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Re: [IPk] Pump clinic

Hi Mary

I am so sorry for what you have gone through today.  It is very difficult 
when we have a clash of personality with our medical carers.  I know but 
found the consultant was on my side.  I agree about complaining and taking 
this further.  Whatever you do, don't give in.  You could also contact John 
Davis and see what he thinks.  He knows the staff at many of out hospitals. 
One very important point I would like to make is that the Diabetic Framework 
is designed for a consultation to be two-way.  They should not dictate but 
work out with you a correct solution and what is best for you to do.  Read 
the Framework to get the correct words.  I think it is point 3 but I could 
be wrong.  I would look it up but I think it is about time I gave in and 
went to bed.  I have been working on my OU work and got too involved.

Try to relax and calm down, you will be able to think more clearly but I 
understand why you are so incensed.

----- Original Message ----- 
From: "Clare Price" <email @ redacted>
To: <email @ redacted>
Sent: Tuesday, July 01, 2008 7:06 PM
Subject: Re: [IPk] Pump clinic

> Hi Mary,
> So sorry you've had such a bad time of things today.  If I was you I 
> would write to the Diabetic Consultant and ask their opinion on what  you 
> are doing and trying to achieve with your pump, and hopefully get  them on 
> your side and perhaps sort this out.  I am at this very  moment writing to 
> my Diabetic Consultant about a pump issue I have,  that my DSN doesn't 
> seem able to sort out for me.  Some days,  everything feels like a fight. 
> Keep your chin up Mary, and at the  very least your posting doesn't make 
> me feel alone in my quest for  getting things put right, so thanks for 
> that anyway.  I find letters  get a more positive response than any phone 
> call or face-to-face  talk, might be worth a try.  Best wishes to you,
> Clare
> (Type 1 for 39 years, 9 months pumping, Paradigm 522)
> On 1 Jul 2008, at 18:40, Mary Moody wrote:
>> Had a pretty bad experience today. Had a lot of not nice things  said to 
>> me.
>> I am considering throwing in the towel because I just can't take  any 
>> more of
>> this - despite the obvious benefits. All I wanted was some advice re a
>> couple of things and DSN got right off the point, wouldn't listen,  told 
>> me I
>> was obsessed, didn't have the personality for a pump (I thought  pumps 
>> were
>> to treat diabetes not personality disorders), etc, etc, etc. I was  then 
>> told
>> that I looked like "a frightened rabbit". No wonder - I have never, 
>> every in
>> my whole life been spoken to in the way I was today. I tried to  take it
>> cheerfully, but when I left I was so upset my BG was up to 12.  There 
>> were
>> also loads more uncomplimentary comments.
>> I feel my choices are:
>> -          complain - can't win that one because they'll just say I  was 
>> an
>> unco-operative patient.
>> -          give up the pump (in which case she has won)
>> -          spread the word around which I'm doing anyway
>> -          carry on doing what she says and not get things properly in
>> control
>> -          move to another Health Board area - but that's pretty
>> inconvenient and I can't afford it
>> Patients are now no longer able to do anything without her sayso  because 
>> we
>> are going to have to upload our pumps to the computer at every  clinic 
>> visit
>> so that she can see everything we have done . Not a problem when  you're
>> working with rational people . She is going to buy every patient a 
>> Carelink
>> cable except me because she says I can't cope with it. I feel so 
>> insulted.
>> Just had to get things off my chest. Thanks for listening.
>> Mary Moody
>> .
> .
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