Re: [IPk] Addenbrooke's Hospital pumps trial
Hi Jackie
You may be right about a direct connection to the SCIPI study but I'm not so
sure.
That would mean that the BBC report was complete rubbish, not that that is
an impossibility.
The latter has no suggestion of involving children/teens in particular and
the video uses 2 adults to illustrate the 2 methods.
A trial involving 1000 diabetics does seem a large enough number to involve
a wider area than just Addenbrooke's patch, anyway I would have expected
'us' to know about it.
Perhaps it's early days
My initial concern when I read the BBC report was for the implications of
future pump availability .
My worry being that anything short of whole hearted endorsement of NICE's
current stance would provide reluctant cash strapped purse holders, in
whatever future shape or form, with justification to tighten the purse
strings - via more rigid application of qualifying criteria perhaps.
For example, I can see a scenario where a study concluded that pump use
doesn't always lead to significant lowering of HbA1c levels.
*We* all know that would be far too simplistic an approach,
but...............
Gareth
-----Original Message-----
From: Jackie Jacombs
Sent: Monday, February 13, 2012 9:49 AM
To: email @ redacted
Subject: RE: [IPk] Addenbrooke's Hospital pumps trial
I think that the report must be to do with the study. It's being called
SCIPI
Subcutaneous Insulin Pumps or Injections. Comparing MDI and Pumps
There will be different hospital taking part in the studies, not just
Cambridge,
other centres are involved. I find it all rather worrying. It's been
discussed
in great detail on the UK CWD lists. Some hospitals have declined. No
choice
of pump. It will be Roche.
http://www.hta.ac.uk/project/2247.asp
extract
"There are two forms of intensive treatment: administration of insulin by
multiple daily injections (MDI) or using a pump. Pump therapy is 6 times
more
expensive than MDI. If HbA1c or QoL is better during pump therapy this may
be a
good investment for the NHS. However, if pump therapy is no better than MDI,
investment in diabetes care may be better directed elsewhere. This study
aims
to
compare outcomes of patients treated with MDI to those using pumps one and
five
years after diagnosis of TIDM.
Recruitment will take place in children's diabetes centres with experience
in
the treatment of children with both MDI and pumps. Children and young people
will be eligible to join the study at diagnosis of TIDM. Patients will be
screened for thyroid disease and gluten intolerance according to the NICE
guidelines. Those affected by these conditions will be excluded. Puberty
affects
blood glucose control and will be assessed at recruitment.
Patients will be randomly allocated to receive insulin either by MDI or
pumps.
All patients will be educated to match insulin dose to carbohydrate intake,
exercise and blood glucose readings. Patients receiving pumps will be
educated
in their use"
protocols
http://www.hta.ac.uk/protocols/200800140039.pdf
Though I am rather alarmed about the seemingly negative view of the person
doing
the study. This is one of her papers
http://www.bmj.com/content/343/bmj.d5221.extract
"The person with diabetes who knows the most lives the longest." Elliot
Joslin
http://www.childrenwithdiabetesuk.org/
http://www.input.me.uk/
Jackie Jacombs, mum of Sasha aged 17, diagnosed with diabetes in 1999 at
the age of 4 years. Using Paradigm 722 pump.
-----Original Message-----
From: email @ redacted [mailto:email @ redacted] On Behalf
Of
Melissa Ford
Sent: 12 February 2012 18:03
To: email @ redacted
Subject: Re: [IPk] Addenbrooke's Hospital pumps trial
Insulin Pumpers is in a fundraising period. Please
make a contribution. Visit:
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Hi Gareth
I'm smelling the BBC's usual standard of reporting on diabetes...ie a cloud
of misinformation. Shall I forward your link to the press contact at
Addenbrooke's, ask what it's really about and let you know what I hear back?
Melissa
Type 1 18+ years; pumper 15.5+ years
On Sunday, February 12, 2012, Gareth <email @ redacted> wrote:
>
> Just stumbled across this item on the BBC News site
> http://www.bbc.co.uk/news/uk-england-cambridgeshire-16355299
>
> <29 December 2011
> Diabetes patients have joined a trial to assess the effectiveness of
pumps which deliver insulin directly into the body.
> Addenbrooke's Hospital in Cambridge has recruited 1,000 diabetics to
assess whether the pumps are more effective than daily multiple injections.
> Nearly three million people in the UK have been diagnosed with diabetes
and it is estimated another 850,000 people have the condition but have not
been diagnosed.>
>
> It has an accompanying video.
> It's a 2 year trial.
>
> Couldn't find any reference to it in the research section of
Addenbrooke's own site
>
> I've not seen any previous comment on it, does anyone have any more
information?
>
>
> Gareth
> Husband of Jean, T1 for 47 years, on pump 4 years .
.
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