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Re: [IPk] Letter in Balance

At 16-06-00 12:03 +0200, you wrote:
>Hi Robert -
>You and Jeremy certainly offer different views from others of us here.
> >Wake up! diabetes
> >is a devastating disease that maims and kills (slowly),
>Life itself is a devastating disease, that kills us all in the end -
>whether or not we have diabetes. And you cannot "purify" the gene pool and
>wipe out Type 1 diabetes by not reproducing. The pattern of inheritance is
>far too complex, and not even understood.
>So, while I agree that diabetes is devastating disease which I carry with
>me all the time, I do not accept that it would be better if I had never
>been born, which is (I think) the logical conclusion of what you and Jeremy
>are suggesting.

Hi John,
I do not think you understood the point I was making. I said people's views 
about diabetes (from within the diabetic community) vary, depending upon 
their own experience of it. For example, I would not have been born had it 
not been for diabetes and doctors' then understanding of it. My parents had 
lost a two year old child, due to diabetes, they only wanted two children, 
the child that died was the second child, after losing him in this way they 
then did thorough checks with the medical community (diabetic specialists) 
as to whether if they had another child he/she would have an increased 
chance of getting diabetes. They were told no, there was no genetic 
connection, so they then had me and at almost the same age I got diabetes. 
They had lived through a death caused to an infant by diabetes and (like 
myself now) did not want to give birth to another human being (if I am 
one?) if there was an increased chance of diabetes.
Diabetes has quite literally ruined my life in more ways than I can explain 
in an email. I did not say that a diabetic person should not have any 
offspring, but that if the chance of inheritance was 100% I would think it 
very selfish to have a child, just because I so wished, if such person was 
to go through what I have experienced from infancy. If I had not got 
diabetes until I was in my twenties my views might be very different. To be 
honest I would not dream of having a child unless the chance of inheritancy 
was less than 40% (which it is). The affect diabetes had on my whole family 
was such that my brother and his wife had checks done and asked questions 
about diabetes before they considered having children, which they did and 
who are now in their late teens.
But I must stress that if you think I am suggesting it would have been 
better if you had not been born, the reasons for that would not be because 
you have diabetes. However there have been several points in my life when I 
have wished I had not been born, most of those moments were the result of 
We all have different experiences and feelings, and thank goodness for 
that, if we were all to think the same way the pumpers group would not 
exist and which would be the chosen method of thought - perhaps that of the 
national front, what would life be like then? Some people might choose to 
treat diabetes in the same way as leprosy was in biblical times, even then 
that would hardly have reduced the diabetic population because most type1 
diabetics do not have any ancestors who had diabetes (type1) and those that 
get type2 normally do so after their child bearing age.
Please note what I said about people's views being (greatly) dependant upon 
their own experience.


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