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Re: [IPp] paralisis (spelling?)



Donna, how do the anti seizure meds affect him?  I hope we do not have to go
there but just in case I would like to be prepared.  We have not gotten the
results back from the EEG yet, but this is not our first seizure(but the
first with paralysis) so I wonder how it will turn out.  It is so scary!  We
are on a 1/2 baby aspirin a day and are seeing a cardiologist on Thursday.
I guess they are covering all the bases. Thanks again, Laura
----- Original Message -----
From: <email @ redacted>
To: <email @ redacted>
Sent: Sunday, June 29, 2003 4:09 PM
Subject: [IPp] paralisis (spelling?)


>   My son has also had seizures like this. Colby would wake up with BS in
the
> 60s, but could not talk and was limp down the right side. He also could
not keep
> anything down, like juice, that i would give him to raise BS. We had MRIs,
EKGs,
> and EEGs. The only thing that came back positive was the EEG, for seizure
> activity. He is now seeing a pedi neurologist and on seizure meds. Dr says
that
> when he goes a full year without one, he will take him off meds. Colby has
not
> had one since Oct 2002! Almost there! Its very scary when this happens!
> Sometimes its mild and he's back to normal within 3-4 hours, other times
longer.
>   Colby is 9, will be 10 Sept 2, and was dxd at 5 in Oct of 98, and had
his
> first siezure in Oct of 2000.
>
>      Donna
>      mom to colby 9, and matt, 13 non-d
> >
> > From: email @ redacted (pop-digest)
> > Date: 2003/06/29 Sun AM 09:43:18 CDT
> > To: email @ redacted
> > Subject: pop-digest V1 #397
> >
> >
> > pop-digest            Sunday, June 29 2003            Volume 01 : Number
397
> >
> >
> >
> > PLEASE edit the subject line of your reply messages.
> > ####################################################
> > This issue of the digest contains:
> > Re: [IPp] vaccines
> > Re: [IPp] vaccines
> > [IPp] Paralysis after a mild low bg
> > [IPp] RE: Paralysis after a mild low
> > Re: [IPp] Paralysis after a mild low bg
> > Re: [IPp] vaccines
> > Re: [IPp] Paralysis after a mild low bg
> > Re: [IPp] Paralysis after a mild low bg
> > RE: [IPp] Paralysis after a mild low bg
> >
> > ----------------------------------------------------------------------
> >
> > Date: Fri, 27 Jun 2003 19:38:41 EDT
> > From: email @ redacted
> > Subject: Re: [IPp] vaccines
> >
>  > Denise, dont you think this is strange. Something should be done, if
not for
> > our children, at least for the one's who will be vaccinated and develop
the
> > disease.
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> >
> > ------------------------------
> >
> > Date: Fri, 27 Jun 2003 23:20:38 EDT
> > From: email @ redacted
> > Subject: Re: [IPp] vaccines
> >
> > My son Justin became very ill , 4 time after he received the Prevnare
>  > vaccine. The of the 4 time it was complicated with pneumonia. I truly
believe
> > the
> > vaccines is to blame for diabetes.
> >
> > Gina, Mom of Justin, 3 years old, pumping
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> >
> > ------------------------------
> >
> > Date: Fri, 27 Jun 2003 23:02:00 -0500
> > From: "The Fullers" <email @ redacted>
> > Subject: [IPp] Paralysis after a mild low bg
> >
> > Hey everybody,
> > We have just returned from The Children's Hospital of Alabama after 24
hours
> > of what I can only describe as hell on earth.  Yesterday morning I went
in to
> > wake my son Jeffrey, 7(dx 5/00) at 8am to get ready for bible school.
He was
>  > hard to wake up but that is not out of the ordinary. During my rushing
around
> > trying to get his two sister ready to go, I notice that he apparently
cannot
> > sit up.  He was laying on his right side and every time he tried to
raise up
> > he fell back down onto the bed.  So I think to myself ok a low, and get
the
> > meter, he is 60, not that bad, but a little low.  Believe me he has been
> > lower, seizure lower.  So I get some juice and get his older sister to
try to
> > hold him while I give him the juice, he seems to be understanding what I
am
> > saying to him, looks at me when I say his name, etc.  Then I notice that
the
> > right side of his mouth is drawn down, and his right arm is completely
limp,
> > just hanging.  I knew something was wrong.  He could not stand, he could
not
>  > speak, he was non functioning on the right side. So we call 911 and his
endo.
> > We got to the ER and he failed all of his neurological exam. Could not
do any
> > of it.  Could not say my name.  Laughed and giggled like a baby.  (Not
at all
> > the way he would act in a normal situation if he was in the hospital) My
> > husband arrived and he was slowly gaining his control of his arm and
leg, but
>  > only very limited verbal. At 10:30 he finally said Momma, but could not
tell
> > us his sisters name, could not say Daddy, could not tell us the name of
his
> > baseball team.  You could tell that he knew what he wanted to say but
could
> > not get it out.  He vomited twice in the ER.  We were transferred to
> > Children's where his endo is and by the time we got there he was almost
back
> > to normal, but it was then 3PM!  Seven hours after i woke him up.  By
the way
> > bloodsugar at the first ER was 147, and normal throughout.  Well, we
have had
> > CT's, MRI's, EEG, complete lab workup.  So far no sign that it was a
stroke.
> > They are covering all the bases and we are seeing a Ped Cardiologist on
>  > Thursday. CT neg, MRI neg. Good news! But why did this happed? And why
did
> > it take him so long to come out of it?  Have any of you ever experienced
this
> > before?  The Dr.s told us that they see it in adults but rarely in
children.
> > He is now on 1/2 baby aspirin a day.  Any comments would be sooo
appreciated!
> > Laura Fuller, mom to Eryn,10, Jeffrey, 7, (dx 5/00. pumping 2/02) and
Mary
> > Glenn 5.
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> >
> > ------------------------------
> >
> > Date: Sat, 28 Jun 2003 02:50:46 EDT
> > From: email @ redacted
> > Subject: [IPp] RE: Paralysis after a mild low
> >
> > Laura,
> > I'm so sorry to hear of the frightening experience you had with Jeffrey.
I
> > hope he will be fine and that it never happens again.
> > Susan
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> >
> > ------------------------------
> >
> > Date: Sat, 28 Jun 2003 08:30:09 -0300
> > From: "Jana" <email @ redacted>
> > Subject: Re: [IPp] Paralysis after a mild low bg
> >
> > Dear Laura
> >
> > My Patricia was low one time about 8 years ago and she was not able to
do
> > anything for almost 6 hours. She was non verbal, could not sit up and
could
> > not walk. She came through it fine and it has never repeated itself.
> >
> > I will be sending good thoughts that they find out what was all wrong
for
> > you all.
> >
> > Jana in Nova Scotia
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> >
> > ------------------------------
> >
> > Date: Sat, 28 Jun 2003 09:03:08 EDT
> > From: email @ redacted
> > Subject: Re: [IPp] vaccines
> >
> > Gina, I agree so much.  I have said this to other people about the
vaccines
>  > and they think I am nuts!!!!! Have you or anyone else out there done
anything
> > legally?  I was thinking of filing a suit or something.  A lawyer in NYC
> >  wanted to represent us, but we feel that we could do it on our own. We
didnt
> > want
> > to sign any tricky papers.  Next child I have I do not want to have any
> > shots.  What a world we live in.
> >
> > Krista Nastro
> > Mom to Anthony 2 1/2  Pumping w/ Paradigm since 4 /7/03  DX'D 8/25/02
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> >
> > ------------------------------
> >
> > Date: Sat, 28 Jun 2003 16:37:43 -0500 (Central Daylight Time)
> > From: "Carla Logan" <email @ redacted>
> > Subject: Re: [IPp] Paralysis after a mild low bg
> >
> > I don't know if these situation are similar but I wanted to share our
> > experience with you in case they could be related.  My son woke up one
> > morning before he was dx with diabetes officially, and could not walk at
all
> >   He had zero reflexes in his legs and minimal in his arms but his neuro
> > responses otherwise were normal.  He was dx with Guillain Barre Syndrome
and
> > gradually his nerves repaired.  It is similar to MS but effects only the
> > peripheral...usually... although can progress all of the way through the
> > body to the neck.  It is only supposed to occur once..if at all...and is
an
> > autoimmune illness.  My son has had 4 episodes like this over the past 2
1/2
> > years...needless to say ours is reoccuring.  I don't know if any of this
> > relates but when it happened to me I would have wanted to hear from
anyone
> > who had experienced anything remotely the same.  Carla Logan
> >
> > - -------Original Message-------
> >
> > From: email @ redacted
> > Date: Friday, June 27, 2003 11:06:53 PM
> > To: email @ redacted
> > Subject: [IPp] Paralysis after a mild low bg
> >
> > Hey everybody,
> > We have just returned from The Children's Hospital of Alabama after 24
hours
> > of what I can only describe as hell on earth. Yesterday morning I went
in to
> > wake my son Jeffrey, 7(dx 5/00) at 8am to get ready for bible school. He
was
> > hard to wake up but that is not out of the ordinary. During my rushing
> > around
> > trying to get his two sister ready to go, I notice that he apparently
cannot
> > sit up. He was laying on his right side and every time he tried to raise
up
> > he fell back down onto the bed. So I think to myself ok a low, and get
the
> > meter, he is 60, not that bad, but a little low. Believe me he has been
> > lower, seizure lower. So I get some juice and get his older sister to
try to
> > hold him while I give him the juice, he seems to be understanding what I
am
> > saying to him, looks at me when I say his name, etc. Then I notice that
the
> > right side of his mouth is drawn down, and his right arm is completely
limp,
> > just hanging. I knew something was wrong. He could not stand, he could
not
> > speak, he was non functioning on the right side. So we call 911 and his
endo
> >
> > We got to the ER and he failed all of his neurological exam. Could not
do
> > any
> > of it. Could not say my name. Laughed and giggled like a baby. (Not at
all
> > the way he would act in a normal situation if he was in the hospital) My
> > husband arrived and he was slowly gaining his control of his arm and
leg,
> > but
> > only very limited verbal. At 10:30 he finally said Momma, but could not
tell
> > us his sisters name, could not say Daddy, could not tell us the name of
his
> > baseball team. You could tell that he knew what he wanted to say but
could
> > not get it out. He vomited twice in the ER. We were transferred to
> > Children's where his endo is and by the time we got there he was almost
back
> > to normal, but it was then 3PM! Seven hours after i woke him up. By the
way
> > bloodsugar at the first ER was 147, and normal throughout. Well, we have
had
> > CT's, MRI's, EEG, complete lab workup. So far no sign that it was a
stroke.
> > They are covering all the bases and we are seeing a Ped Cardiologist on
> > Thursday. CT neg, MRI neg. Good news! But why did this happed? And why
did
> > it take him so long to come out of it? Have any of you ever experienced
this
> > before? The Dr.s told us that they see it in adults but rarely in
children.
> > He is now on 1/2 baby aspirin a day. Any comments would be sooo
appreciated!
> > Laura Fuller, mom to Eryn,10, Jeffrey, 7, (dx 5/00. pumping 2/02) and
Mary
> > Glenn 5.
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> >
> >  [demime 0.98e removed an attachment of type image/gif which had a name
of
> > IMSTP.gif]
> >
> >  [demime 0.98e removed an attachment of type Image/gif which had a name
of
> > Cream_stripes_cream_border2.gif]
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> >
> > ------------------------------
> >
> > Date: Sat, 28 Jun 2003 18:50:17 EDT
> > From: email @ redacted
> > Subject: Re: [IPp] Paralysis after a mild low bg
> >
> > Carla, the same thing happened to my daughter who is now 14 today.  She
was
> > mis-diagnosed!  She has Celiac disease!
> > This is  often misdiagnosed by doc because they do not believe this is
> >  prevelant in the U.S. However, there is a huge surge of research going
on in
> > all
>  > children's hospitals and in Columbia, Mayo, and N.Y. Universities, this
> disease
> > is autoimmune, it is linked with diabetes, especially type 1.  It is a
>  > malabsorption of foods that cause the lows! Celiac effects the villi in
the
> >  esphogus,stomach and all intestine lining. All exposure to
> > wheat,rye,barley,oats
>  > cause the death, actual necrosis of the villi...the insulin is in the
body,
> but
>  > there is no food! Seizures occur, usually nightime, paralysis is not
unusual.
> > Have your child checked out for this and ask for a complete Celiac
panel!
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> >
> > ------------------------------
> >
> > Date: Sun, 29 Jun 2003 09:40:24 -0500
> > From: "Susan Borkowsky" <email @ redacted>
> > Subject: RE: [IPp] Paralysis after a mild low bg
> >
> > How frightening for you all.  I am glad that it wasn't a stroke as that
is
> > what I first thought as I was reading.  What an ordeal for you all.  I
hope
> > that this doesn't return and that someone can give you some sort of
> > explanation for this occurrence.
> >
> > Susan
> >
> > - -----Original Message-----
> > From: email @ redacted
> > [mailto:email @ redacted]On Behalf Of The Fullers
> > Sent: June 27, 2003 11:02 PM
> > To: email @ redacted
> > Subject: [IPp] Paralysis after a mild low bg
> >
> >
> > Hey everybody,
> > We have just returned from The Children's Hospital of Alabama after 24
hours
> > of what I can only describe as hell on earth.  Yesterday morning I went
in
> > to
> > wake my son Jeffrey, 7(dx 5/00) at 8am to get ready for bible school.
He
> > was
> > hard to wake up but that is not out of the ordinary.  During my rushing
> > around
> > trying to get his two sister ready to go, I notice that he apparently
cannot
> > sit up.  He was laying on his right side and every time he tried to
raise up
> > he fell back down onto the bed.  So I think to myself ok a low, and get
the
> > meter, he is 60, not that bad, but a little low.  Believe me he has been
> > lower, seizure lower.  So I get some juice and get his older sister to
try
> > to
> > hold him while I give him the juice, he seems to be understanding what I
am
> > saying to him, looks at me when I say his name, etc.  Then I notice that
the
> > right side of his mouth is drawn down, and his right arm is completely
limp,
> > just hanging.  I knew something was wrong.  He could not stand, he could
not
> > speak, he was non functioning on the right side.  So we call 911 and his
> > endo.
> > We got to the ER and he failed all of his neurological exam. Could not
do
> > any
> > of it.  Could not say my name.  Laughed and giggled like a baby.  (Not
at
> > all
> > the way he would act in a normal situation if he was in the hospital) My
> > husband arrived and he was slowly gaining his control of his arm and
leg,
> > but
> > only very limited verbal.   At 10:30 he finally said Momma, but could
not
> > tell
> > us his sisters name, could not say Daddy, could not tell us the name of
his
> > baseball team.  You could tell that he knew what he wanted to say but
could
> > not get it out.  He vomited twice in the ER.  We were transferred to
> > Children's where his endo is and by the time we got there he was almost
back
> > to normal, but it was then 3PM!  Seven hours after i woke him up.  By
the
> > way
> > bloodsugar at the first ER was 147, and normal throughout.  Well, we
have
> > had
> > CT's, MRI's, EEG, complete lab workup.  So far no sign that it was a
stroke.
> > They are covering all the bases and we are seeing a Ped Cardiologist on
> > Thursday.  CT neg, MRI neg.  Good news!  But why did this happed?  And
why
> > did
> > it take him so long to come out of it?  Have any of you ever experienced
> > this
> > before?  The Dr.s told us that they see it in adults but rarely in
children.
> > He is now on 1/2 baby aspirin a day.  Any comments would be sooo
> > appreciated!
> > Laura Fuller, mom to Eryn,10, Jeffrey, 7, (dx 5/00. pumping 2/02) and
Mary
> > Glenn 5.
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> > - ----------------------------------------------------------
> > for HELP or to subscribe/unsubscribe, contact:
> > HELP@insulin-pumpers.org
> >
> > ------------------------------
> >
> > End of pop-digest V1 #397
> > *************************
> ----------------------------------------------------------
> for HELP or to subscribe/unsubscribe, contact:
> HELP@insulin-pumpers.org
----------------------------------------------------------
for HELP or to subscribe/unsubscribe, contact:
HELP@insulin-pumpers.org