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Re: [IPk] Re: Vit D Deficiency

That sounds awful Christine!

I was not tested by my GP, by St. Mary's Paddington, nor by King's.

 My maternal grandmother has osteoporosis & my mother has hypothyroidism & my
sister is coeliac. I told all of them that my cousin made me tip my head back &
said there was something wrong with my thyroid.

 I got to Chelsea & Westminster & said "nobody listens to me but...", was asked
to tip my head back again & was sent for bloods & an ultrasound (done within 30

 I have thyroid antibodies, Graves' disease, normal thyroid function, but I had
low calcium & vitamin D levels. I'm on supplements now.

On 10 Dec 2013, at 05:54, Christine Bousfield <email @ redacted> wrote:

> Hi ingrid
> I was diagnosed a while ago with low vit d and take supplements etc I have a
> lot of muscle weakness and clumsiness in my legs still, diagnosed as
> neuropathy.what level is ideal for vit d, do you know?
> There seem s to be controversyover this
> Best
> Christine
> Ps I have numerous other complications as a result of 41 years' type 1
> Sent from my iPhone
> On 10 Dec 2013, at 02:58, Ingrid Glass <email @ redacted> wrote:
>> Hi Hannah,
 >> I have general muscle weakness and was noticing worsening tremors in my
>> particularly after I took up yoga again a few years' ago, and kept asking my
>> GP about it. Once I'd mentioned it to my diabetes consultant, she got me
 >> tested for vit D deficiency & it was discovered I had extremely low levels.
 >> was put on a very high dose liquid form for a few weeks followed by high
 >> tabs for maintenance. Over these last 2-3 years we've settled on 20,000
>> per week just to keep my levels within the normal range.
>> Alas my symptoms did not improve after vit D levels back to normal and I was
>> sent to the Neurological Hosp in the end for tests and a diagnosis (of
>> Orthostatic Tremor which may or may not get worse). I do feel embarrassed in
>> yoga when my legs shake uncontrollably in certain postures but at least it
>> wasn't MS or Motor Neurone or....
>> I so hope you notice improvement from the vit D and it isn't anything more
>> than that.
>> Ingrid
>> Date: Mon, 9 Dec 2013 15:49:13 +0000
>> From: hansicle <email @ redacted>
>> Subject: [IPk] Vit D deficiency
>> Hi all hope everyone is well.
>> Im some 6 months post partum and im still not feeling great weakness,
>> fatigue,
>> pins and needles, muscle pain and near constant dizziness. Was hoping it was
>> jus
>> getting over my awful birth but the symptoms havent gone anywhere.B
>> Anyway the hosp have taken it fairly seriously my bloods have come back
>> extremely deficient in vit D.
>> Jus wondered anyone else had this? B I have to go to docs tonight for an
>> injection then prescription supplements. Am hoping this is the cause of my
 >> symptoms as I have been rather concerned its something serious. The hosp
>> also referred me for an adrenlin test and to the neurological dept for
>> balance
>> tests will b asking abt those B In a while.
>> Slightly annoyed as apparently all pregnant and breastfeeding are now
>> supposed
>> to take a vit D supplement but I have never been advised of this.
>> .
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> .
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