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Re: [IPp] Summer Camp

Can I add to this that the Assistant that looks after my daughter in school
at break time happens to be T1 and a close family friend. It's been
disconcerting that her official time with Grace is 30mins at break time but
she happens to be in Grace's class for another child so observes Grace all
day. The quality of Grace's care/ A1c and incidence of lows is precious.
I know it is exceptional but there are many elements I didn't know. For
example Grace dips when doing maths due to the mental strain.
Having an informed observer has made me much more aware of the quality of
care I organise for Grace. It has made a difference in the sort of info I
give to family and friends and sounded alarm bells when someone seriously
misses the plot. Grace is only 7yrs but recently was given an ice-cream and
asked a neighbour to ring me as it is different for ice-cream ( i.e. dual
wave bolus). The neighbour was going ahead to bolus and Grace said "You
don't use normal bolus for ice-cream". The neighbour decided this must be
due to it being like cheese and never bolused and Grace was too busy
I really hope the summer camp works out for you but I have move from a
place of believing that my job is to empower my daughter to cope regardless
of D. Now, I am careful to ensure a very good safety net and then encourage
her to "get on with it".
All the best
----- Original Message -----
From: "Beverly P White" <email @ redacted>
To: <email @ redacted>
Sent: 08 June 2006 22:32
Subject: Re: [IPp] Summer Camp
>  Unless someone at the camp was fully trained on the care, I would not
send my
> daughter. I am completely training someon for her to go to Italy in July
and she
> is nearly 13. The facts are that a lot can happen quickly and the results
can be
> disasterious if immediate help is not available. I can understand that she
> do her bgs and bolus but can she do corrections and add carbs and know
what to
> do if she is low?
>   Bev
> Louis Diaz <email @ redacted> wrote:
>   I signed up my daughter (4.5) to a new camp this summer, (for 1 week).
> Obviously, I told them that she had diabetes and wore a pump. I
> informed them that she would have to be tested and observed, while she
> pumped herself. She can currently test herself as well, but it's
> easier if someone else does it.
> Anyway, there seem to be no problem. The head of the camp requested a
> letter from her doctor basically stating that it was ok for her to
> attend. The endo provided the letter with no issues, it was basically
> a form letter as this is a common request. After receiving the letter
> the camp called with some serious reservation about letting her
> attend. I read the letter and it clearly was a bit scary for someone
> who is not well informed about diabetes. It basically lists the worse
> case scenarios, e.g. the pump breaks, keytones, urine testing,
> seizures, glucogon, convulsions and vomiting, etc.
> At first I was very upset with the camp. I spoke with them several
> times today and tried to reach an agreement that everyone would be
> happy with. I will now on a daily basis go to the camp before lunch
> and test her myself.
> I also suggested that the camp call the endo directly so that they
> could find out that while possible, the above is the exception.
> I am now signing special release forms and testing her so that she
> could attend the camp just like any other regular kid.
> The whole incident was a bit depressing and gave me a clue as to the
> uphill battles our children face and the likely discrimination they
> will be subjected to.
> What is your opinion, should letters from endos include all the scary
> details? In the past for other schools and camps I have created a
> document that describes diabetes and insulin, hypo and hyperglycemia
> their signs and testing.
> Beverly
>  Art classes/seminars/camps, pet, child, adult portraits, murals,
> glass and wood, handmade purses, rugs and blankets
> www.parsonwhitestudios.com
> .
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