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Re: [IPk] Dave's Missing Message etc.

>After all, thieves shouldn't complain about their booty.  The real problem
>was when I had a needle without tubing and tried to change it - pull out old
>needle, insert new needle and attach tubing or not. That happened when I was
>in Edinburgh for an extended weekend. Fortunately, I had an ancient Minimed
>infusion set in the car, which made me remember why I like the tender so

Yes... been there as well. I was off to England for 2 weeks, and found I
only had 2 Tenders left in the store cupboard (well, the pile of junk in
the corner of the room...) I had to dig out an old box of evil SofSets I'd
stashed away for emergency use. It took up most of the space in my suitcase
and 2 weeks of discomfort ensued :(

>I was talking to my doctor in at the clinic in Edinburgh on Monday and the
>article came up. He said that there had been "quite a few" questions about
>the pump and asked if he could give me e-mail address out.

Do give people the joining page for this list:

>So as far as the
>article went it had one very important effect - people who knew nothing
>about pumps before are now asking questions about them. I think we need to
>be careful about recommending them to everyone - there are disadvantages,
>the most important probably being that the pumper needs to understand more
>about the disease. While I agree that everyone should learn as much as they
>can, many persons don't.

Interestingly, a similar concern cropped up when I was talking to my
specialist in Bristol. Plans are now afoot to create some sort of
formalised diabetes education program: possibly an NVQ in Practical Type 1
Diabetes. Given that the outcome of this chronic disease is closely linked
the patient's own disease management ability, it would be very beneficial
to take the training side out of the underfunded, overstreched clinics and
into the education system. Say 2 evening classes a week for a year. Then
you sit an exam, and get formal recognition of all you know. Teach 'em all
they could possibly need to know - and more - about the human body,
metabolism, the digestive system, how insulin works, all different types of
insulin, why the current treatment methods don't work sometimes and so on.

Once the patient is knowledgable, they are empowered. And once empowered,
they can ask searching questions as to why they're on one type of insulin,
when another might suit them better.

And that could have a very bad effect on a person
>not pumping, even worse on a pumper.  If someone has good control with a pen
>or shots and is happy with that, then they really shouldn't change. If it
>works, don't fix it (I wish I followed that more with computers!!). On the
>other hand, if a person tries with everything else and still can't get good
>control, or is unhappy with other kinds of therapy, then the pump should be
>available. The last thing we need is a patient getting a pump who then has
>serious problems from it - the NHS would never allow them then.

Hmm... There are certainly many ways to treat diabetes - different insulins
and different strategies. However, for each person there exists an optimal
strategy and doctors are paid a lot of money to ascertain the best strategy
for each person. Clearly this will depend on the patient's ability,
lifestyle, goals and ultimately the cost they associate with the
inconveniences of each strategy. You can argue about whether 10, 20 or 80%
of people would fare better on pumps, but ultimately the NHS doesn't offer
it at all!

(using a new email package... hope I haven't mucked anything up!)
mailto:email @ redacted

mailto:email @ redacted

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