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Re: [IPk] Re: [reply to Ingrid cont



Carmet,

I haven't seen my GP for a while (my old one who I am sure would have 
supported me has left to go back into research so I am seeing another one 
who I don't get along with particularly well).  Last time I saw her she 
roused on me for 1) asking for HbA1c tests without a dr's go-ahead and 2) 
wanting to see a private endocrinologist (she told me if I kept on switching 
specialists I would get confused!!!!!), in order to get my DM life back on 
track!

But I think it is the best option (to hope my GP will refer me). My dad who 
is a dr in Oz got the names of endos here, and Prof Amiel was actually top 
of his list so I am obviously pretty keen to see her, and it seems from the 
research I have done on the net that she is up to speed with newer 
treatments for DM.

I know other people on this list have seen Dr Press, but he didn't rank so 
highly by the other drs who gave my dad some names.  At least he is private 
though, so if I can't see Prof Amiel I will go see Dr Press.  It is just a 
pity that there are no decent specialists at Mile End who have any 
experience in the newer insulins or pumps!

Thanks for your info,

I will let you know how I get on,

Ingrid


>From: "Carmel Matthews" <email @ redacted>
>Reply-To: email @ redacted
>To: email @ redacted
>Subject: [IPk] Re: [reply to Ingrid cont
>Date: Tue, 15 Jan 2002 13:20:34 +0000
>
>I dont know that Bart's is the optimal clinic for pump therapy but they 
>have
>benn supportive and I think that if you want to go along the pump route 
>then
>the best would be King's. Keep pestering your GP, inform him of the 
>research
>you have done and why you want to proceed along the route of a centre of
>excellence all babies are precious but the baby of a diabeteic mother has 
>to
>work so hard to assure the safety and well being of her newborn child.Do 
>you
>have a GP that you get along with in your practce? The new insulins may not
>yet be licensed for peregnancy, I know Humalog wasn't but maybe now. The
>hardest part is getting someone to listen to you Dont give up  Carmel
>
>>From: "Ingrid Morrow" <email @ redacted>
>>Reply-To: email @ redacted
>>To: email @ redacted
>>Subject: Re: [IPk] Getting out (was )7 year old male scared of
>>needles????????
>>Date: Tue, 15 Jan 2002 09:35:43 +0000
>>
>>Pat,
>>
>>This is the first time I have come across personally postcoded medicine.  
>>I
>>even asked Kings' if there are any private specialists, and they said 
>>there
>>is only one who is now retired!  I wouldn't want to see someone so last in
>>the medical career anyway, I doubt very much he would even have heard of
>>pumps.
>>
>>I have been getting higher morning readings and asked my specialist at 
>>Mile
>>End about changing to another insulin.  His view was that because the rest
>>of the day was OK he wasn't inclined to change my longacting just for one
>>part of the day.
>>
>>Does that sound reasonable to you?????
>>
>>I think not.  It is just unfortunate that some areas have more modern
>>specialists than others (and I am not just talking funding here, but the
>>option to even try something newer), and because I live in the "wrong" 
>>area
>>I don't get the option to even try.
>>
>>But I am not the first to run across this problem, and I know I won't be
>>the
>>last.
>>
>>I guess I will just have to sound out the GP....
>>
>>
>>Cheers,
>>
>>Ingrid
>>
>>
>>>From: Pat Reynolds <email @ redacted>
>>>Reply-To: email @ redacted
>>>To: email @ redacted
>>>Subject: [IPk] Getting out (was )7 year old male scared of
>>>needles????????
>>>Date: Mon, 14 Jan 2002 18:08:09 +0000
>>>
>>>Dear Ingrid,
>>>
>>>
>>>My feeling is that, underneath these lie the real reasons. Why do you
>>>need to improve control before getting pregnant?  Because it's not good
>>>now (if you have hba1cs in the non-diabetic range, never have a hypo,
>>>and never worry about when and what someone's going to serve you for
>>>dinner, then you have perfect control).
>>>
>>>Focus on what's wrong now: too many hypos?  poor control during illness?
>>>inability to exercise without loosing control?  Then say why you think
>>>one of the new long-acting insulins or a pump might help.
>>>
>>>What impact does that poor control have short-term and long-term?
>>>
>>>What changes have been made to your treatment to try and permit you to
>>>get good control?  Only if your current specialist has at least tried
>>>some of the options, does being referred out of town seem reasonable (or
>>>if the specialist has said 'I don't know what else to do'.
>>>
>>>I'm afraid I don't know what your chances are of being treated out of
>>>area.  I was referred out by a very sympathetic gp, who agreed that the
>>>current specialist was only suggesting things which I'd already tried
>>>and proved didn't work.  My GP didn't take kindly to being called a liar
>>>by the specialist, so that helped!
>>>
>>>Best wishes to all,
>>>
>>>Pat
>>>dm30=, 508 9months+.
>>>In message <email @ redacted>, Ingrid Morrow
>>><email @ redacted> writes
>>> >Thanks Pat,
>>> >
>>> >I am going to see my GP soon about getting a referral to an
>>>endocrinologist
>>> >at Kings'.
>>> >
>>> >I am going to have to try to persuade my GP to refer me to her out of
>>>area
>>> >(I live in E14, and should go to Mile End Hospital).  What arguments
>>>should
>>> >I use other than:
>>> >
>>> >1)  I want to try some other newer long acting (like Lantus/Glargine)
>>>but
>>> >my Mile End specialist had never heard of it
>>> >
>>> >2)  I want to investigate pumping (but noone is on one through Mile 
>>>End)
>>> >
>>> >3)  In a couple of years I want to try to have kids so need tighter
>>>control
>>> >than what I currently get.
>>> >
>>> >
>>> >What are my chances of getting an out of area referral?
>>> >
>>> >Thanks
>>> >
>>> >Ingrid
>>> >
>>> >
>>> >>From: Pat Reynolds <email @ redacted>
>>> >>Reply-To: email @ redacted
>>> >>To: email @ redacted
>>> >>Subject: Re: [IPk] 37 year old male scared of needles????????
>>> >>Date: Mon, 14 Jan 2002 07:32:25 +0000
>>> >>
>>> >>In message <email @ redacted>, Ingrid Morrow
>>> >><email @ redacted> writes
>>> >> >I have never seen an insertion set, but they sound enormous.  Why 
>>>are
>>> >>they
>>> >> >so big?
>>> >>
>>> >>It depends upon what you are expecting, and comparing it to.  I showed
>>> >>my (already inserted) set to my mother-in-law last night and her
>>> >>exclamation .... 'that's tiny!'.  (But then, we'd just wept buckets
>>>over
>>> >>Boromir getting shot full of lots of arrows!)
>>> >>
>>> >>But compared to the needles on pens, yes, they're huge! I think 
>>>they're
>>> >>big because plastic needs to be thicker than steel.
>>> >>
>>> >>The website has lots of pictures and video clips which should put your
>>> >>mind at ease!
>>> >>
>>> >>With best wishes to all,
>>> >>
>>> >>Pat
>>> >>(dm 30+, 508 9months+, Tolkien reader 30+)
>>> >>--
>>> >>Pat Reynolds
>>> >>email @ redacted
>>> >>    "It might look a bit messy now, but just you come back in 500 
>>>years
>>> >>time"
>>> >>    (T. Pratchett)
>>> >>----------------------------------------------------------
>>> >>for HELP or to subscribe/unsubscribe, contact: 
>>>HELP@insulin-pumpers.org
>>> >>help SUPPORT Insulin Pumpers
>>>http://www.insulin-pumpers.org/donate.shtml
>>> >
>>> >
>>> >_________________________________________________________________
>>> >Join the worlds largest e-mail service with MSN Hotmail.
>>> >http://www.hotmail.com
>>> >----------------------------------------------------------
>>> >for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
>>> >help SUPPORT Insulin Pumpers 
>>>http://www.insulin-pumpers.org/donate.shtml
>>>
>>>--
>>>Pat Reynolds
>>>email @ redacted
>>>    "It might look a bit messy now, but just you come back in 500 years
>>>time"
>>>    (T. Pratchett)
>>>----------------------------------------------------------
>>>for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
>>>help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>>
>>
>>_________________________________________________________________
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>
>
>
>
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