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Re: [IPk] Re: Vit D Deficiency



 I don't know whether it's carelessness or ignorance, but some hospitals pay
less attention than others. I have consequently become far less trusting of
clinicians generally & more appreciative of individuals who have treated my
family, friends & me well.



> On 3 Jan 2014, at 15:01, <email @ redacted> wrote:
> 
> Yes Belinda. Do you find they ration testing?
> 
> Christine
> 
> 
> 
> Sent from Windows Mail
> 
> 
> 
> From: Belinda Washington
> Sent: bTuesdayb, b31b bDecemberb b2013 b08b:b28
> To: email @ redacted
> 
> Hi Christine,
> 
> If you don't test, like Kings & St Mary's; you don't find.  
> 
> Belinda
> 
>> On 31 Dec 2013, at 05:45, Christine Bousfield <email @ redacted> wrote:
>> 
>> Hi belinda
>> Surprising what they eventually find isnt it?
>> This must be what is meant by sub-clinical!
>> 
>> 
>> Sent from my iPhone
>> 
>> On 10 Dec 2013, at 07:52, Belinda Washington <email @ redacted>
>> wrote:
>> 
>>> That sounds awful Christine!
>>> 
>>> I was not tested by my GP, by St. Mary's Paddington, nor by
> King's.
>>> 
>>> My maternal grandmother has osteoporosis & my mother has
> hypothyroidism & my
>>> sister is coeliac. I told all of them that my cousin made me tip
> my head back
>> &
>>> said there was something wrong with my thyroid.
>>> 
>>> I got to Chelsea & Westminster & said "nobody listens to me
> but...", was
>> asked
>>> to tip my head back again & was sent for bloods & an ultrasound
> (done within
>> 30
>>> mins).
>>> 
>>> I have thyroid antibodies, Graves' disease, normal thyroid
> function, but I
>> had
>>> low calcium & vitamin D levels. I'm on supplements now.
>>> 
>>> 
>>> 
>>>> On 10 Dec 2013, at 05:54, Christine Bousfield
> <email @ redacted> wrote:
>>>> 
>>>> Hi ingrid
>>>> I was diagnosed a while ago with low vit d and take supplements
> etc I have a
>>>> lot of muscle weakness and clumsiness in my legs still, diagnosed
> as
>>>> neuropathy.what level is ideal for vit d, do you know?
>>>> There seem s to be controversyover this
>>>> Best
>>>> Christine
>>>> Ps I have numerous other complications as a result of 41 years'
> type 1
>>>> 
>>>> Sent from my iPhone
>>>> 
>>>>> On 10 Dec 2013, at 02:58, Ingrid Glass
> <email @ redacted> wrote:
>>>>> 
>>>>> Hi Hannah,
>>>>> 
>>>>> I have general muscle weakness and was noticing worsening
> tremors in my
>>> legs,
>>>>> particularly after I took up yoga again a few years' ago, and
> kept asking
>> my
>>>>> GP about it. Once I'd mentioned it to my diabetes consultant,
> she got me
>>>>> tested for vit D deficiency & it was discovered I had extremely
> low levels.
>>> I
>>>>> was put on a very high dose liquid form for a few weeks followed
> by high
>>> dose
>>>>> tabs for maintenance. Over these last 2-3 years we've settled on
> 20,000
>>> units
>>>>> per week just to keep my levels within the normal range.
>>>>> 
>>>>> Alas my symptoms did not improve after vit D levels back to
> normal and I
>> was
>>>>> sent to the Neurological Hosp in the end for tests and a
> diagnosis (of
>>>>> Orthostatic Tremor which may or may not get worse). I do feel
> embarrassed
>> in
>>>>> yoga when my legs shake uncontrollably in certain postures but
> at least it
>>>>> wasn't MS or Motor Neurone or....
>>>>> 
>>>>> I so hope you notice improvement from the vit D and it isn't
> anything more
>>>>> than that.
>>>>> 
>>>>> Ingrid
>>>>> 
>>>>> 
>>>>> Date: Mon, 9 Dec 2013 15:49:13 +0000
>>>>> From: hansicle <email @ redacted>
>>>>> Subject: [IPk] Vit D deficiency
>>>>> 
>>>>> Hi all hope everyone is well.
>>>>> 
>>>>> Im some 6 months post partum and im still not feeling great
> weakness,
>>>>> fatigue,
>>>>> pins and needles, muscle pain and near constant dizziness. Was
> hoping it
>> was
>>>>> jus
>>>>> getting over my awful birth but the symptoms havent gone
> anywhere.B
>>>>> 
>>>>> Anyway the hosp have taken it fairly seriously my bloods have
> come back
>>>>> extremely deficient in vit D.
>>>>> 
>>>>> Jus wondered anyone else had this? B I have to go to docs
> tonight for an
>>>>> injection then prescription supplements. Am hoping this is the
> cause of my
>>>>> symptoms as I have been rather concerned its something serious.
> The hosp
>>> have
>>>>> also referred me for an adrenlin test and to the neurological
> dept for
>>>>> balance
>>>>> tests will b asking abt those B In a while.
>>>>> 
>>>>> Slightly annoyed as apparently all pregnant and breastfeeding
> are now
>>>>> supposed
>>>>> to take a vit D supplement but I have never been advised of
> this.
>>>>> .
>>>>> Follow us at https://www.twitter.com/insulinpumpers
>>>>> Make a long URL short at http://type1.org
>>>> .
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