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Re: [IPk] Cardiac autonomic disease



Thanks very much for this siobhan
I will look into it
Sounds interesting
Christine 

Sent from my iPhone

On 15 Apr 2014, at 21:27, Siobhan <email @ redacted> wrote:

> Oops hit send too early.I emailed the Professor and his research
> coordinator sorted everything for me. They do lots of different tests for
> neuropathy (I had my eyeballs numbed and photographed, feet had vvv mild
> electric shocks applied to the nerves (which just made me laugh loads)). It
> was really interesting and the staff are all really nice.
> 
> Siobhan
> 
> 
> On Tue, Apr 15, 2014 at 9:25 PM, Siobhan <email @ redacted> wrote:
> 
>> Hi Christine
>> 
>> http://www.jdrf.org.uk/research/getting-involved-in-research/current-trials
>> 
>> 
>> Developing corneal confocal microscopy for human diabetic
 >
neuropathy<http://www.jdrf.org.uk/research/getting-involved-in-research/current-trials/developing-corneal-confocal-microscopy-for-human-diabetic-neuropathy>
>> What is the project trying to achieve?
>> 
>> This project is trying to develop a new automated and non-invasive eye
>> test to assess for nerve damage in diabetic patients. At the moment this is
>> assessed using relatively crude tests which miss early nerve damage and the
>> more sensitive tests need to remove skin in the form of a biopsy to assess
>> under a microscope. We are studying patients with Type 1 diabetes with
>> short duration of diabetes (<10 yrs) but also patients with diabetes for
>> over 50 years to try and assess which factors might protect these patients
>> from developing major complications of diabetes as well as patients with
>> impaired glucose tolerance who are yet to develop diabetes.
>> What are volunteers required to do?
>> 
>> We will undertake detailed testing of the nerves using the standard tests
>> of neurophysiology, but in addition we will use our ophthalmic instrument
>> called the corneal confocal microscope to try and see if the corneal test
>> is as good if not better than the standard tests. The groups of patients we
>> are studying include patients with Type 1 diabetes and in particular
>> patients with diabetes for more than 50 years of diabetes. These patients
>> will also have an assessment of proteins and metabolites in their blood and
>> will undergo genetic assessment.
>> For further details please contact:
>> 
>> Professor R A Malik email @ redacted Tel. 0161 275 1196
>> 
>> 
>> On Mon, Apr 14, 2014 at 8:09 PM, Christine Bousfield <
>> email @ redacted> wrote:
>> 
>>> Hi siobhan
>>> Thanks very much for your response
>>> I'd be interested in this research if you have details of where and for
>>> how
>>> long it is being carried out
>>> Thanks a lot
>>> Christine
>>> 
>>> Sent from my iPad
>>> 
>>>> On 12 Apr 2014, at 13:22, Siobhan <email @ redacted> wrote:
>>>> 
>>>> Hi Christine
>>>> 
>>>> I took part in some research this week and one of the tests they did
>>> was (I
>>>> think) a test for cardiac autonomic neuropathy. It involved having
>>> sticky
>>>> pads on my chest to monitor my breathing and one on my rib cage to track
>>>> heart rate. I'm not sure if that's the exact test you're referring to.
>>>> 
>>>> The researcher said a normal response is to see a change in heart rate
>>> when
>>>> breathing in (I had to take some deep breaths and strain vs breathing
>>>> normally). It indicates the heart nerves are being triggered.
>>>> 
>>>> Siobhan
>>>> 
>>>> 
>>>> On Mon, Apr 7, 2014 at 10:03 AM, Christine Bousfield
>>>> <email @ redacted>wrote:
>>>> 
>>>>> Hi
>>>>> Anyone been diagnose/tested/treated for this in the uk
>>>>> Sorry to piggyback on previous email
>>>>> Unwell at the moment
>>>>> Christine
>>>>> 
>>>>> Sent from my iPad
>>>>> 
>>>>>> On 7 Apr 2014, at 09:51, hansicle <email @ redacted> wrote:
>>>>>> 
>>>>>> Hi Di when I'm out cycling or hiking I carry a plastic bag with me
>>> that
>>>>> I can
>>>>>> put my hand and meter into to keep dry.
>>>>>> 
>>>>>> Hannah
>>>>>> 
>>>>>> 
>>>>>> Sent from Samsung Mobile
>>>>>> 
>>>>>> <div>-------- Original message --------</div><div>From: Diana Maynard
>>>>>> <email @ redacted> </div><div>Date:07/04/2014  09:41
>>>>> (GMT+00:00)
>>>>>> </div><div>To: email @ redacted </div><div>Subject: [IPk] BG
>>>>> testing
>>>>>> in the rain </div><div>
>>>>>> </div>
>>>>>> Does anyone have any tips for BG testing when you're up a mountain (or
>>>>>> anywhere else with no shelter) and the rain is hammering down and
>>>>>> everything is wet? I had this problem on Snowdon at the weekend. Felt
>>>>>> very tired halfway up and knew it was either high or low BG but not
>>>>>> which one, so stopped to test. Couldn't dry a fingertip on anything
>>> as I
>>>>>> was wet through, and every time I put a strip in my meter, either the
>>>>>> end of the strip got wet before I could add the blood, or my finger
>>> with
>>>>>> blood dripping out got wet before I could get the strip into the
>>> meter!
>>>>>> After about 10 wasted strips (and getting very cold with no gloves
>>> on) I
>>>>>> finally managed it (I was low). I'm using a Bayer Contour meter (never
>>>>>> used to have this problem to such an extent when using a meter with
>>>>>> integrated strips, because you didn't have to touch the strip to put
>>> it
>>>>>> in the meter, and there was no faffing with getting the strip out).
>>> And
>>>>>> yes, I can see why CGM is handy in such situations, so I don't need
>>>>>> anyone to tell me that :-)
>>>>>> 
>>>>>> I also think I may have had my first ever experience of proper
>>>>>> hypothermia that day, but that's another story (but an interesting
>>> point
>>>>>> about being able to tell the difference between / interaction between
>>>>>> low BG and hypothermia).
>>>>>> 
>>>>>> BTW I am back from my trip and absolutely fine, no ill effects, in
>>> case
>>>>>> anyone's worried :-)
>>>>>> Di
>>>>>> Follow us at https://www.twitter.com/insulinpumpers
>>>>>> Make a long URL short at http://type1.org
>>>>>> .
>>>>>> Follow us at https://www.twitter.com/insulinpumpers
>>>>>> Make a long URL short at http://type1.org
>>>>> .
>>>>> Follow us at https://www.twitter.com/insulinpumpers
>>>>> Make a long URL short at http://type1.org
>>>> .
>>>> Follow us at https://www.twitter.com/insulinpumpers
>>>> Make a long URL short at http://type1.org
>>> .
>>> Follow us at https://www.twitter.com/insulinpumpers
>>> Make a long URL short at http://type1.org
> .
> Follow us at https://www.twitter.com/insulinpumpers
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