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Re: [IP] Frustrated, need to vent!



You probably don't live in Arizona then. :( I'm glad you get what you 
need.

On Sunday, January 26, 2014 9:21:26 AM, email @ redacted wrote:
> On SSI, never paid a cent for anything concerning my pump...all supplies
> for pump & meter
>
>
> In a message dated 1/25/2014 8:22:40 P.M. Central Standard Time,
> email @ redacted writes:
>
> No I am  on medicaid.
>
> On Saturday, January 25, 2014 7:14:45 PM, Kathie Kienle  wrote:
>> If you are on disability do you have Medicare coverage?  Medicare covers a
> pump
>> and supplies and if you qualify I think you  can get help with the
> difference
>> after Medicare. Just a  guess.
>>
>> Sent from my iPad
>>
>>> On Jan 25, 2014,  at 9:07 PM, Lola <email @ redacted> wrote:
>>>
>>>   You can order it online or get certain places to order it. Buy it  from
> Canada
>>> even. Just do some searches.
>>> Or try  laxaday. They sell a cheap kind at walmart. Or see if you can
> get  it
>>> covered under disability.
>>>
>>>   Lolita
>>>
>>> <3
>>>
>>> Sent from my  iPhone
>>>
>>>> On Jan 25, 2014, at 8:48 PM,  SomeoneSomewhere <email @ redacted>  wrote:
>>>>
>>>> Last I was told domperidone is not  approved by the FDA and can not be
> sold
>>> here. My GI suggested I  go to Mexico to get it. He's the same GI that
> wanted
>> to
>>>   put in a g-tube. Maybe I should have taken him up on  that.
>>>>
>>>>> On Saturday, January 25, 2014  6:39:51 PM, Lola wrote:
>>>>> Sounds like your on the right  track.
>>>>> You have a GREAT idea. Video yourself !!! What  better way. Or yes
> take the
>>>> docs
>>>>> for a  walk.
>>>>> See what they say then !!
>>>>> I hear  ya about not wanting yet another doc. If you have a stomach
> doc
>>>> already
>>>>> ask for domperidone. It's no  wY at all as bad as reglan. The worst
> side
>>>>   effect
>>>>> will be that it doesn't do anything at  all.
>>>>>
>>>>> Try the weights. Maybe one day  that 1/4 mile will seem like kids play
>   !
>>>>>
>>>>>   Lolita
>>>>>
>>>>>   <3
>>>>>
>>>>> Sent from my  iPhone
>>>>>
>>>>>> On Jan 25, 2014, at 8:00  PM, SomeoneSomewhere <email @ redacted>
> wrote:
>>>>>>
>>>>>>   Thanks.
>>>>>> I am aware that calories in - calories out =  weight loss. According
> to my
>>>>> basal metabolic rate I would  have to eat 640-690 calories a day to
> lose 2
>>> lbs
>>>>   a
>>>>> week, which is what is recommended. I just don't know if  I can wait 15
>>> weeks
>>>> or
>>>>> more to  lose 25% of my body weight which is what they say helps to
> improve
>>>>> diabetes. I am going downhill faster than that. I  never looked at the
> fiber
>>>>> content of glucerna.  :(
>>>>>> I have tried Reglan (metoclopramine). That is one  evil drug. It gave
> me
>>>>> severe side effects in 2 days. I  still take it if my stomach is truly
>>> backed
>>>>   up
>>>>> and I smell like rotten food, but on a prn basis.  Usually instead of
> stuff
>>>> going
>>>>> down though  it just makes me vomit. On the other hand, at least I am
> not
> in
>>>> so
>>>>> much pain if I vomit it  up.
>>>>>> I have a 3 lb weight. I will use that for now. I  try to walk to the
>>>> dumpster
>>>>> or to my car  (about the same distance) once or twice a day. My
> mailbox  is
>>>>> another story. It is about 1/4 mile away back and  forth. I struggle
> to get
>>>> there
>>>>> and back.  But I force myself every few days to otherwise my mail lady
>   will
>>>> send
>>>>> my mail to the post office which  is even worse. I did my yearly
> allotment
>>> of
>>>>   10
>>    >>> PT sessions a year. I don't get more until  October. :( I kept
> falling
>> asleep
>>>>> during it.  Embarrassing to say the least. They did give me some
> resistance
>>>> bands
>>>>> that I do use for my weak  hips and shoulders, probably not as
> faithfully
> as
>>>   I
>>>>> should. I also try to clean my house for a minute or two  every time I
> get
>>> up
>>>> to
>>>>> refill  my drink. That too exhausts me.
>>>>>> If I wanted to deal  with more doctors, I would ask to do another
> cardiac
>>>>>   stress test, which I failed last time in 5 minutes 2 years ago. Good
> thing
>>>>> though, is I don't have any coronary blockages! I  just don't want to
> deal
>>>> with
>>>>> another  doctor. I am seriously thinking about asking my dietician or
> my dr
>>>   to
>>>>> take a short walk with me so they can see what happens.  Either that or
>>>>> beg/borrow/steal a camcorder and take them  a video of it. Wonder if I
> can
>>> do
>>>>   a
>>>>> selfie video on my iPhone? When I exercise, I end up  doing deep in
> breaths
>>>> and
>>>>> pursing  exhalation. I have tried to concentrate on taking more even
> slower
>>>>> breaths but it hasnt  worked.
>>>>>> I have been to the ER at least once a month  for the last year,
> sometimes
>>>>> more. I swore they would keep  me on more than one occasion and they
> didnt.
>>>   As
>>>>> much as I hate hospitals being in one for observation  and/or testing
> for a
>>>> week
>>>>> or so would  probably help me a lot.
>>>>>> As far as my insulin is  concerned. I take 50u of levemir at 9 am,
> and 50u
>>>>   at
>>>>> 9pm. I take Novolog if I am over 150 on a sliding  scale.
>>>>>>
>>>>>>> On Saturday,  January 25, 2014 4:33:08 PM, Lola wrote:
>>>>>>> In order  to lose weight - when our bodies are working - you need  to
> spend
>>>>>> more
>>>>>>> calories  than you eat.
>>>>>>> Fiber (glucerna has 3 gm 12% daily)  can make your gastroparesis
> worse.
>>> (
>>>>>   have
>>>>>>> it I know).
>>>>>>> If  your eating mostly liquids don't cut out fat. You need  that.
>>>>>>> Don't eat a lot at  once.
>>>>>>> Eat small meals. Even a  fruit.
>>>>>>> It's so very hard to exercise but push  yourself. If you do one
> minute
>>> today
>>>>>>   do
>>>>>>> 1.5 tmrw. Then  2.
>>>>>>>
>>>>>>> Exercise makes you  feel good ...
>>>>>>> I have lung function at 42% I know  how hard it is to walk. I can't
> walk
> n
>>>>>>   talk.
>>>>>>> Be admitted if you have to. Tell the  hospital your at your wits end
> and
>>>>>   need
>>>>>>> help. They can and should teach you  everything.
>>>>>>>
>>>>>>> Are you on  gastro meds ?
>>>>>>>
>>>>>>> Drink  water. And then more.
>>>>>>> Show your doctor your  exercising trying etc to do what she wants ...
>>>>>   Actually
>>>>>>> work with her. And either it'll work or  you can say SEE it didn't
> work.
>>>>>>>
>>>>>>> Walking and  other exercises actually help gastro too.
>>>>>>> Go to  walmart and buy 1 5 lb dumbbell. It'll cost 5$. You can use
> it
>>>>> sitting
>>>>>>> down laying  down.
>>>>>>> You can actually use different muscles  depending if your sitting it
>>>   laying.
>>>>>>>
>>>>>>> You find you  need less insulin too if you work at it.
>>>>>>> I lift 5  lbs for ten minutes a day and I've actually been able to
>>>>   decrease
>>>>> my
>>>>>>> insulin ratio.  After 1 week !!
>>>>>>>
>>>>>>> Are  you on long acting shots ?
>>>>>>> It sounds like you  really have no more choices than to do what the
> docs
>>>>>   said.
>>>>>>> I'd do what they want just to prove it  doesn't work.
>>>>>>>
>>>>>>> And like  I said ... If it does ....
>>>>>>>   Lolita
>>>>>>>
>>>>>>>   <3
>>>>>>>
>>>>>>> Sent from my  iPhone
>>>>>>>
>>>>>>>> On Jan 25,  2014, at 2:54 PM, Urb Anism <email @ redacted>
> wrote:
>>>>>>>>
>>     >>>>>> Whoa bottled juice....okay! And taste is not an issue  at this
> point,
>> this
>>>>>>>> is an attempt to  meet nutritive challenges. I'd prefer not to eat
> fat
>>>   free
>>>>>>>> Greek yogurt all the time, but what can  one do? Put ginger in it?
> Sure.
>>>>   Try
>>>>>>>> some kale carrot ginger with the dial on  ELEVEN! Or some chard
>>> (extracted)
>>>>>>>>   with Asian pear and  chipotle.
>>>>>>>>
>>>>>>>>   Pomegranate jicama romaine. Butternut squash cinnamon  peach.
>>>>>>>>
>>>>>>>>   Wow.
>>>>>>>>
>>     >>>>>>> On Saturday, January 25, 2014, SomeoneSomewhere
> <email @ redacted>
>>   wrote:
>>>>>>>>>
>>>>>>>>>   I have tried juicing. I would rather buy it in a bottle. Nothing
> I
> ever
>>>>>>>>> juiced tasted good. In fact,  most tasted like dirt.  :)
>>>>>>>>>
>>>>>>>>>>   On 1/25/2014 10:42 AM, Urb Anism  wrote:
>>>>>>>>>>
>>   >>>>>>>> I have a *question*. What about  juicing/extracting? I know
> those can
>>   be
>>>>>>>>>> expensive, but...I'm just trying to  think of something.
> Extracting
>>>>>   removes
>>>>>>>>>> the bulk of fiber from food,  just juicing would pulverize it so
> fine
>>>>   that
>>>>>>>>>> it would be  liquid.
>>>>>>>>>>
>>>>>>>>>>   Won't be easy. I have Gastroparesis also, and despaired. I  drank
> apple
>>>>>>>>>> cider vinegar (what??)  for an entirely different purpose--it
> helped
>>>>>>>>>> my Gastroparesis instead, by a  fluke.  Weird.
>>>>>>>>>>
>>>>>>>>>>   I hope YOU find your solution, by trial and error, by
> happenstance,
>>>>>>>>>>   through
>>>>>>>>>> good fortune, good  advice--whatever it  takes.
>>>>>>>>>>
>>>>>>>>>>   I'm not recommending anything, but I wish you  well.
>>>>>>>>>>
>>>>>>>>>>   B
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>   On Saturday, January 25, 2014,  SomeoneSomewhere
>>>>>>>>>>   <email @ redacted<javascript:_e({}, 'cvml',  'email @ redacted');>>
>>>>>>>>>>   wrote:
>>>>>>>>>>
>>>>>>>>>>   I don't post here much and I don't know who else to vent to so I
>   hope
>>>>>>>>>>> you all don't mind. Please  keep in mind, I am not looking for
>>>   judgement
>>>>>>>>>>> for the choices I am  making right now. If you have such, please
>   keep
>>>>>>>>>>> them to  yourself.
>>>>>>>>>>>
>>>>>>>>>>>   My diabetes (last a1c 9.9), neuropathy (lots of untreated
> pain),
>>    >>>>>>>>> gastroparesis  (lots of untreated vomiting because I am
> limited to
>>   very
>>>>>>>>>>> few foods
>>>>
> <http://www.emilysstomach.com/2013/01/gastroparesis-diet-from-mayo.html>
>>>>>>>>>>>   not to mention the food allergies I have), neurogenic  bladder
> (peeing
>>>>>>>>>>> myself all the  time or cant pee at all) and my blood pressure
> etc
> are
>>>>>>>>>>> all out of control. I  have been to dr after dr trying to get
> help
> and
>>>>   as
>>>>>>>>>>> one dr put it frankly, if I am  not going to help myself (by
> losing
>>>>>>>>>>> weight and getting my a1c  down etc) there is nothing she can or
> will
>>> do
>>   >>>>>>>>> for me. This dr told me that she expects  me to vigorously
> exercise
>> for
>>     >>>>>>>>> the next 8 weeks until I see her again. I  told her I need
> to take
>>   baby
>>>>>>>>>>> steps and she huffed and said  well when you are ready you just
> let
> me
>>     >>>>>>>>> know. I can't sit up without my blood  pressure raising by
> 40-50
>>   points
>>>>>>>>>>> and it makes me woozy and  so I have to stay in bed half the
> time.
> The
>>>>>>>>>>> other half the time  is because I am in so much pain, I am
> exhausted
>>>>>>>>>>> because I sleep an hour  or so at a time. I can't walk more than
> 30
>>>>   yards
>>>>>>>>>>> to take out my garbage  without being out of breath and so
> exhausted
>>>> when
>>   >>>>>>>>> I get back I fall asleep. My PCP called  me into her office
> because
>>   she
>>>>>>>>>>> has received similar letters  from other dr's she has referred
> me  to
>>>>>>>>>>> lately. They have also boiled  things down to my problems being
>>>>>>>>>>>   psychologically  based.
>>>>>>>>>>>
>>>>>>>>>>>   I do have an adrenal tumor which is sporadically producing
>>   >>>>>>>>> norepinephrine and my aldosterone levels  are either
> borderline high
>>   or
>>>>>>>>>>> almost nill. My cortisol level  likewise is not giving consistent
>>>>   numbers
>>>>>>>>>>> and I am waiting for a 24  hour cortisol test to come back. This
> is
>>>   part
>>>>>>>>>>> of the reason I am seeing so  many specialists. I am convinced
> my
>>>>>>>>>>> diabetes is so out of control  because of my adrenal gland or
> some
>>>   other
>>>>>>>>>>> hormone causing things to  truly be out of my control. Back in
> Sept,
> I
>>>>>>>>>>> was forced into a  psychiatric ward under the threat of being
>>>   petitioned
>>>>>>>>>>> by the court because my  diabetes is out of control and it must
> be  my
>>>>>>>>>>> fault. I was screamed at twice  by the medical doctor there for
>>>   stealing
>>>>>>>>>>> food, hiding food you  name it.
>>>>>>>>>>> Several doctors suggested  an insulin pump, however my insurance
> does
>>>>   not
>>>>>>>>>>> cover one yet they cover the  supplies. So I contacted the
> Charles
> Ray
>>   >>>>>>>>> III Association and they said they would  sell me a
> refurbished one
>>   for
>>>>>>>>>>> $1,360 cash. I am on  disability and that is twice what I get  a
> month,
>>>>>>>>>>> and I don't qualify  for a credit card. I have sold a lot of  my
> things
>>>>>>>>>>> trying to save for it  but instead the money has gone to
> Glucerna.  My
>>>>>>>>>>> insurance won't pay for that  either unless I have a feeding
> tube.
>>>>>>>>>>> My blood sugar has bordered  on 600 many times in the last few
> months
>>>>   and
>>>>>>>>>>> my blood pressure spikes puts  me at imminent risk of a heart
> attack
>>> or
>>>>   a
>>>>>>>>>>>   stroke.
>>>>>>>>>>>
>>>>>>>>>>>   I called my insurance about bariatric surgery and they said I
> don't
>>>>>>>>>>> qualify because my BMI is  slightly too low (34 and it has to be
> 35)
>>>   and
>>>>>>>>>>> because they require that I  prove for 6 months that I exercise
> and I
>>>>   eat
>>>>>>>>>>> fruits and  veggies.
>>>>>>>>>>> I don't know what else to  do except starve myself. In the last
> 10
>>> days
>>>>   I
>>>>>>>>>>> have eaten either nothing at  all, including juice or glucerna or
> when
>>>   I
>>>>>>>>>>> have had a single Glucerna, I  stop losing weight. I have lost
> some
>>>>>>>>>>> weight but I am stuck and I  have gained 2 lbs back from
> drinking  1
>>>>>>>>>>> Glucerna a day the last 2 days.  Honestly, I am contemplating
> taking
>>>>   meth
>>>>>>>>>>> to lose weight, and I abhor  drugs.
>>>>>>>>>>>
>>>>>>>>>>>   On top of it all, I am quickly losing my vision. I can't even
> read  a
>>>>>>>>>>> book. My CDE gave me two  paperbacks and I told her I couldn't
> read
>>>   them
>>>>>>>>>>> and she insisted that my  vision will fluctuate and I will be
> able  to
>>>>>>>>>>> read them. I was so upset  tonight I tore up one of those books.
> I
>>>   would
>>>>>>>>>>> have never done that ever  before. I value books.
>>>>>>>>>>> I know this  sounds drastic but I am going to die if I don't do
>>>>   something
>>>>>>>>>>> and dr's wont help me. I  have switched drs many times and I get
> this
>>     >>>>>>>>> same attitude from all of them. Either  doctors are too
> ignorant
>>   and/or
>>>>>>>>>>> lazy to see if something is  wrong with me that is out of my
> control,
>>>   or
>>>>>>>>>>> something is essentially wrong  with me and I don't deserve to be
>>>>   treated
>>>>>>>>>>> and to  live.
>>>>>>>>>>>
>>   >>>>>>>>> I am just stuck between a rock and a hard  place and I need
> help and
>>   no
>>>>>>>>>>> one will help me. I really  don't want to  die.
>>>>>>>>>>>
>>     >>>>>>>>> Again, not looking for judgement.  Reasonable advice will be
>>   considered
>>>>>>>>>>> but please keep in mind  I have multiple extremely complicated
> things
>>>>>>>>>>> going  on.
>>>>>>>>>>>
>>>>>>>>>>>   Louree
>>>>>>>>>>>   .
>>>>>>>>>>> Follow us at  https://www.twitter.com/insulinpumpers
>>>>>>>>>>>   Make a long URL short at  http://type1.org
>>>>>>>>>>   .
>>>>>>>>>> Follow us at  https://www.twitter.com/insulinpumpers
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>>>>>>>>>   .
>>>>>>>>> Follow us at  https://www.twitter.com/insulinpumpers
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>>>>>>>>   .
>>>>>>>> Follow us at  https://www.twitter.com/insulinpumpers
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>>>>>>>   .
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>>>>>>   .
>>>>>> Follow us at  https://www.twitter.com/insulinpumpers
>>>>>> Make a long URL  short at http://type1.org
>>>>> .
>>>>> Follow us  at https://www.twitter.com/insulinpumpers
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>>>> .
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>>> .
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