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Re: [IP] Completely bummed



You're my hero and role model--thanks!

On Sunday, January 26, 2014, John S Wilkinson <email @ redacted> wrote:

> I have used reservoirs for 30 days or more. I just fill 3 reservoirs at a
> time and keep them in the Fridge. When one runs out I just replace it with
> the next one.
> I put the used one in the fridge. When they are all used I just refill them
> and put them back in the fridge. When the plunger gets stiff pushing it in
> I
> sometimes replace that reservoir.
> I also use the Quick set for longer times ten 3 days. I Have reached 20
> days
> with one of them. I just wash the area with Ivory Bar Soap. Dry it good use
> Mastisol Liquid Adhesive and apply the set.
> I only use 29 units of U-500 per day in the pump. I use the set until I see
> or feel a problem. I do not scar easily so that has not been a problem, BUT
> YMMV. I have had one that has turned pink and itched. I replaced it and
> covered up the old spot with a small circular band aid covered with triple
> antibiotic ointment. It healed in 3 days with no problem, not even a scar.
>
>
>
> John S Wilkinson
> Rome, NY
>
>
> -----Original Message-----
> From: email @ redacted <javascript:;>
> [mailto:email @ redacted <javascript:;>] On Behalf Of
> Urb Anism
> Sent: Saturday, January 25, 2014 3:36 PM
> To: email @ redacted <javascript:;>
> Subject: Re: [IP] Completely bummed
>
> Here's how I did it. I would make sure I scrubbed the insertion site when I
> took my shower that day, with a rough wash cloth or loofa--a bit of
> exfoliation for better adhesion. Then, fill the reservoir for the number of
> days of insulin I wanted to use the set (I reused reservoirs also). See
> your
> daily use on the pump, multiply by number days you need to use the set,
> etc.
>
> I cleaned the insertion site thoroughly as always. Everything else was the
> same, mainly more insulin in the reservoir. There are other Pumpers who do
> this. I did it with very few ill effects: a couple of times, absorption was
> reduced. A few other times, the site became slightly inflamed, and I
> removed
> the set. Oddly enough, the very last time I did this, both happened
> simultaneously. (This only happened that one time, thank goodness).
> Extended use worked better on my torso than on alternative sites.
>
> You probably won't have to keep the sets in for as long as I did. (!) I
> have
> heard of people using sets for MUCH longer than I ever did, however, with
> no
> ill effects. Even an additional day can extend supplies. I had zero
> noticeable effects after one additional day, regardless of the site. In
> general, I had very few noticeable effects with extended use of infusion
> sets, but there are unseen effects such as scarring, the aforementioned
> absorption issues, and potential infection. I can honestly say, from
> personal experience, that these are unlikely. YMMV!
>
> As soon as I got a pump, I stopped having to take 7 or 8 shots a day.
> Lantus and its friends didn't work. The pump and several basals did. So I
> did what I had to to stay on it. I hope your situation looks brighter soon.
> You came to a wonderful forum for help to keep pumping. You might get told
> off, and quoted out of context, but you will get help!
>
> Good luck!
> B
>
 > On Saturday, January 25, 2014, Rick Priore
<email @ redacted<javascript:;>>
> wrote:
>
> > Thank you so much for the kind words can you explain to me in detail
> > how you go about using the sets a little bit longer On Jan 25, 2014
> > 1:09 PM, "Urb Anism" <email @ redacted <javascript:;>
> <javascript:;>>
> > wrote:
> >
> > > Rick,
> > >
> > > Quite frankly--and I wouldn't recommend this if I hadn't done it for
> > nearly
> > > two years--you can use infusion sets for more than three days. *It's
> > > not ideal, unlike the rest of a poor diabetic's life.* People who
> > > live in a perfectly insured, well-funded world will be shocked and
> > > appalled. And will chew you out. Over here in the real world,
> however...
> > >
> > > I extended a few months of generously donated sets to two years
> > > because I was dead serious about staying on the pump, uninsured, too
> sick to work.
> > > Donators are lifesavers, right? I know that. But even they couldn't
> > supply
> > > two years worth of pump supplies. So.
> > >
> > > Using sets an extra day (or ten!) can help when both supplies and
> > > cash
> > are
> > > low. It's your choice. This is an emergency option that with care,
> > > can
> > make
> > > your supplies last longer.
> > >
> > > Meanwhile, blessings, good luck, and joy to you and your precious son!
> > You
> > > are wealthy indeed.
> > >
> > > B
> > >
> > >
>  > > On Friday, January 24, 2014, Rick Priore
> <email @ redacted <javascript:;><javascript:;>>
> > wrote:
> > >
> > > > Being a type 1 since I was 9 years old and now going on 43 I
> > > > finally
> > let
> > > it
> > > > get to me. I always find myself struggling to get supplies mainly
> > > > quick sets my insurance charges an arm and a leg I'm sure just
> > > > like everyone
> > > else
> > > > and I like a lot of other people fall into the category of the
> > > > working poor. I had help from a few members on here and I feel
> > > > like they were
> > > angel
> > > > sent from heaven so tonight as I was switching sites I realize I'm
> > > > completely out of supplies a box of old Kwikset I have I opened
> > > > and had never seen a connecting and like this before so as I reach
> > > > for it
> > that's
> > > > when it hit me I have one 9 millimeter Kwikset left which they
> > > > tend to
> > > not
> > > > work very well on me because im sowie I normally use a 6
> > > > millimeter so
> > I
> > > > call mini Med to see if they could send me emergency supply which
> > > > will
> > > last
> > > > me for 6 days since I change every 3 days and I waited for 47
> > > > minutes
> > for
> > > > them to answer the phone and the person that got on the phone was
> > > > completely oblivious to anything I was trying to explain to her it
> > > sounded
> > > > like she was reading directly from a manual trying to solve my
> > > > problems
> > > so
> > > > now lol I'm sitting here trying to figure out how in the world I'm
> > going
> > > to
> > > > get supplies after spending close to 2,000 dollars to move me and
> > > > my
> > son
> > > > into an apartment from which I was staying with a friend for 7
> > > > months
> > yes
> > > > its very very difficult to try and raise a five year old in
> > > > someone
> > > else's
> > > > house and also deal with the everyday stress and worry you have of
> > > > the disease if anyone could offer up any kind of suggestions or
> > > > help I
> > would
> > > > greatly appreciate it.
> > > > .
> > > > Follow us at https://www.twitter.com/insulinpumpers
> > > > Make a long URL short at http://type1.org
> > > .
> > > Follow us at https://www.twitter.com/insulinpumpers
> > > Make a long URL short at http://type1.org
> > .
> > Follow us at https://www.twitter.com/insulinpumpers
> > Make a long URL short at http://type1.org
> Follow us at https://www.twitter.com/insulinpumpers
> Make a long URL short at http://type1.org
> .
> Follow us at https://www.twitter.com/insulinpumpers
> Make a long URL short at http://type1.org
.
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