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Re: [IPk] pump fitting
My daughter, Nicola, is 10years old and has been using a
Minimed pump for the last 7 months.
Yes, it is very difficult to find a hospital with a knowledge
of pumps, but don't give up !
Our hospital have very little knowledge of Insulin Pumps too,
but in November last year there was nothing else left to try for her so after
persuading them that this was what I wanted to try ,they gave in and it all went
Nicola went into hospital for 3 days to be put on the pump by
the Minimed consultant (NOT HER PAEDIATRIC CONSULTANT!)
in fact, he was on leave that week. Peter, the consultant was
with us the whole time, advising ,educating and supporting us.Himself a pump
user, he could answer any questions we had and believe me, there were
When we came home we had complete backup from Peter and he was
only ever a phone call away for any of our many queries, and still
Our hospital still cannot support me (through lack of
knowledge) and I am at present educating our own G.P. as he has now said that he
wants to be involved and give us as much support as he can.
So don't take NO! for an answer, push as hard as you can to
get what you need.
---- Original Message -----
Sent: 30 June 2000 17:34
Subject: [IPk] pump fitting
The last message I sent failed, so here we go
I am trying to get a pump fitted for my daughter eho is 11
yrs old, and it seems that there is no where experienced enough in the UK to
do this. Is this correct? She also needs a tonsillectomy done and although
Great Ormond St.have offered to do this via Portland Hospital they have
advised us to take my daughter to Yale Hospital, USA. We are at present trying
to set up a schedule in Baltimore with Johns Hopkins Hospital, but we thought
UK would be less travelling for her and as my parents are still in Wales it
would be an added bonus for her after her surgery.
Regards AMY ( Mother to Maytha dx. 3/00