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Re: [IPk] diabetes question, not pump related



 Carb counting isn't taught initially. Most people who do DAFNE do it several
years post diagnosis.

 A safe - recognise Highs & Lows, inject, test, eat sensibly, how to treat
hypos... Is the beginning.



 > On 30 Jan 2014, at 16:44, "Hayward, Clare (SUT)" <email @ redacted>
wrote:
> 
> Yes, it is scary Christine
> 
 > I'm amazed at the doctor first of all in my example who didn't just do a
finger
> prick test to RULE diabetes out
> With those 3 major symptoms, she could have been on her way to hospital
 > earlier, instead she was left to go home until she was admitted as an
emergency
> and hooked up to drip and very poorly (so I've been told)
> 
> OK docs don't know everything but..... with those 3 things and of course she
> was desperately tired and ill andhad lost loads of weight!
> 
 > And yeah, just seems so hit and miss as to what care you get, what
information!
> How can they not give you an ALFFI/DAFNE booklet or something?
> Isn't one of the (many, I know) first things explained that from now on you
 > need to count carbs in everything - they do that in bl**dy diet classes!
You're
> told what to count and given a booklet containing all the amounts! Off you go
> and start counting or else you don't lose weight.
> 
> 
> 
> 
> -----Original Message-----
 > From: email @ redacted [mailto:email @ redacted] On Behalf
Of
> Christine Bousfield
> Sent: 30 January 2014 16:11
> To: email @ redacted
> Subject: Re: [IPk] diabetes question, not pump related
> 
> Why is there such ignorance about type 1?
> It really is shocking
> I had a bad Tia a couple of weeks ago and stayed on the pump There was no one
> around who knew anything at all about type 1 let alone insulin pumps for at
 > least 8 hours and the only briefly My son daughter and husband were very
worried
> I am about to make a plan in case it happens again Any experience out there?
> Christine
> .ps stroke treatment excellent!
> 
> Sent from my iPhone
> 
>> On 30 Jan 2014, at 15:13, Diana Maynard <email @ redacted> wrote:
>> 
>> Hi Clare
>> I'm afraid it's pretty normal (in some hospitals, though not all). At least
> she's on MDI and testing though (many people are still put on twice daily
> pre-mixed insulin when first diagnosed!). A lot of hospitals do work on the
 > basis of keeping things simple at first, especially with children, though
some
 > are more enlightened. It sounds as if she is at least coming to you for help,
so
> personally I would just explain some basic principles to her (such as WHY she
 > needs to eat carbs before PE, and therefore why if her BG is high, she
doesn't).
> Obviously you don't want to contradict her medical team, or stand on anyone's
> toes, but I would certainly explain some simple things to her if she comes to
> you.
>> Di
>> 
>> 
>>> On 30/01/14 14:07, Hayward, Clare (SUT) wrote:
>>> Hi all
>>> 
>>> Hope you don't mind me posting something here that's not pump
>>> related but
>>> diabetes related as I wanted to get your thoughts/advice/take on
>>> this
>> situation:
>>> A young girl at school (14 years) was diagnosed 2 weekends ago, in
>>> hospital
>> on
>>> a drip, quite poorly I believe (get this - doctor knew she'd lost a
>>> lot of weight, she was going to the toilet a lot, drinking a lot) -
>>> he didn't do a
>>> finger prick test!! They waited over a week to go to surgery to get
>>> a blood
>> test
>>> done!!
>>> 
>>> Anyhow, moving on - she's back in school this week
>>> She's been put on 4 injections of 4 units per day, assume they're sorting
> her
>>> out
>>> At school today running a bg of 17 after breakfast but hospital won't do
> any
>>> changes (yet). She also hasn't been told about exercise, carb
>>> counting or anything like that
>>> 
>>> She had double pe today.
>>> She's been advised to snack BEFORE PE but if she's at 17, a) she'll
>>> go even
>>> higher and b) not really safe to exercise being that high but nobody seems
> to
>>> have told her
>>> 
>>> Is this normal way of teaching about diabetes when you first get it?
>>> Are they just doing one thing at a time and getting her used to it
>>> before
>> they
>>> start mucking around with doses, how could you not be carb counting
>>> to even vaguely match insulin?
>>> Am I missing something? Ijust feel that I had such good care when I first
> got
>>> it and it seemed although I was only 12, a great deal of things were
>> explained
>>> and gone over. I know I spent over 2 weeks in hospital and nowadays
>>> they
>> can't
>>> afford that but ..... am I hopelessly outdated?
>>> I know I don't know all the facts and what she's been promised
>>> she'll learn
>> but
>>> ...............
>> .
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