes (from within the diabetic community) vary, depending upon
their own experience of it. For example, I would not have been born had it
not been for diabetes and doctors' then understanding of it. My parents had
lost a two year old child, due to diabetes, they only wanted two children,
the child that died was the second child, after losing him in this way they
then did thorough checks with the medical community (diabetic specialists)
as to whether if they had another child he/she would have an increased
chance of getting diabetes. They were told no, there was no genetic
connection, so they then had me and at almost the same age I got diabetes.
They had lived through a death caused to an infant by diabetes and (like
myself now) did not want to give birth to another human being (if I am
one?) if there was an increased chance of diabetes.
Diabetes has quite literally ruined my life in more ways than I can explain
in an email. I did not say that a diabetic person should not have any
offspring, but that if the chance of inheritance was 100% I would think it
very selfish to have a child, just because I so wished, if such person was
to go through what I have experienced from infancy. If I had not got
diabetes until I was in my twenties my views might be very different. To be
honest I would not dream of having a child unless the chance of inheritancy
was less than 40% (which it is). The affect diabetes had on my whole family
was such that my brother and his wife had checks done and asked questions
about diabetes before they considered having children, which they did and
who are now in their late teens.
But I must stress that if you think I am suggesting it would have been
better if you had not been born, the reasons for that would not be because
you have diabetes. However there have been several points in my life when I
have wished I had not been born, most of those moments were the result of
We all have different experiences and feelings, and thank goodness for
that, if we were all to think the same way the pumpers group would not
exist and which would be the chosen method of thought - perhaps that of the
national front, what would life be like then? Some people might choose to
treat diabetes in the same way as leprosy was in biblical times, even then
that would hardly have reduced the diabetic population because most type1
diabetics do not have any ancestors who had diabetes (type1) and those that
get type2 normally do so after their child bearing age.
Please note what I said about people's views being (greatly) dependant upon
their own experience.
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