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Re: [IPk] BDA Trustees & subjects

Hi All

"Please please please let us all write to each of the trustees of the BDA
drawing their attention to the "issues" and demanding that they get their
act together! I have put some more suggestions about what to say on the
website that I have listed above. If each trustee receives a bundle of
letters, they will start talking about it."

I totally agree, when John Hughes (Disetronic) and I made our presentation
to the BDA about Insulin Pumps. Disetronic showed an OHP entitled.

 "What support do pump users need from the BDA".

Funding of pumps/consumables for the needy
Help to obtain Drug Tariff listing for consumables
Inclusion of pump therapy as a viable treatment option in education
Separate dedicated pump section in Balance
Local BDA branches to raise funds for needy patients in their area
Education of Diabetes Specialist Nurses
Funding of pump specialist nurse sessions in Diabetes Clinics
Regional specialist pump centres.

There were around 25 people from the BDA at that meeting and NO ONE
disagreed with any single point!

After the meeting I asked Simon O'Neill, (Head of Care Services) what we
could do to make things happen. He said "Make an issue of it". I posted a
message to that effect on this list, but to my knowledge only 3 people wrote
and only one letter got published.

We seem to be a more "Militant" bunch now,  so lets get writing, make
nuisances of ourselves, but get the message across. "Pump Therapy Works", we
know, we live with it 24 hours a day.

To the West Kent Health Authority, INPUT has been branded a pressure group,
great! Our efforts there has meant that the health professionals have been
forced to look at pump therapy as a viable alternative, and for certain
cases, they are finding the money to pay for it.

Awareness and acceptance of Insulin Pump Therapy is growing, about 160 new
pump users in 1999. The manufactures are doing a great job finding and
training new Pump Centres, there are about 10 at present and increasing.

So come on everyone, write to the BDA, write to your MP, write to your Local
Health Authority, talk to your GP and Primary Care Group and anyone else who
will listen and if any of you want to help us at INPUT, manning stands at
Exhibitions, "Open Days",  taking part in presentations etc. please contact
me. Our next "Open Day" will be in the Reading area some time in April. At
the last one in Maidstone, over 300 people turned up!


John Davis

Finally, just get out there

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