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[IPk] John Davis re. BDA & Dennis Barnes
What you say about the BDA would be good, were it
true. Having been a trustee for about 18 months, I am despondent. The staff are
very interested in diabetes and what can be done etc, but amongst the trustees
there is a great lack of interest in anything any trustee has not experienced.
I have been trying to promote pumps amongst them.
Your visit with John Hughes was not even given space amongst what had gone on
since the previous board meeting.
£120,000 was 'given' to a consultancy to think of a
new name for the charity. What will be the new name (DiabetesUK) was not even
suggested by the consultancy. £40,000 is being given to a member to buy his web
site address. Just think how many diabetics that money could have funded on
pumps and for how long.
Amongst the trustees there are only 8-9 actual
diabetics, I am the only one who had diabetes in childhood, this may be the
reason why the idea of stopping the holiday camps for children is a current
I am sorry I do not believe the BDA is moving in
the correct direction.
Your notes re. Dennis Barnes are interesting. He
was my consultant at Guys for several years yet never once did he say anything
bad about pumps. I took part in a couple of research projects he was responsible
for. During which he undertook once 'insulin response' test and said that my
response was more than twice as good as anybody else he had come across (I had
been using the pump for about 10 years at that time). I also note that Dennis
was not at Guys at the time when all the research into pumps took place there.
He was not responsible for any other patients using a pump and was never keen
about pumps. He was not at Guys when there were two girls who would have died
(due to insulin resistance) but for the use of pumps (and 1000u/ml strength
I should not say this but he was always very sure
of himself and wanted to have a view that was different to those around him. He
is a friendly person but does not have enough experience of pumps to make such
I note all of the above is my own opinion and may
be very wrong!
Give my regards to John Hughes if you see him in
the near future, I have spoken to him a lot but have yet to meet him face to