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Re: [IPk] Getting out (was )7 year old male scared of needles????????



Ingrid, I had a terrible time trying to get back on the pump . My consultant 
had changed and, as the new one had worked in the US i assumed wrongly that 
he would be all for it . I started by writing to and phoning the pump 
companies to acquire as much literature as possible, I then wrote to my 
consultant between consultations explaining exactly why I neede to go back 
on pump therapy and then wrote to Prof Stephanie Amiel who had originally 
prescribed the pump when she worked at Bart's asking her how I could resume 
pump therapy .The pump companies were unable to start the pump without a 
consultants backing. Mr Morrisey at Minimed was excellent at gin#ving me 
info on which Drs were supportive of pump therapy and I would have written 
to them all.
I don't know how it happened but at my next appointment my consultant had an 
absolute change of heart and had decided that he would fully support my need 
for pump therapy and is very supportve. The fact that you are considering a 
pregnancy is MORE than enough reson to be considereed for pump therapy. Ther 
is a study at the moment being conducted on the outcomes of pregnancy in 
type 1 diabetes and I am sure that the outcome will be that good ie near 
non-diabetic control is achieved then the outcome is greatly improved. I was 
actually given a pump in the first place for that reason!



>From: "Ingrid Morrow" <email @ redacted>
>Reply-To: email @ redacted
>To: email @ redacted
>Subject: Re: [IPk] Getting out (was )7 year old male scared of  
>needles????????
>Date: Tue, 15 Jan 2002 09:35:43 +0000
>
>Pat,
>
>This is the first time I have come across personally postcoded medicine.  I
>even asked Kings' if there are any private specialists, and they said there
>is only one who is now retired!  I wouldn't want to see someone so last in
>the medical career anyway, I doubt very much he would even have heard of
>pumps.
>
>I have been getting higher morning readings and asked my specialist at Mile
>End about changing to another insulin.  His view was that because the rest
>of the day was OK he wasn't inclined to change my longacting just for one
>part of the day.
>
>Does that sound reasonable to you?????
>
>I think not.  It is just unfortunate that some areas have more modern
>specialists than others (and I am not just talking funding here, but the
>option to even try something newer), and because I live in the "wrong" area
>I don't get the option to even try.
>
>But I am not the first to run across this problem, and I know I won't be 
>the
>last.
>
>I guess I will just have to sound out the GP....
>
>
>Cheers,
>
>Ingrid
>
>
>>From: Pat Reynolds <email @ redacted>
>>Reply-To: email @ redacted
>>To: email @ redacted
>>Subject: [IPk] Getting out (was )7 year old male scared of  
>>needles????????
>>Date: Mon, 14 Jan 2002 18:08:09 +0000
>>
>>Dear Ingrid,
>>
>>
>>My feeling is that, underneath these lie the real reasons. Why do you
>>need to improve control before getting pregnant?  Because it's not good
>>now (if you have hba1cs in the non-diabetic range, never have a hypo,
>>and never worry about when and what someone's going to serve you for
>>dinner, then you have perfect control).
>>
>>Focus on what's wrong now: too many hypos?  poor control during illness?
>>inability to exercise without loosing control?  Then say why you think
>>one of the new long-acting insulins or a pump might help.
>>
>>What impact does that poor control have short-term and long-term?
>>
>>What changes have been made to your treatment to try and permit you to
>>get good control?  Only if your current specialist has at least tried
>>some of the options, does being referred out of town seem reasonable (or
>>if the specialist has said 'I don't know what else to do'.
>>
>>I'm afraid I don't know what your chances are of being treated out of
>>area.  I was referred out by a very sympathetic gp, who agreed that the
>>current specialist was only suggesting things which I'd already tried
>>and proved didn't work.  My GP didn't take kindly to being called a liar
>>by the specialist, so that helped!
>>
>>Best wishes to all,
>>
>>Pat
>>dm30=, 508 9months+.
>>In message <email @ redacted>, Ingrid Morrow
>><email @ redacted> writes
>> >Thanks Pat,
>> >
>> >I am going to see my GP soon about getting a referral to an
>>endocrinologist
>> >at Kings'.
>> >
>> >I am going to have to try to persuade my GP to refer me to her out of
>>area
>> >(I live in E14, and should go to Mile End Hospital).  What arguments
>>should
>> >I use other than:
>> >
>> >1)  I want to try some other newer long acting (like Lantus/Glargine)
>>but
>> >my Mile End specialist had never heard of it
>> >
>> >2)  I want to investigate pumping (but noone is on one through Mile End)
>> >
>> >3)  In a couple of years I want to try to have kids so need tighter
>>control
>> >than what I currently get.
>> >
>> >
>> >What are my chances of getting an out of area referral?
>> >
>> >Thanks
>> >
>> >Ingrid
>> >
>> >
>> >>From: Pat Reynolds <email @ redacted>
>> >>Reply-To: email @ redacted
>> >>To: email @ redacted
>> >>Subject: Re: [IPk] 37 year old male scared of needles????????
>> >>Date: Mon, 14 Jan 2002 07:32:25 +0000
>> >>
>> >>In message <email @ redacted>, Ingrid Morrow
>> >><email @ redacted> writes
>> >> >I have never seen an insertion set, but they sound enormous.  Why are
>> >>they
>> >> >so big?
>> >>
>> >>It depends upon what you are expecting, and comparing it to.  I showed
>> >>my (already inserted) set to my mother-in-law last night and her
>> >>exclamation .... 'that's tiny!'.  (But then, we'd just wept buckets 
>>over
>> >>Boromir getting shot full of lots of arrows!)
>> >>
>> >>But compared to the needles on pens, yes, they're huge! I think they're
>> >>big because plastic needs to be thicker than steel.
>> >>
>> >>The website has lots of pictures and video clips which should put your
>> >>mind at ease!
>> >>
>> >>With best wishes to all,
>> >>
>> >>Pat
>> >>(dm 30+, 508 9months+, Tolkien reader 30+)
>> >>--
>> >>Pat Reynolds
>> >>email @ redacted
>> >>    "It might look a bit messy now, but just you come back in 500 years
>> >>time"
>> >>    (T. Pratchett)
>> >>----------------------------------------------------------
>> >>for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
>> >>help SUPPORT Insulin Pumpers 
>>http://www.insulin-pumpers.org/donate.shtml
>> >
>> >
>> >_________________________________________________________________
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>> >help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>>
>>--
>>Pat Reynolds
>>email @ redacted
>>    "It might look a bit messy now, but just you come back in 500 years
>>time"
>>    (T. Pratchett)
>>----------------------------------------------------------
>>for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
>>help SUPPORT Insulin Pumpers http://www.insulin-pumpers.org/donate.shtml
>
>
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