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RE: [IPp] Continuous Monitoring Insurance Coverage

I am so sorry that you have had such a hard time so far.  I believe that
Continuous Monitoring takes way more time to get used to than it did for
a pump.  It has a huge learning curve.

When we started with the sensors it took us 5 sensors (15 days) before
we felt like this was something we would want to tolerate.  Now we
wouldn't want to be without it.  

If I had a toddler and knew what I know now about this device, I would
want to always be on the cutting edge.  It is a great time to jump in
with this with a company that is willing to continually offer you
upgrades.  Things are moving so fast, that the things that we don't like
today will be soon issues of the past.

This sensing is not about matching the meter exactly (meter also has a
relatively high error reading) it is about catching a 200 before it
becomes a 300.  It is about catching a 70 before it becomes a 53.  It
has taken us awhile, but we really trust the sensor over the fingerstick
in most istances.

My 11 year old son wears one sensor for 4 days (we have a trick for
extending it) about 3 times a month.  This allows my husband and I to
sleep through the night on these nights and we get to analyze the basal

If they said that you have 30 days, you might want to try it a few more
times before you make a decision.  If I had made a decision the first 5
sensors we had in, we would have returned it for sure. 


-----Original Message-----
From: email @ redacted
[mailto:email @ redacted] On Behalf Of Joy Simon
Sent: Tuesday, July 18, 2006 9:28 AM
To: email @ redacted
Subject: RE: [IPp] Continuous Monitoring Insurance Coverage

My husband and I ordered the Continuous Glucose Monitoring System from
Medtronic's -paid $999.00 out of pocket.   This weekend we tried the
system on Jake - age 20 months.   The system lasted approx. 24-30 hours
before the readings were completely wrong.  AND - when the readings are
very different from the blood glucose meter - the pump locks up and
gives you an error.  I could not unlock the pump and my husband couldn't
either.  At one point my husband removed the batteries out of the pump
and replaced them to try and unlock it.  This seemed to work at first,
but then it locked up again on us.    It was scary to have this happen
as we could not  give Jake insulin after breakfast.   It was hard to get
someone at Medtronic's on the phone at that moment so I removed the pump
and put Jake's old pump back on to give him the insulin.  It was a very
scary experience.  Finally Medtronic's answered my call and showed me
how to unlock the pump.  But, I still am too nervous to try it again.

It is true that you will need to replace this System every year.
Medtronic's does admit that the life of the Continuous Glucose
Monitoring System only lasts for one year.  So, my husband and I are
thinking about returning the Continuous Glucose Monitoring System (you
have 30 days to return it and get your money back).  It's a very
expensive unit - and if it only lasts one year - it's almost not worth
it to us.  Also, we can't believe that  we only got 24 hours of somewhat
close readings of Jake's sugars before it went bad. Medtronic's told us
that the life of one of the units is usually 24-48 hours.  When it was
working, there  was about  25% difference between the Blood Glucose
meter and the Continues Monitoring System.    It did detect a low for us
at 2 AM on Saturday night.  The alarms went off and my husband went to
check what was going on.  The system said Jake's sugars were 50 but when
we took his actual blood sugar with the Blood Glucose Meter it showed us
that he was at 80.  

We are not positive about what we will do - but we are leaning towards
returning it until the technology gets a little more stable.  At least
on toddlers.   

Joy - mom to Jake - age 20 months, dxd 12/05 at 12 months, pumping
minimed since 4/05. 

-----Original Message-----
From: email @ redacted
[mailto:email @ redacted] On Behalf Of Jamie
Sent: Tuesday, July 18, 2006 6:37 AM
To: email @ redacted
Subject: RE: [IPp] Continuous Monitoring Insurance Coverage

 it's funny(NOT) to hear you guys talking about this needing to be
replaced every year. I have not heard that once from my minimed rep nor
have I seen it on the website. I REALLY hate when they leave little
details like that out!!!
 If I were to get insurance to cover, would they be inclined to buy me a
new one every year??

 Jamie Anderson-mom to Zachary(13 Dx 7/05 and pumping since 8/05),
Cleo(10 Dx
3/04 and pumping since 11/04), Jamison(7), and Addalyn(1)

-----Original Message-----
From: email @ redacted
[mailto:email @ redacted]On Behalf Of Amy Johnson
Sent: Tuesday, July 18, 2006 6:19 AM
To: email @ redacted
Subject: RE: [IPp] Continuous Monitoring Insurance Coverage

 We Would Love it also, But out of Pocket We Can't see $999 each year.
Yes it would be Great for nights. one reason I was looking into it.. I
just wish More Insurance Co seen How Great this Item is and How Good it
can be..

Mom to Amanda Dx 2/17/05

There are two seasonal diversions that can ease the bite of any winter.
One is the January thaw.
The other is the seed catalogues. ~Hal Borland .
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