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Re: [IPk] Problems

Hi Caroline

Please, please don't give up.  I know exactly how you feel.  Only recently,
for no apparent reason I was getting really high BG's (20++) with high
ketones whilst using my pen.  There didn't seem to be any reason, no
infections or poor sites etc but under the care of my DSN at Guy's who
suggested that I first of all scrap all my insulin I was using and then
changing back to using syringes I managed to get things back under control
after a while.

Maybe you need "fresh" eyes looking at your case!  I remember something
similar happening to me when I was in my teens at secondary school.
Unfortunately then I was under a different hospital (since closed down) and
the doc's there didn't seem to notice or care.  It was only through my mum's
perseverance and a very good GP that we were transferred to Guy's.

IDDM nearly 26 years starting on pump this week!

----- Original Message -----
From: "Caroline Batistoni" <email @ redacted>
To: <email @ redacted>
Sent: Monday, January 20, 2003 10:26 PM
Subject: [IPk] Problems

> Insulin Pumpers is made possible by your tax deductible contributions.
> Your donation of $10, $25, or more... just $1 or $2 per month is
> needed so that Insulin Pumpers can continue to serve you and the rest
> of the diabetes community. Please visit:
>     http://www.insulin-pumpers.org/donate.shtml
> Your annual contribution will eliminate this header from your IP mail
> Hi all,
> This is a highly negative message, and I apologise for that. Toady I was
> officially disconnected, because despite the best efforts of myself and my
> diabetes team, including last weekend spent in hospital and many hours in
> diabetes centre, we have been completely unable to gain any sort of
> reasonable control over my diabetes. (Average blood sugar in last two
> is around 20) I think disconnection is probably for the best as I've
> so disillusioned with the lack of control, and the fact that doses of up
> 30 units of humalog  at at time are having little impact (30 units would
> probably normally kill me), that I've become disillusioned with diabetes
> full stop and I suppose I'm not really up for paying the attention
> The reason for coming off the pump is to try and get me stabilised,
> sending me back into DKA.
> Some of you may recall that this is not the first time that this has
> happened to me. What I was really wondering is does this happen to anyone
> else? I've been running basals at up to 5 times the normal levels and
> regular (2 hourly) large boluses of humalog, and still had high sugars.
> Surely this can't be normal?
> I'm sure I'm not the first person to say this, but I really don't want to
> "do" diabetes anymore. I just feel as though I can't do it. I try hard and
> have a ludicrous lack of control. That makes me wonder what the point of
> the effort is. Sorry for the negativity, but I'm fed up and feel so
> that right now I can't help it.
> Caroline
> IDDM 19+ years Pumper 9 months (but not right now!)
> P.S I'm now using Glargine, and I hate the pen I've been given. The
> cartridge *seems* to fit my Humapen (Lilly) but I'm not sure whether to
> trust it. Anyone used glargine in anything other than an OptiPen?
> ----------------------------------------------------------
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