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RE: [IPm] Fwd: All about me.. the short novel!



What ever started all this is still going on.

Medically, the thing to do is to keep all things under control (glucose and
the like) as best you can, with the full knowledge and understanding we
do not consider this to be stable.

Most these situations "declare themselves" after a bit and the increased
focus from this understanding allows better therapy.  After all, if this is
that damn virus, all this may ultimately resolve.

Dr. Joe


-----Original Message-----
From: email @ redacted
[mailto:email @ redacted]On Behalf Of Brian
Sent: Thursday, April 04, 2002 11:52 PM
To: email @ redacted
Subject: [IPm] Fwd: All about me.. the short novel!


Got this sent to me today and I was wondering if I could get everyone's
opinion..


Brian


>To: <email @ redacted>
>Subject: All about me.. the short novel!
>Date: Fri, 5 Apr 2002 01:33:58 -0700
>X-Mailer: Microsoft Outlook Express 5.50.4522.1200
>
>This is basically the question I sent to the diabetes team at the Children
>with diabetes website. I forgot to add that i have had an ANA done, and
>ESR's done weekly (all of which come back in the 20 range).  Anyway, here
>it is! lol
>
>I am a 25 year old woman with a 4 year honeymoon with Type 1
>diabetes.  When I was 16, I had a viral form of Encephalitis, and recently
>I saw a question posted regarding it.  Could my diabetes be caused from
>the Encephalitis? My blood sugar was 14mmols when admitted into acute
>care, and stayed elevated during my hospital stay. I was unconscious and
>eventually paralyzed from the waist down and in one hand. Luckily I fully
>recovered from the Encephalitis, but I started to become severely
>hypoglycemic to the point that I would pass out from low blood sugar. I
>purchased a meter and tested, and noticed that my blood sugars were
>getting higher and higher all the time.  I saw an Endocrinologist and
>eventually was put on a sliding scale of Humalog (My blood sugar is
>usually okay overnight so far).
>I also have quite a bad immune system from all of this I'm sure.  Last
>winter I was hospitalized with fever, and pylonephritis.  It took me two
>months to get better (the fever continued and so did the pain and fatigue)
>after it happened, they think that I might have Lupus as well.  Right now
>I have high blood sugar, high fever, I'm throwing up, I have pain in my
>lower back and abdomen. They told me that I have inflammation in my right
>ovary, kidneys and bowel.  They also saw a 7cm cyst 2 months ago in my
>abdomen and since then it has shrunk and now gone away. They have me at
>home on Dilaudid, and basically waiting. I have been home for 9 weeks with
>this now!  They don't know what to do with me, so they leave me at home to
>sit and wait.  Do you think this could all be related to the Encephalitis
>since the Diabetes was? Or could this be a different inflammatory process?
>I have tried to be seen through Emergency and they just send me home
>because they don't know what to do.  I have not seen a Rheumatologist
>either.  Thanks for taking the time to read this.
>
>I've also had a white blood cell scan, in which I am still waiting for the
>results.
>Basically, I have been home with a fever usually ranging from 37.5-38.5
>Celcius, pain in my abdomen and in my back, bowel problems and fatigue.
>I am extremely frustrated with this whole situation, and want nothing more
>than to get better and move on :)  Thanks again Brian!
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