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Re: [IP] Frustrated, need to vent!



No I am on medicaid.

On Saturday, January 25, 2014 7:14:45 PM, Kathie Kienle wrote:
 > If you are on disability do you have Medicare coverage? Medicare covers a
pump
> and supplies and if you qualify I think you can get help with the difference
> after Medicare. Just a guess.
>
> Sent from my iPad
>
>> On Jan 25, 2014, at 9:07 PM, Lola <email @ redacted> wrote:
>>
 >> You can order it online or get certain places to order it. Buy it from
Canada
>> even. Just do some searches.
>> Or try laxaday. They sell a cheap kind at walmart. Or see if you can get it
>> covered under disability.
>>
>> Lolita
>>
>> <3
>>
>> Sent from my iPhone
>>
>>> On Jan 25, 2014, at 8:48 PM, SomeoneSomewhere <email @ redacted> wrote:
>>>
>>> Last I was told domperidone is not approved by the FDA and can not be sold
 > > here. My GI suggested I go to Mexico to get it. He's the same GI that
wanted
> to
>> put in a g-tube. Maybe I should have taken him up on that.
>>>
>>>> On Saturday, January 25, 2014 6:39:51 PM, Lola wrote:
>>>> Sounds like your on the right track.
>>>> You have a GREAT idea. Video yourself !!! What better way. Or yes take the
>>> docs
>>>> for a walk.
>>>> See what they say then !!
>>>> I hear ya about not wanting yet another doc. If you have a stomach doc
>>> already
>>>> ask for domperidone. It's no wY at all as bad as reglan. The worst side
>>> effect
>>>> will be that it doesn't do anything at all.
>>>>
>>>> Try the weights. Maybe one day that 1/4 mile will seem like kids play !
>>>>
>>>> Lolita
>>>>
>>>> <3
>>>>
>>>> Sent from my iPhone
>>>>
>>>>> On Jan 25, 2014, at 8:00 PM, SomeoneSomewhere <email @ redacted> wrote:
>>>>>
>>>>> Thanks.
>>>>> I am aware that calories in - calories out = weight loss. According to my
>>>> basal metabolic rate I would have to eat 640-690 calories a day to lose 2
>> lbs
>>> a
>>>> week, which is what is recommended. I just don't know if I can wait 15
>> weeks
>>> or
>>>> more to lose 25% of my body weight which is what they say helps to improve
 >>>> diabetes. I am going downhill faster than that. I never looked at the
fiber
>>>> content of glucerna. :(
>>>>> I have tried Reglan (metoclopramine). That is one evil drug. It gave me
>>>> severe side effects in 2 days. I still take it if my stomach is truly
>> backed
>>> up
>>>> and I smell like rotten food, but on a prn basis. Usually instead of stuff
>>> going
 >>>> down though it just makes me vomit. On the other hand, at least I am not
in
>>> so
>>>> much pain if I vomit it up.
>>>>> I have a 3 lb weight. I will use that for now. I try to walk to the
>>> dumpster
>>>> or to my car (about the same distance) once or twice a day. My mailbox is
>>>> another story. It is about 1/4 mile away back and forth. I struggle to get
>>> there
>>>> and back. But I force myself every few days to otherwise my mail lady will
>>> send
>>>> my mail to the post office which is even worse. I did my yearly allotment
>> of
>>> 10
>   >>> PT sessions a year. I don't get more until October. :( I kept falling
> asleep
>>>> during it. Embarrassing to say the least. They did give me some resistance
>>> bands
 >>>> that I do use for my weak hips and shoulders, probably not as faithfully
as
>> I
>>>> should. I also try to clean my house for a minute or two every time I get
>> up
>>> to
>>>> refill my drink. That too exhausts me.
>>>>> If I wanted to deal with more doctors, I would ask to do another cardiac
>>>> stress test, which I failed last time in 5 minutes 2 years ago. Good thing
>>>> though, is I don't have any coronary blockages! I just don't want to deal
>>> with
>>>> another doctor. I am seriously thinking about asking my dietician or my dr
>> to
>>>> take a short walk with me so they can see what happens. Either that or
>>>> beg/borrow/steal a camcorder and take them a video of it. Wonder if I can
>> do
>>> a
>>>> selfie video on my iPhone? When I exercise, I end up doing deep in breaths
>>> and
>>>> pursing exhalation. I have tried to concentrate on taking more even slower
>>>> breaths but it hasnt worked.
>>>>> I have been to the ER at least once a month for the last year, sometimes
>>>> more. I swore they would keep me on more than one occasion and they didnt.
>> As
>>>> much as I hate hospitals being in one for observation and/or testing for a
>>> week
>>>> or so would probably help me a lot.
>>>>> As far as my insulin is concerned. I take 50u of levemir at 9 am, and 50u
>>> at
>>>> 9pm. I take Novolog if I am over 150 on a sliding scale.
>>>>>
>>>>>> On Saturday, January 25, 2014 4:33:08 PM, Lola wrote:
 >>>>>> In order to lose weight - when our bodies are working - you need to
spend
>>>>> more
>>>>>> calories than you eat.
>>>>>> Fiber (glucerna has 3 gm 12% daily) can make your gastroparesis worse.
>> (
>>>> have
>>>>>> it I know).
>>>>>> If your eating mostly liquids don't cut out fat. You need that.
>>>>>> Don't eat a lot at once.
>>>>>> Eat small meals. Even a fruit.
>>>>>> It's so very hard to exercise but push yourself. If you do one minute
>> today
>>>>> do
>>>>>> 1.5 tmrw. Then 2.
>>>>>>
>>>>>> Exercise makes you feel good ...
 >>>>>> I have lung function at 42% I know how hard it is to walk. I can't walk
n
>>>>> talk.
>>>>>> Be admitted if you have to. Tell the hospital your at your wits end and
>>>> need
>>>>>> help. They can and should teach you everything.
>>>>>>
>>>>>> Are you on gastro meds ?
>>>>>>
>>>>>> Drink water. And then more.
>>>>>> Show your doctor your exercising trying etc to do what she wants ...
>>>> Actually
>>>>>> work with her. And either it'll work or you can say SEE it didn't work.
>>>>>>
>>>>>> Walking and other exercises actually help gastro too.
>>>>>> Go to walmart and buy 1 5 lb dumbbell. It'll cost 5$. You can use it
>>>> sitting
>>>>>> down laying down.
>>>>>> You can actually use different muscles depending if your sitting it
>> laying.
>>>>>>
>>>>>> You find you need less insulin too if you work at it.
>>>>>> I lift 5 lbs for ten minutes a day and I've actually been able to
>>> decrease
>>>> my
>>>>>> insulin ratio. After 1 week !!
>>>>>>
>>>>>> Are you on long acting shots ?
>>>>>> It sounds like you really have no more choices than to do what the docs
>>>> said.
>>>>>> I'd do what they want just to prove it doesn't work.
>>>>>>
>>>>>> And like I said ... If it does ....
>>>>>> Lolita
>>>>>>
>>>>>> <3
>>>>>>
>>>>>> Sent from my iPhone
>>>>>>
>>>>>>> On Jan 25, 2014, at 2:54 PM, Urb Anism <email @ redacted> wrote:
>>>>>>>
>   >>>>>> Whoa bottled juice....okay! And taste is not an issue at this point,
> this
>>>>>>> is an attempt to meet nutritive challenges. I'd prefer not to eat fat
>> free
>>>>>>> Greek yogurt all the time, but what can one do? Put ginger in it? Sure.
>>> Try
>>>>>>> some kale carrot ginger with the dial on ELEVEN! Or some chard
>> (extracted)
>>>>>>> with Asian pear and chipotle.
>>>>>>>
>>>>>>> Pomegranate jicama romaine. Butternut squash cinnamon peach.
>>>>>>>
>>>>>>> Wow.
>>>>>>>
>   >>>>>>> On Saturday, January 25, 2014, SomeoneSomewhere <email @ redacted>
> wrote:
>>>>>>>>
 >>>>>>>> I have tried juicing. I would rather buy it in a bottle. Nothing I
ever
>>>>>>>> juiced tasted good. In fact, most tasted like dirt. :)
>>>>>>>>
>>>>>>>>> On 1/25/2014 10:42 AM, Urb Anism wrote:
>>>>>>>>>
 > >>>>>>>> I have a *question*. What about juicing/extracting? I know those can
> be
>>>>>>>>> expensive, but...I'm just trying to think of something. Extracting
>>>> removes
>>>>>>>>> the bulk of fiber from food, just juicing would pulverize it so fine
>>> that
>>>>>>>>> it would be liquid.
>>>>>>>>>
 >>>>>>>>> Won't be easy. I have Gastroparesis also, and despaired. I drank
apple
>>>>>>>>> cider vinegar (what??) for an entirely different purpose--it helped
>>>>>>>>> my Gastroparesis instead, by a fluke. Weird.
>>>>>>>>>
>>>>>>>>> I hope YOU find your solution, by trial and error, by happenstance,
>>>>>>>>> through
>>>>>>>>> good fortune, good advice--whatever it takes.
>>>>>>>>>
>>>>>>>>> I'm not recommending anything, but I wish you well.
>>>>>>>>>
>>>>>>>>> B
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> On Saturday, January 25, 2014, SomeoneSomewhere
>>>>>>>>> <email @ redacted<javascript:_e({}, 'cvml', 'email @ redacted');>>
>>>>>>>>> wrote:
>>>>>>>>>
>>>>>>>>> I don't post here much and I don't know who else to vent to so I hope
>>>>>>>>>> you all don't mind. Please keep in mind, I am not looking for
>> judgement
>>>>>>>>>> for the choices I am making right now. If you have such, please keep
>>>>>>>>>> them to yourself.
>>>>>>>>>>
>>>>>>>>>> My diabetes (last a1c 9.9), neuropathy (lots of untreated pain),
>   >>>>>>>>> gastroparesis (lots of untreated vomiting because I am limited to
> very
>>>>>>>>>> few foods
>>> <http://www.emilysstomach.com/2013/01/gastroparesis-diet-from-mayo.html>
 >>>>>>>>>> not to mention the food allergies I have), neurogenic bladder
(peeing
 >>>>>>>>>> myself all the time or cant pee at all) and my blood pressure etc
are
 >>>>>>>>>> all out of control. I have been to dr after dr trying to get help
and
>>> as
>>>>>>>>>> one dr put it frankly, if I am not going to help myself (by losing
>>>>>>>>>> weight and getting my a1c down etc) there is nothing she can or will
>> do
 > >>>>>>>>> for me. This dr told me that she expects me to vigorously exercise
> for
>   >>>>>>>>> the next 8 weeks until I see her again. I told her I need to take
> baby
 >>>>>>>>>> steps and she huffed and said well when you are ready you just let
me
>   >>>>>>>>> know. I can't sit up without my blood pressure raising by 40-50
> points
 >>>>>>>>>> and it makes me woozy and so I have to stay in bed half the time.
The
>>>>>>>>>> other half the time is because I am in so much pain, I am exhausted
>>>>>>>>>> because I sleep an hour or so at a time. I can't walk more than 30
>>> yards
>>>>>>>>>> to take out my garbage without being out of breath and so exhausted
>>> when
 > >>>>>>>>> I get back I fall asleep. My PCP called me into her office because
> she
>>>>>>>>>> has received similar letters from other dr's she has referred me to
>>>>>>>>>> lately. They have also boiled things down to my problems being
>>>>>>>>>> psychologically based.
>>>>>>>>>>
>>>>>>>>>> I do have an adrenal tumor which is sporadically producing
 > >>>>>>>>> norepinephrine and my aldosterone levels are either borderline high
> or
>>>>>>>>>> almost nill. My cortisol level likewise is not giving consistent
>>> numbers
>>>>>>>>>> and I am waiting for a 24 hour cortisol test to come back. This is
>> part
>>>>>>>>>> of the reason I am seeing so many specialists. I am convinced my
>>>>>>>>>> diabetes is so out of control because of my adrenal gland or some
>> other
 >>>>>>>>>> hormone causing things to truly be out of my control. Back in Sept,
I
>>>>>>>>>> was forced into a psychiatric ward under the threat of being
>> petitioned
>>>>>>>>>> by the court because my diabetes is out of control and it must be my
>>>>>>>>>> fault. I was screamed at twice by the medical doctor there for
>> stealing
>>>>>>>>>> food, hiding food you name it.
>>>>>>>>>> Several doctors suggested an insulin pump, however my insurance does
>>> not
 >>>>>>>>>> cover one yet they cover the supplies. So I contacted the Charles
Ray
 > >>>>>>>>> III Association and they said they would sell me a refurbished one
> for
 >>>>>>>>>> $1,360 cash. I am on disability and that is twice what I get a
month,
 >>>>>>>>>> and I don't qualify for a credit card. I have sold a lot of my
things
>>>>>>>>>> trying to save for it but instead the money has gone to Glucerna. My
>>>>>>>>>> insurance won't pay for that either unless I have a feeding tube.
>>>>>>>>>> My blood sugar has bordered on 600 many times in the last few months
>>> and
>>>>>>>>>> my blood pressure spikes puts me at imminent risk of a heart attack
>> or
>>> a
>>>>>>>>>> stroke.
>>>>>>>>>>
>>>>>>>>>> I called my insurance about bariatric surgery and they said I don't
>>>>>>>>>> qualify because my BMI is slightly too low (34 and it has to be 35)
>> and
>>>>>>>>>> because they require that I prove for 6 months that I exercise and I
>>> eat
>>>>>>>>>> fruits and veggies.
>>>>>>>>>> I don't know what else to do except starve myself. In the last 10
>> days
>>> I
 >>>>>>>>>> have eaten either nothing at all, including juice or glucerna or
when
>> I
>>>>>>>>>> have had a single Glucerna, I stop losing weight. I have lost some
>>>>>>>>>> weight but I am stuck and I have gained 2 lbs back from drinking 1
>>>>>>>>>> Glucerna a day the last 2 days. Honestly, I am contemplating taking
>>> meth
>>>>>>>>>> to lose weight, and I abhor drugs.
>>>>>>>>>>
>>>>>>>>>> On top of it all, I am quickly losing my vision. I can't even read a
>>>>>>>>>> book. My CDE gave me two paperbacks and I told her I couldn't read
>> them
>>>>>>>>>> and she insisted that my vision will fluctuate and I will be able to
>>>>>>>>>> read them. I was so upset tonight I tore up one of those books. I
>> would
>>>>>>>>>> have never done that ever before. I value books.
>>>>>>>>>> I know this sounds drastic but I am going to die if I don't do
>>> something
>>>>>>>>>> and dr's wont help me. I have switched drs many times and I get this
>   >>>>>>>>> same attitude from all of them. Either doctors are too ignorant
> and/or
>>>>>>>>>> lazy to see if something is wrong with me that is out of my control,
>> or
>>>>>>>>>> something is essentially wrong with me and I don't deserve to be
>>> treated
>>>>>>>>>> and to live.
>>>>>>>>>>
 > >>>>>>>>> I am just stuck between a rock and a hard place and I need help and
> no
>>>>>>>>>> one will help me. I really don't want to die.
>>>>>>>>>>
>   >>>>>>>>> Again, not looking for judgement. Reasonable advice will be
> considered
>>>>>>>>>> but please keep in mind I have multiple extremely complicated things
>>>>>>>>>> going on.
>>>>>>>>>>
>>>>>>>>>> Louree
>>>>>>>>>> .
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