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[IPk] A big MOAN

Hello everyone

I have just got the letter out again about the funding refusal which I posted 
earlier today and I am now very annoyed because there are things in the 
 letter which I had obviously missed. I think I just read about the refusal and
didn't actually absorb anything else.

Well, as part of the price of the pump, training comes with it.  Danielle's 
Consultant was asked by me if he was prepared to still look after Danielle if 
she was on a pump and he accepted.  His diabetes team also agreed to training 
 on the ward if Danielle should ever be admitted. The last time I saw them they
told me that they were happy with the training and the Consultant had 
 actually told me that he was in favour of the pump for Danielle. The letter I
received today expresses a concern that Danielle's diabetes team do not feel 
they have sufficient expertise to be able to initiate treatment and to provide 
ongoing support.  The letter then goes on to say that the NICE guidelines are 
clear in that therapy should only be initiated by a trained specialist team.  
Does this mean now that we are going to have to shift hospitals after all?  I 
am feeling really fed up with a system of professionals who have no experience 
of living with the disease.

MOAN over for now.  Nightcap in a glass by my side.  Working hard at the 
moment to keep my temper under control.

Thanks for reading.

Mum to my little angel who "doesn't feel diabetic anymore"
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